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Make a real impact by empowering individuals and families affected by Bardet-Biedl Syndrome (BBS) with the knowledge, advice, and support they need to thrive.

At Bardet-Biedl Syndrome UK (BBS UK), we are dedicated to improving the lives of those affected by this rare genetic condition. Our support services help individuals and families navigate the challenges of BBS, ensuring they have access to expert advice, advocacy, and practical assistance to enhance their well-being and independence.

We are seeking an experienced and dedicated Advice Worker to join our passionate and committed team. This role offers a unique opportunity to provide tailored guidance on social care, disability benefits, health services, and education support, making a meaningful difference to those we serve.

About the Role

As an Advice Worker, you will ensure individuals and families receive timely, practical support that empowers them to navigate key challenges. You will:

• Provide specialist advice on disability benefits, social care, education, and healthcare services.
• Advocate for individuals and families, ensuring they receive the support they need.
• Assist with applications and appeals for welfare benefits, social care assessments, and education support plans.
• Work collaboratively with healthcare professionals, social workers, and educators to provide holistic support.
• Attend BBS Clinics, community events, and outreach sessions to deliver in-person advice.
• Stay up to date with relevant legislation and policies affecting individuals with disabilities and rare conditions.

This is a home-based role with occasional travel across England. Travel expenses will be reimbursed in line with BBS UK policies.

Who We’re Looking For

We are looking for a knowledgeable, committed, and proactive Advice Worker with the skills and drive to make a real difference.

Essential Experience & Skills

• Experience providing advice and support to individuals with disabilities or long-term conditions.
• Strong knowledge of social care systems, disability benefits, and education support.
• Experience in advocacy and casework, supporting individuals with complex needs.
• Strong IT skills, including Microsoft Office and case management systems (e.g., CharityLog).
• Excellent communication and interpersonal skills, with the ability to engage with a diverse range of people.
• Ability to work independently, manage a varied workload, and use initiative.
• A deep understanding of the challenges faced by individuals with rare genetic conditions.

Desirable Experience & Skills

• Experience working remotely as part of a dispersed team.
• Knowledge of Education, Health and Care Plans (EHCPs) and experience supporting families with applications and reviews.
• Access to a car for travel (mileage and travel expenses reimbursed).

Why Join BBS UK?

BBS UK is a small, dedicated charity making a real difference in the lives of those affected by Bardet-Biedl Syndrome. We work closely with NHS England to provide essential support services and advocate for improved care and assistance.

By joining us, you will:

• Have a direct and meaningful impact on people’s lives.
• Be part of a supportive, close-knit team that values collaboration and innovation.
• Work flexibly from home while engaging directly with the community.
• Receive ongoing training and professional development.
• Help shape the future of support services for people with BBS.

Additional Information

• DBS Check: An enhanced DBS check is required for this role.
• Safeguarding: Completion of safeguarding training within the first month of employment.
• Flexible Working: Some evening or weekend work may be required, with time off in lieu provided.
• Travel Expenses: Covered for outreach work in line with BBS UK policies.

 How to Apply

If you’re ready to use your skills and experience to make a real impact, we’d love to hear from you!

If you would like to discuss the role before applying, details can be found in the application pack.

Application Deadline: Sunday 27th April 2025

We are looking for a determined, skilled, proactive trusts fundraiser to join our small team in this newly created role to help stop children dying suddenly and without explanation.

Tragically, 1-2 seemingly healthy children die in the UK every fortnight, often going to sleep and never waking up. This incidence is unchanging. SUDC UK was founded in 2017 to raise awareness of Sudden Unexplained Death in Childhood (SUDC), encourage and fund scientific research and offer support and advice to affected families.  We believe SUDC research should receive more attention and scientific investment and are inspired by efforts to impact SIDS (cot death), where there has been an 80% reduction in infant deaths in the past 30 years. We can do so much more for SUDC children and their families.  

