Make a real impact by empowering individuals and families affected by Bardet-Biedl Syndrome (BBS) with the knowledge, advice, and support they need to thrive.
At Bardet-Biedl Syndrome UK (BBS UK), we are dedicated to improving the lives of those affected by this rare genetic condition. Our support services help individuals and families navigate the challenges of BBS, ensuring they have access to expert advice, advocacy, and practical assistance to enhance their well-being and independence.
We are seeking an experienced and dedicated Advice Worker to join our passionate and committed team. This role offers a unique opportunity to provide tailored guidance on social care, disability benefits, health services, and education support, making a meaningful difference to those we serve.
About the Role
As an Advice Worker, you will ensure individuals and families receive timely, practical support that empowers them to navigate key challenges. You will:
- Provide specialist advice on disability benefits, social care, education, and healthcare services.
- Advocate for individuals and families, ensuring they receive the support they need.
- Assist with applications and appeals for welfare benefits, social care assessments, and education support plans.
- Work collaboratively with healthcare professionals, social workers, and educators to provide holistic support.
- Attend BBS Clinics, community events, and outreach sessions to deliver in-person advice.
- Stay up to date with relevant legislation and policies affecting individuals with disabilities and rare conditions.
This is a home-based role with occasional travel across England. Travel expenses will be reimbursed in line with BBS UK policies.
Who We’re Looking For
We are looking for a knowledgeable, committed, and proactive Advice Worker with the skills and drive to make a real difference.
Essential Experience & Skills
- Experience providing advice and support to individuals with disabilities or long-term conditions.
- Strong knowledge of social care systems, disability benefits, and education support.
- Experience in advocacy and casework, supporting individuals with complex needs.
- Strong IT skills, including Microsoft Office and case management systems (e.g., CharityLog).
- Excellent communication and interpersonal skills, with the ability to engage with a diverse range of people.
- Ability to work independently, manage a varied workload, and use initiative.
- A deep understanding of the challenges faced by individuals with rare genetic conditions.
Desirable Experience & Skills
- Experience working remotely as part of a dispersed team.
- Knowledge of Education, Health and Care Plans (EHCPs) and experience supporting families with applications and reviews.
- Access to a car for travel (mileage and travel expenses reimbursed).
Why Join BBS UK?
BBS UK is a small, dedicated charity making a real difference in the lives of those affected by Bardet-Biedl Syndrome. We work closely with NHS England to provide essential support services and advocate for improved care and assistance.
By joining us, you will:
- Have a direct and meaningful impact on people’s lives.
- Be part of a supportive, close-knit team that values collaboration and innovation.
- Work flexibly from home while engaging directly with the community.
- Receive ongoing training and professional development.
- Help shape the future of support services for people with BBS.
Additional Information
- DBS Check: An enhanced DBS check is required for this role.
- Safeguarding: Completion of safeguarding training within the first month of employment.
- Flexible Working: Some evening or weekend work may be required, with time off in lieu provided.
- Travel Expenses: Covered for outreach work in line with BBS UK policies.
How to Apply
If you’re ready to use your skills and experience to make a real impact, we’d love to hear from you!
If you would like to discuss the role before applying, details can be found in the application pack.
Application Deadline: Sunday 27th April 2025
Registered Charity
6 - 10
We support and empower our community, champion wellbeing, and raise awareness, ensuring understanding, support, and hope for all affected.
The client requests no contact from agencies or media sales.
Thank you!
CEO
We’re looking for a new Chief Executive Officer to lead our vital work, bringing their expertise in data and technology and their passion for nature to drive the NBN Trust forwards.
Position: CEO
Salary: £65,575 – £68,854 depending on experience.
Location: Fully remote, working from home, with some travel.
Contract: Permanent.
Hours: 35 hours per week. Flexibility regarding working pattern.
Closing date: 9am, Friday 11 April 2025
Interviews: 1st round, week commencing w/c 28 April. 2nd round, week commencing 5 May.
The NBN Trust is a nature charity with a difference. Our mission is making data work for nature. The UK is one of the most nature-depleted countries on Earth and, if we’re to stand any hope of fixing it, we’re going to need data. Lots of data. “What gets measured gets done”, as the saying goes. We need to understand what we’ve lost and what remains. We need to set targets for nature’s recovery. And we need to measure success as nature turns the corner and starts to make a comeback.
That’s where the NBN Trust comes in. We support the entire UK conservation movement by providing public access to the wildlife data that’s needed to make good decisions for nature. We’re a conservation charity, tech charity and people charity rolled into one – a unique combination!
You’ll be responsible for:
· Driving the delivery of our strategy and vision of making data work for nature.
· Developing and maintaining excellent relationships with our partners, funders and stakeholders.
· Overseeing the day-to-day management of the NBN Trust, ensuring financial sustainability, staff performance and wellbeing, and good governance.
We’re looking for someone with a data or digital background, with a track record of overseeing the delivery a high-quality user experience through digital products and commercialising data or digital services. Passion for nature conservation is essential, as well as a desire to engage with the many natural history specialists who contribute data to the NBN Atlas. We’re looking for an ambitious individual with an agile, entrepreneurial mind-set, who can drive income generation and growth.
