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Top job
Bardet-Biedl Syndrome UK (BBS UK), Remote
£25,000 - £30,000 per year
Seeking an experienced Advice Worker to support, empower, and advocate for individuals and families living with Bardet-Biedl Syndrome.
Posted today
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£35,324 per year
We are looking for a digital fundraising expert who can grow AvMA’s online income streams and increase engagement across digital channels.
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The Christie Charity, Remote
£45,929 - £52,559 per year
This role requires a dynamic and enthusiastic self-starter. Is it you?
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Harris Hill Charity Recruitment Specialists, Remote
£0 per year
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Alzheimers Society, Remote
£32,069 - £35,392 Per Annum (includes a market supplement of £2,100)
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Global Clubfoot Initiative, Remote
£40,000 - £42,000 per year
Join us to build strong foundations supporting our operations so that all babies born with clubfoot get life transforming treatment.
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Posted 1 day ago
Page 1 of 15
Remote
£25,000 - £30,000 per year
Part-time (20 hours per week)
Contract (2 years (initially))
Job description

Make a real impact by empowering individuals and families affected by Bardet-Biedl Syndrome (BBS) with the knowledge, advice, and support they need to thrive.

At Bardet-Biedl Syndrome UK (BBS UK), we are dedicated to improving the lives of those affected by this rare genetic condition. Our support services help individuals and families navigate the challenges of BBS, ensuring they have access to expert advice, advocacy, and practical assistance to enhance their well-being and independence.

We are seeking an experienced and dedicated Advice Worker to join our passionate and committed team. This role offers a unique opportunity to provide tailored guidance on social care, disability benefits, health services, and education support, making a meaningful difference to those we serve.

About the Role

As an Advice Worker, you will ensure individuals and families receive timely, practical support that empowers them to navigate key challenges. You will:

  • Provide specialist advice on disability benefits, social care, education, and healthcare services.
  • Advocate for individuals and families, ensuring they receive the support they need.
  • Assist with applications and appeals for welfare benefits, social care assessments, and education support plans.
  • Work collaboratively with healthcare professionals, social workers, and educators to provide holistic support.
  • Attend BBS Clinics, community events, and outreach sessions to deliver in-person advice.
  • Stay up to date with relevant legislation and policies affecting individuals with disabilities and rare conditions.

This is a home-based role with occasional travel across England. Travel expenses will be reimbursed in line with BBS UK policies.

Who We’re Looking For

We are looking for a knowledgeable, committed, and proactive Advice Worker with the skills and drive to make a real difference.

Essential Experience & Skills

  • Experience providing advice and support to individuals with disabilities or long-term conditions.
  • Strong knowledge of social care systems, disability benefits, and education support.
  • Experience in advocacy and casework, supporting individuals with complex needs.
  • Strong IT skills, including Microsoft Office and case management systems (e.g., CharityLog).
  • Excellent communication and interpersonal skills, with the ability to engage with a diverse range of people.
  • Ability to work independently, manage a varied workload, and use initiative.
  • A deep understanding of the challenges faced by individuals with rare genetic conditions.

Desirable Experience & Skills

  • Experience working remotely as part of a dispersed team.
  • Knowledge of Education, Health and Care Plans (EHCPs) and experience supporting families with applications and reviews.
  • Access to a car for travel (mileage and travel expenses reimbursed).

Why Join BBS UK?

BBS UK is a small, dedicated charity making a real difference in the lives of those affected by Bardet-Biedl Syndrome. We work closely with NHS England to provide essential support services and advocate for improved care and assistance.

By joining us, you will:

  • Have a direct and meaningful impact on people’s lives.
  • Be part of a supportive, close-knit team that values collaboration and innovation.
  • Work flexibly from home while engaging directly with the community.
  • Receive ongoing training and professional development.
  • Help shape the future of support services for people with BBS.

Additional Information

  • DBS Check: An enhanced DBS check is required for this role.
  • Safeguarding: Completion of safeguarding training within the first month of employment.
  • Flexible Working: Some evening or weekend work may be required, with time off in lieu provided.
  • Travel Expenses: Covered for outreach work in line with BBS UK policies.

 How to Apply

If you’re ready to use your skills and experience to make a real impact, we’d love to hear from you!

If you would like to discuss the role before applying, details can be found in the application pack.

Application Deadline: Sunday 27th April 2025

Application resources
Posted by
Bardet-Biedl Syndrome UK (BBS UK) View profile Organisation type Registered Charity Company size 6 - 10

We support and empower our community, champion wellbeing, and raise awareness, ensuring understanding, support, and hope for all affected.

IMG_4404.JPGClinics (1) (1).jpg
Posted on: 02 April 2025
Closing date: 27 April 2025 at 16:49
Tags: Advice / Information, Advocacy, Blind, Health / Medical, Learning Disability, Social / Support Work

The client requests no contact from agencies or media sales.