Why apply to SUDC UK? The post holder will be joining our ambitious, passionate, young charity, which consistently punches above its weight. SUDC remains relatively unknown to UK funders, but we are desperate to change this. Despite the current challenging trust fundraising environment, we are hopeful there are philanthropists and grant makers who will be inspired by our impact to date and the enormous potential to save young lives.

Fully remote. A home-based and flexible role. Collaboration over Teams/Zoom. Very occasional travel to meetings/events.

Corporate Partnership Executive

Do you want to be part of a passionate team and help support a lifesaving cause? If so then read on for more details as to how you can work for our Charity!

As part of Midland Air Ambulance Charity’s (MAAC) corporate team, the Corporate Partnership Executive is responsible for taking a proactive approach to raising the profile of the charity and deepening relationships with businesses in the communities we serve.

You will provide support to the Senior Partnership Executive and the wider team helping to implement the corporate fundraising strategy via in person and online engagement methods, leading on activity within Staffordshire.

Your focus will be to ensure income growth from corporate sources and activity comprising of new business development, account management and affinity partnerships.  As a longstanding charity, we have established networks in place, however alongside this the post holder will need to innovate and develop new ways of working in line with the ever-changing external environment (i.e., global/national trends, corporate best practise such as CSR and ESG) as well as in response to opportunities and challenges happening in the south of our region.

#Corporate_Partnership_Executive #Corporate_Partnerships #Staffordshire #Partnerships #Corporate_Fundraising #Fundraising 

We are looking for an experienced Trust Fundraiser with a background in securing income from charitable trusts and foundations to join our team to help Groundswell continue to create positive change in the lives of people, services and systems on their mission to tackle homeless health inequalities. Recently kicking off our new ‘Creating Positive Change’ strategy, coproduced by over 130 staff, volunteers, clients and partners, we have ambitious plans and a compelling model which in its simplest form promotes healthier lives and a better future for anyone who has experienced homelessness.  

The successful post holder will have experience in leading the development of well-written, compelling proposals and reports to charitable trusts and corporate foundations; demonstrating key relationship management skills to ensure all our funders feel part of Groundswell’s mission. You will be a flexible worker with strong organisational, research and written communication skills. You will pride yourself in collaborative working to ensure the most successful chance of securing income, whilst being a self-starter who can manage their own workload effectively.

This role focusses on raising funds for Bowel Research UKs medical research projects and work that focuses on patient and public involvement. Funds raised will be a mix of restricted project funding and unrestricted funds that can support the organisations core operations.

You will need to work closely with colleagues in Research and Patient & Public Involvement to ensure you have a strong understanding of current funding needs and research successes. You will take the lead on seeking out new prospects and nurturing existing relationships to significantly grow income. You will achieve this by researching sources of funding, devising individually tailored applications, maintaining excellent communications with existing and potential donor trusts and foundations, delivering an agreed income target as well as growing funding from these sources.

The role will include researching relevant opportunities, identifying the most appropriate projects, writing and submitting applications and ensuring excellent donor management, development and reporting. Trusts and Foundations income is a cornerstone of Bowel Research UKs charitable income each year and is responsible for around a third of fundraised income. The organisation has assessed the trusts' function recently, the outcome of which shows that there is scope to significantly grow this area of activity. Full support will be given to the Trust Fundraising Manager to enable this growth to happen.

You will be a motivated self-starter able to write, budget and communicate effectively. You will develop relationships with ease and feel able to positively influence colleagues at all levels of an organisation. The position requires someone with a positive attitude who is determined and resilient. 

If you are someone who is or has operated at a senior trust fundraiser level, or someone who can demonstrate experience of developing a trust and grants pipeline, creating compelling applications and directly delivering income success, then this role might be for you.

Application notes 

Please download the Candidate Info Pack provided for further information about the role, timelines and next steps.

To progress your application, please contact Jo to organise an informal screening call. Please note, we cannot shortlist candidates who have not had a screening call so please allow enough time to have a call before the closing date.

Closing date for applications: Midnight Wednesday 30th April 

Interviews are expected to be held on Thursday 8th May (virtually)