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Pathfinders Neuromuscular Alliance, Remote
£40,950 per year
Posted 2 days ago Quick Apply
Closing in 3 days
SOS Children's Villages UK, Remote
£28,000 - £32,000 per year DOE
Join us to develop donor journeys, enhance supporter engagement, and drive retention to help change lives!
Posted 6 days ago Quick Apply
Closing in 3 days
Prospectus, Remote
£57,000 to £66,043 per annum
Posted 2 weeks ago
ImpactEd Group, Leeds (Hybrid)
£66,500 - £75,000 per year
Posted 1 week ago
Charity People, Remote
£35000 pro rata (£20,000 actual)
Posted 4 days ago Quick Apply
Ten Ten Resources, Remote
Circa £58,000
Use your business leadership skills to nurture the spiritual growth, personal development & social responsibility of children & young people
Posted 1 week ago
Page 5 of 5
Remote
£40,950 per year
Part-time (18 hours per week)
Permanent
Job description

Job Title: Chief Executive Officer (CEO)
Responsible to: Board of Trustees
Working Hours: Part-time – 18 hours per week
Salary: £19,656 per annum (£40,950 FTE based on a 37.5-hour week)
Base: Home-based with occasional travel

About Us
Pathfinders Neuromuscular Alliance is a user-led organisation that promotes independence, choice and quality of life for teenagers and adults with muscle-weakening conditions. We empower individuals to take control of their health, access opportunities and contribute to their communities.

Rooted in the social model of disability, our work is driven by collaboration, lived experience, and evidence-based practice. Together, we champion choice, inclusion and better services for our community.

The Opportunity
We are seeking an exceptional and visionary Chief Executive Officer to lead Pathfinders Neuromuscular Alliance. The CEO will be the public face of the organisation, building strong relationships with stakeholders, advocating for the voice of adults with muscle-weakening conditions and driving the organisation’s strategic vision.

This is a unique leadership opportunity for someone with lived experience of muscle-weakening conditions to shape the future of a dynamic and impactful organisation. You will ensure the charity’s sustainability, provide operational oversight and work collaboratively with the Board of Trustees, staff and beneficiaries to meet the priorities of our community.

Key Responsibilities

  • Deliver and implement the strategic vision of the organisation.

  • Represent Pathfinders as its public face, advocating for the needs and voices of adults with muscle-weakening conditions in public, media, and campaign spaces.

  • Build partnerships and networks across sectors, fostering collaboration to support our mission.

  • Work with trustees to oversee governance, ensure statutory compliance and risk management - building a culture of open communication with the trustees. 

  • Build teamwork and co-operation within the Charities Management Team

  • Manage an appropriate risk management policy and ensure all policies are relevant and up to date.

  • Oversee fundraising initiatives to secure sustainable income, working across diverse funding streams.

  • Manage organisational finances, including budget preparation, financial oversight, and reporting to the Board and funding bodies.

  • Be responsible for budgeting and oversee payroll, HR and contracts.

  • Be able to manage projects and add extra project delivery capacity when needed.

  • Foster a positive and inclusive culture among staff and volunteers, ensuring alignment with Pathfinders’ mission and values.


 

Person Specification

Essential Skills and Experience:

  • Lived experience of muscle-weakening conditions

  • CEO experience, or equivalent within a large organisation

  • Experience of successfully working with Boards in order to ensure the current and future success of the organisation

  • Strong financial management skills, including budgeting, reporting and risk assessment.

  • Experience in fundraising, securing income from a range of sources (e.g., trusts, corporate sponsors, and community support).

  • Knowledge of charity governance, safeguarding, data protection and compliance requirements.

  • Excellent communication skills, with experience of building relationships with stakeholders and engaging with diverse audiences.

  • Understanding of human resources and personnel management.

Desirable Attributes:

  • Confidence in public speaking and in writing, with the ability to represent the organisation in high-profile spaces.

  • Strategic thinking with the ability to identify trends and opportunities to advance the charity’s mission.

  • Empathy, adaptability and a collaborative approach to leadership.

  • Proficiency in IT tools and financial software.

Our Values:
Pathfinders Neuromuscular Alliance is built on the principles of:

  • Enabling and encouraging independence.

  • Being user-led and collaborative.

  • Rooted in the social model of disability.

  • Valuing shared lived experiences.

What We Offer

  • A unique leadership opportunity within a values-driven, user-led organization.

  • Flexible, home-based working arrangements.

  • The chance to make a significant impact on the lives of individuals with muscle-weakening conditions.

How to Apply
To apply, please submit your CV and a cover letter detailing your lived experience, leadership skills and vision for the role. Applications close on Tuesday 11th March at 6pm.

Application Instructions

In your cover letter, please detail how you meet the person specification and detail your lived experience, leadership and vision for the role. The cover letter should be no more than two pages.

Posted by
Pathfinders Neuromuscular Alliance View profile Organisation type Registered Charity Company size 11 - 20
Posted on: 19 February 2025
Closing date: 12 March 2025 at 17:00
Tags: Policy, Monitoring and Evaluation, Office Management, Public Relations, Strategy, Governance / Management

The client requests no contact from agencies or media sales.