The ideal candidate understands what an excellent data platform looks like and how to continually evolve this to keep up with trends and developments. Attention to detail and ability to horizon-scan is key in overseeing the Trust’s projects and key work streams and ensuring good governance. The NBN Trust is a small team, with a big responsibility, undergoing a period of change, and your role will be to steer the staff through this change and deliver the NBN Trust’s strategy.
We’re a 100% remote-working charity, so you’ll need to be comfortable and effective working from home. The whole team meets up four times a year for in-person team meetings (in London and other locations around the UK). The post holder may be required to work occasional weekends and evenings.
Applicants must reside in the UK and be eligible to work in the UK.
We’re an equal opportunities and Living Wage employer. We welcome all applicants, and we’re striving to create an inclusive and diverse team. If you’re interested in joining us, please read the Job Pack – and get in touch if there’s anything you’d like to ask.
When applying, if possible, please also complete and return the EDI Recruitment Questionnaire. This is not mandatory but will ensure we can gather information across a range of questions such as ethnicity, religion, working background, etc. to monitor the diversity of applicants.
PLEASE NOTE: This role is being advertised by NFP People on behalf of the organisation.
Thank you!
On The Water Project Coordinator
Location: Homebased / Remote with regular travel to Birmingham, London and Edinburgh
Contract: Fixed term until 31st December 2025, full time 35hrs per week
Salary: £32,250 gross per annum
Closing Date: Monday 21 April 2025
Interview: Interviews to be held on Friday 2 April
Are you looking for a new opportunity?
The Marine Society & Sea Cadets (MSSC) is a vibrant and growing charity delivering life changing nautical adventure for young people through the Sea Cadets to give them the best possible head start in life. We also provide personal and professional development opportunities for seafarers with the Marine Society. Working with our staff, cadets, and volunteers, we have built a vision and five-year strategy to take us forward and further improve the astounding contribution already made through our work to the lives of thousands of young people and seafarers, while fully supporting our volunteers who are vital to our success.
We are currently looking for an On The Water Project Coordinator to join our team.
About the role
This is an exciting opportunity to lead on an externally funded outreach project providing hard to reach young people with the opportunity to try free boating sessions over the summer holidays.
This is a very varied and rewarding role that requires someone who is self-motivated, organised, creative, tenacious, positive and IT competent with experience in project management.
You need to be able to motivate and inspire your project team, ensuring that the project is on target through continuous monitoring and evaluation. The On The Water Project Coordinator will be responsible for the line management of 3 fixed-term Project Assistants.
Whilst this role is homebased for the majority of the time, it requires the post holder to travel to each of the locations intensively throughout the 5 week delivery period, as well as regular travel for both the planning and evaluation periods. Travel expenses are covered as part of the role.
Responsibilities
Coordinate and ensure the delivery of the On the Water project.
- To manage the temporary Project Assistants at Royal Docks, Midlands and Port Edgar Boat Stations
- Work with the Project Assistants and Growth and Development Workers to enable the effective recruitment of young people, particularly those facing difficulties or disadvantage to the project through recruitment and referrals from local authorities, schools and other relevant bodies
- Devise, plan and implement systems to record and report on the project’s activity, progress and outcomes
- Manage the budget in accordance with the agreed expenditure targets, ensuring that accurate records are maintained
- Ensure the safe and smooth running of delivery in line with all internal policies
- Manage the evaluation, wrap up and future planning of the project
- Ensure the project meets it's targets and funders have timely and accurate reports
- Develop robust monitoring and booking systems and ensure they are rolled out, understood, and used across all 3 sites
Requirements
- Experience of working with young people or community development in a wide variety of community groups
- Experience of planning, delivering and evaluating projects and/or activities
- Proven leadership skills
- Building partnerships
- Excellent internal and external stakeholders skills
- Line management responsibility
- Full Driving Licence
Desirable
- Qualification in Project Management
- Line management of a remote team
Benefits
- Flexible Working hours and a hybrid culture
- Cycle to work scheme and Season Ticket Loan
- 25 days annual leave plus bank holidays
- Life assurance (4x salary) for those that join the pension
- Private medical insurance
- Pension (employer contribution up to 10%)
- Wellbeing portal and EAP with 121 counselling
- Employee development: We are investing in our employees' development and have an annual calendar of learning and development opportunities, designed to support employees to develop into their roles and stretch them to achieve their full potential.
If you are interested in this On The Water Project Coordinator vacancy, please apply now!
Additional Information
MSSC positively encourages applications from suitably qualified and eligible candidates from all backgrounds. Equity, diversity, and inclusion really matters to us, so we can best serve our beneficiaries from every community. We work to ensure a fair and consistent recruitment process and aim to be a charity where diversity of experience, identity and skills are valued and welcomed. MSSC is an equal opportunities employer.
We recognise our responsibilities to safeguard and protect the young people and vulnerable adults with whom we work. We do all we can to promote their health, safety and wellbeing, and we expect our staff to share this commitment and work in line with safeguarding policy, the MSSC’s values and ethos of inclusivity. We adhere to safer recruitment practices and therefore employment is subject to detailed pre-employment checks for successful candidates, including references and criminal disclosure checks and the completion of a disclosure questionnaire.
All successful applicants are required to attend safeguarding training and undergo a criminal record check.
Registered Charity
101 - 500
We help launch young people for life through adventure.
The client requests no contact from agencies or media sales.