Health community engagement officer jobs
Lead the delivery of one of the UK’s most respected medical conference programmes during an exciting period of growth and celebration.
Join the British Society of Gastroenterology as Events Manager and shape high-profile, inclusive events that make a real impact.
The British Society of Gastroenterology (BSG) is the leading professional body for gastroenterology and hepatology in the UK, supporting a multidisciplinary community of clinicians and researchers committed to improving digestive health outcomes. We are seeking an experienced Events Manager (Maternity Cover) to take ownership of our national and international events portfolio, including our flagship annual conference, BSG LIVE.
Reporting to the Chief Operating Officer, you will lead the end-to-end delivery of conferences, meetings and digital events -from early planning and stakeholder engagement through to delivery, evaluation and continuous improvement. You will work closely with colleagues, committees, Professional Conference Organisers and external suppliers to ensure events are engaging, well-managed, financially sound and aligned with BSG’s strategic priorities.
This is a varied, high-impact role combining strategic oversight with hands-on delivery. You will manage budgets, oversee suppliers, collaborate on event marketing and communications, and champion best practice in accessibility, inclusion and sustainability. As BSG approaches its 90th anniversary in 2027, you will also play a key role in supporting Project 90, enhancing member experience and celebrating excellence across the profession.
We are looking for someone who thrives in a collaborative environment, brings strong project management skills, and enjoys delivering complex events to a high standard. Experience within a membership organisation, charity or professional body - particularly within healthcare, science or education would be advantageous.
In return, BSG offers a flexible, hybrid working environment, the opportunity to work on high-profile national events, and the chance to contribute to an organisation with a clear mission and strong values.
Please submit a CV (no more than 2 pages) and supporting statement (no more than 2 pages)
AmplifyChange has an exciting new job opportunity for a Grants Manager to join our dynamic team of dedicated sexual and reproductive health and rights specialists. The Grants Manager will be responsible for accompanying grantee partner organisations through the grant making process; from assessing funding applications to providing performance and risk oversight for a portfolio of SRHR advocacy grants. In addition, the Grants Manager provides technical expertise for grantees on organisational strengthening and advocacy and campaigning. Key to the role is the sharing of knowledge across the portfolio and monitoring of grantee partners. Job holders will work closely with the team of Grants Officers to ensure grants move efficiently through the grant management cycle, alongside the broader AmplifyChange team. The Grants Manager reports to the Head of Grant making. Fluency in French is essential for this role due to AmplifyChange operating as a bilingual fund. In addition to this, we are looking for experience in Francophone Africa and/or the Middle East. We are also looking to complement existing team skills with knowledge and experience working on SRHR Advocacy themes in particular youth programming/ activism or any of our crosscutting things eg climate justice, mental health and pleasure based sexual health.
MAIN RESPONSIBILITIES
1. Manage a portfolio of international grants, ensuring compliance with internal procedures
2. Provide high quality technical SRHR support and coaching to groups to support them throughout the grant including preparing for contracting and regular performance reviews
3. Collaborate with the team to support the development and management of new grant calls
4. Screen and review grant applications and budgets against pre-defined criteria to recommend whether a grant application should, or should not, be reviewed by the independent Technical Review Panel
5. Maintain oversight of financial and contractual compliance of a portfolio of grants
6. Work closely with the Grants Compliance Team and Grant Operations Team to ensure smooth processes
7. Identify and contribute to lessons learning and knowledge sharing among grantees and support external communications of AmplifyChange supported grants
8. Provide ongoing technical expertise to political and situational analysis of SRHR in the relevant countries
9. Represent AmplifyChange as necessary to support outreach and learning with civil society, donors and potential donors
10. Provide inputs to organisational strategic development and review of progress
11. Engage with the field of philanthropy and grants management to stay informed of best practices
For PERSON SPECIFICATION please see Job Description.
WORKING ARRANGEMENTS
This is a UK based, full time (37.5 hours/week) permanent position, reporting to the Head of Grant Making. AmplifyChange is based in Bath, and we operate on a hybrid working model which would include coming to the office at least once a week. Unfortunately, we are unable to support visa sponsorship for this role and can only accept applications from those with proof of the right to work in the UK. Requests for flexible working arrangements will be considered. International and national travel will be required.
SALARY AND PACKAGE
Basic salary range: £: 41,000 – 44,000 per year
Holiday: 25 days per annum on full time basis
Pension: 8% employer contribution
Life insurance: Life insurance scheme
Benefits: Employee Assistance Program, Health cash plan
AmplifyChange is an equal opportunities employer. We are committed to safeguarding and promoting the welfare of vulnerable children and adults. All our employees are expected to share this commitment and abide by our Code of Ethics at all times.
The client requests no contact from agencies or media sales.
From a disused paint factory to an award-winning community hub, Gorton Central has had a £1million makeover transforming it into a thriving community asset.
Healthy Me Healthy Communities is a not-for-profit social enterprise founded in 2012 making a positive difference to people’s health, lives and local communities.
At Healthy Me Healthy Communities we believe in the power of people and place, working together to tackle today’s societal challenges, alleviating the everyday struggle faced by many people, and meeting the ambitions of residents and communities. Often when organisations look to improve the lives of those affected by poverty, discrimination, and exclusion, they overlook local knowledge, skills and expertise.
For over 10 years, HMHC has been developing neighbourhood approaches and developing multi-sector partnerships, empowering people and communitie
We’re looking for a pro-active person to do this varied, ‘hands on’ role at Gorton Central, our community hub and home, where we develop exciting, innovative and quality services and collaborations. The Centre Coordinator will be responsible for the day to day operations of our busy community hub.
