Publications And Communications Officer Jobs in Newark And Sherwood, Lancashire

The Society for Endocrinology is seeking a Clinical Data Officer to support the national data collection and analysis of endocrine research projects. By curating large patient-centric data sets we will facilitate research into endocrine conditions, ultimately to improve patient outcomes.

The post will assist the Clinical Programme Manager and Clinical Programme Officer with the governance of the research projects, and assist in the direct clinical data collection from sites across the UK. This post will require travel to these NHS sites. 

Purpose of the post

HDR UK and the BHF Data Science Centre are committed to meaningful involvement and engagement where patients and the public are actively involved in shaping our work and decision-making. Reporting to the Centre’s Operations Director, this is a pivotal role that will be integral to ensuring the patient and public voice is embedded in our work at all stages.

You will work closely with public members, research and NHS communities, internal colleagues, charity partners, and funders to develop and implement plans for PPIE activity across all of our key areas of interest, in addition to the governance of the Centre.

This is an exciting opportunity for someone who has a passion for meaningful involvement and engagement of patients and the public, to shape and influence our work on the safe, ethical and scientifically robust use of data for research into the causes, prevention and treatment of all diseases of the heart and circulation.

The successful candidate will have a track record in working with individuals, groups and communities and have the ability to communicate complex information in clear, engaging ways. The post holder will have excellent influencing and negotiation skills, experience of working on complex projects with multiple partners and be comfortable with working at pace. Patient and public involvement and engagement in data-driven research is a growing field. The successful candidate will show a willingness and experience of developing and delivering innovative approaches to involvement where previously opportunities may not have been obvious.

Main responsibilities

Embedding PPIE in our work

• Lead on the delivery of the PPIE strategy for the BHF Data Science Centre, with oversight from the Operations Director, incorporating regular (e.g. annual) reviews and updates of the strategy.
• Lead and facilitate meetings with public contributors to integrate meaningful PPIE throughout all aspects of our work.
• Undertake and manage specific involvement and engagement activities, including but not limited to focus groups, engagement events, developing and undertaking surveys, supporting the writing of plain English summaries of projects and their outputs. In collaboration with senior colleagues, support involvement of patients and the public in the governance of our work.
• Review and provide advice on PPIE elements of research applications ensuring adequate PPIE is incorporated and provide advice where needed to researchers. 
• Develop methods to expand reach and ensure diversity of perspectives and work with the HDR UK PPIE team to grow involvement of currently underrepresented and underserved groups in health data science.
• Build and manage relationships with colleagues within the BHF Data Science Centre, working collaboratively to support and manage involvement and engagement across all areas of work.
• Work closely with the internal communications colleagues to create and disseminate engaging content (e.g. news stories on outputs and impact, videos, infographics, case studies) on our work and involvement and engagement activities using a variety of communication tools.
• Horizon scan and liaise with colleagues across the BHF Data Science Centre and HDR UK for opportunities to increase visibility of the institute’s engagement and involvement impact, i.e. through conferences, festivals, journals and other publications.

Developing PPIE best practice and collaborative working

• Incorporate best practice in our work, learning from examples of successful patient and public engagement that could influence our work
• Provide briefings for colleagues to share best practice and examples of successful patient and public engagement
• Collaborate with PPIE colleagues to coordinate public outreach initiatives and other events, ensuring that stakeholders are afforded opportunities to contribute their input and provide feedback. Establish effective working relationships and ‘ways of working’ with strategic partners to maximise opportunities for collaboration in patient and public involvement and engagement.
• Act as an internal and external ambassador for public, patient and practitioner engagement and involvement.
• Monitor and report on performance of PPIE across the Centre, make effective use of digital approaches to maximize the ability to collaborate, communicate and continuously learn.

Supporting PPIE members

• Be the point-of-contact for all BHF Data Science Centre public contributors, ensuring they are kept updated, receive all information in a timely manner and that any issues are dealt with in a sensitive manner.
• Lead on the recruitment of new public contributors as required. Adapt, develop and provide training for public contributors where necessary identifying training requirements as needed.
• Working with BHF Data Science Centre colleagues, maintain patient and public contact lists in Hubspot (CRM).

Knowledge, Skills, and Experience

Experience

• Experience of working with patients, carers and members of the public with diverse interests.
• Experience of running patient/public involvement activities and evaluating these activities, strategies and methodologies, preferably in a research environment
• Experience of promoting the need and value of engagement and involvement to a wide range of stakeholders and acting as an advocate
• Experience of writing / developing content for public and research audiences and delivering presentations
• Experience of demonstrating an understanding of health research and the needs of patients and the public
• Planning and organisational expertise with a proven track record of delivering challenging projects with multiple partners to deadlines
• Experience of organising and facilitating a range of events and meetings including: event preparation, chairing of meetings, delivering presentations, use of tools to gather views and feedback, follow-up communications and evaluation
• An understanding of the public sensitivities of using health data for research
• Educated to degree level or equivalent

Skills

• Excellent planning and organisational skills, with the ability to manage complex and multiple areas of work with competing priorities in a fast-paced environment.
• Excellent people and interpersonal skills to build collaborative partnerships across diverse groups and the ability to handle sensitive issues positively.
• Excellent written and verbal communication skills with the ability to communicate effectively and confidently with different groups of stakeholders and people at all levels.
• Evidence of ability to meet tight and challenging deadlines using a flexible and adaptable approach
• Good influencing and coaching skills.
• Able to grasp the complexity of work across HDR UK and process complex scientific information to communicate it in a way that is clear, engaging and inspires the public to get involved.
• Strong analytic skills with the ability to frame problems and solutions in a logical manner.
• Ability to work autonomously and make decisions without supervision.
• Ability to work collaboratively and as part of a multi-disciplinary team.

Please note, as we are a UK-based organisation, applicants must be living in, and eligible to work in, the UK. We are unable to sponsor or take over sponsorship of an employment Visa at this time.

We reserve the right to close this vacancy early if we receive sufficient applications for the role. Therefore, if you are interested, please submit your application as early as possible.