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Page 1 of 13
Remote
£38,000 FTE
Part-time (22 hours per week)
Temporary (9 months)

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Job description

The Community Engagement & Support role is about providing greater sustainability and resilience for the Fahr’s Disease community and Fahr Beyond as a charity. The post holder will be building the capacity for Fahr Beyond to provide support for people living with Fahr’s and their families through creating a volunteer network that can provide an ongoing fortnightly support group. Additionally, through working with other organisations, the post holder will develop more support pathways and opportunities for patients; this is envisioned as strategic work within the Parkinson’s and Dementia space.

This post will also play a key role in bridging Fahr Beyond’s work with the community and medical professionals to develop awareness of Fahr’s Disease.  

What will you do in the role?

Volunteer Mobilisation & Management

  • Support the development of a volunteer strategy for Fahr Beyond
  • Actively manage the establishment of a volunteer network utilising prior expressions of interest, and you will support the onboarding of volunteers
  • The main point of contact for volunteers and help resolve matters they may have

Engagement & Communication

  • Monitor and respond to incoming correspondence to Fahr Beyond, along with assigning any actions for response to the appropriate volunteer
  • Support the trustees and volunteers with managing Fahr Beyond’s social media
  • Work with Fahr Beyond volunteers to ensure that Fahr Beyond maintains regular communications with patients, medical professionals, and key partners
  • ·Represent Fahr Beyond at sector events and/or meetings, particularly with organisations we are a member of

 

Project & Event Management

  • Support (and if required coordinate) Fahr Beyond’s education and awareness events for Fahr’s Disease, and events connecting multiple stakeholders in the Fahr’s Disease space
  • Support volunteers in creating fundraising and community involvement activities (online and potentially in-person) 
Application resources
Application Instructions

Please send your CV (no more than 3 A4 Pages) and a Covering Statement (of no more than one A4 page) in a PDF or Word Document format by email to Dr Adam Tate, Chair of Trustees with the subject ‘Community Engagement & Support Officer – Application’ by 9:00am (BST) Friday 24th July 2026

Organisation
Fahr Beyond View profile Organisation type Registered Charity Company size 0

To support people living with Fahr's Disease and their families

Posted on: 05 July 2026
Closing date: 24 July 2026 at 09:00
Job ref: Community Engagement & Support Officer
Tags: Communications, Fundraising, Advocacy, Volunteering Management, Digital, Delivery, Engagement / Outreach, Health / Medical, Public Relations, Social Media, Wellbeing, Governance / Management

The client requests no contact from agencies or media sales.