The Centre Coordinator will report to the Service and Business Manager, and will line-manager centre and centre volunteers.
Position Type: Permanent
Location: Gorton Central, Gorton, Manchester, M18 8PE.
Working pattern: 35 hours a week. For this role, we expect the post holder to work at Gorton Central 4 days a week including Wednesday (shared team workday) and Thursday (Good Food Gorton activities day), with a day working from home (to be negotiated Monday-Friday).
We are on a mission to harness the power of people and place, and working together for healthy, thriving communities and quality services.



The client requests no contact from agencies or media sales.
Purpose of Post: The post holder will lead on the delivery of our volunteer programme. You will be responsible for the recruitment of new volunteers and the support of existing volunteers and volunteer contacts to maintain a positive volunteer experience.
You will work across teams to ensure the volunteer’s experience is positive and will play a key role in volunteer retention. You will work with the different teams to identify and develop new volunteering opportunities. You will increase the diversity and variety of our volunteering opportunities to reflect our local community and better serve our members. You will work to ensure our volunteers feel valued, fulfilled, and have opportunities to meaningfully contribute to Hear Us.
As well as oversight of all our volunteering activities, the post-holder will assist in delivering, developing and expanding upon the success of our existing independent peer support Linkworking Project at inpatient wards at the Royal Bethlem Hospital (RBH) and Croydon’s Mental Health Community Services, Jeanette Wallace House (JWH) and Queens Resource Centre (QRC). The post-holder will assist the Peer Support Coordinator in managing and supporting our team of peer support Linkworkers (volunteers) to monitor the quality of Croydon’s statutory mental health services.
This role is crucial for maintaining the efficiency and effectiveness of our volunteer activities, enabling us to support more people in our community.
This post holder will work towards achieving a Hear Us Volunteer Accreditation as part of ensuring good practice for our staff and volunteers, and developing the future creative direction of our volunteering offer.
Given the collaborative and engagement-focused nature of this role, and its direct delivery responsibilities, regular face-to-face working is required, with the post-holder based primarily in the office and attending events and community activities as needed.
Key Duties and Responsibilities
· Develop and support different techniques to attract lived experience volunteers to Hear Us to build a strong and diverse volunteer base
· Develop and produce volunteer recruitment and information material for our public events, website, and social media
· Monitor and screen incoming volunteer applications and make first contact with applicants
· Liaise with Hear Us managers to schedule, plan, and organise in-person and online volunteer recruitment drives and/or information days
· Support with the development and delivery of a standardised volunteer induction.
Volunteer Management
· Lead on organising and managing volunteer involvement in events and activities, ensuring effective briefing and debriefing.
· Provide volunteer supervision and support where required (usually volunteers will be line managed by their project manager if volunteering with a specific project)
· Conduct regular volunteer surveys and establish routes for volunteers to provide feedback.
Volunteer Training
· Schedule, plan, and organise group training days for volunteers to access and complete mandatory training
· To support volunteers to access and complete mandatory training, (including safeguarding, Prevent and information governance) and to encourage attending further training, workshops or other opportunities that may support in their own development.
· To provide bespoke Hear Us training to new volunteers as part of the induction process, and provide refresher and ongoing training for existing volunteers, updating and/or redesigning the training manuals where necessary.
· In collaboration with colleagues, to develop the Hear Us Academy (accredited peer support training modules)
Volunteer Database Management
· Manage the volunteer database by maintaining an accurate record of Hear Us volunteers, including but not limited to activity status, address, and communication preferences on Hear Us database(s).
· Ensure all recruitment checks are completed and accurate volunteer records are held in compliance with the Data Protection Act and GDPR.
Linkwork Project Support
· Act as a deputy for the Peer Support Coordinator where required, in managing a small, vibrant team of peer support volunteer Linkworkers (all of who are current or former mental health service users).
· Assist with Linkworking Project support, such as supporting volunteers in signing up for the SLaM Involvement Register, arranging an induction with Hear Us and introducing peer support Linkworkers to wards and services.
· In the absence of the Peer Support Coordinator, organise and manage the peer support Linkworking rota, finding cover where necessary, ensuring as few sessions are cancelled as possible.
· In the absence of the Peer Support Coordinator, maintain good relations with the SLaM Involvement Register, and submit peer support Linkworkers’ timesheets as required.
· In the absence of the Peer Support Coordinator, ensure the ongoing delivery of Linkworking Sessions
· Help monitor the peer support Linkworking Project, evaluating its effectiveness on improving services and gathering feedback from service users, Linkworkers, and SLaM staff.
· Gather and provide peer support Linkworkers with signposting material and information that can be shared with service users.
Stakeholder Management
· Work in partnership with the Peer Support Coordinator, Engagement and Campaigns Manager, Welfare Rights Manager, Events Coordinator, Deputy CEO, CEO, trustees, and other staff members to achieve the charity's aims and ensure stability and longevity for Hear Us and its members.
· Represent Hear Us on appropriate external committees, networks and other bodies, with other voluntary, statutory and private sector agencies.
· Work on volunteer incentives, recognition and reward schemes across the year.
Other Duties
· Attend supervision and identify your own training and support needs with your supervisor.
· Develop and maintain a healthy working practice for yourself and the volunteers (including peer support Linkworkers) by having clear personal and professional boundaries.
· Keep up to date with best practice and legislation in the volunteer sector.
· Actively oppose discrimination against people who experience mental distress in Croydon in line with the Hear Us diversity and inclusion and recruitment policies
· Adhere to all Hear Us policies and procedures in all aspects of their work (including safeguarding, equity, inclusion & diversity, health & safety and confidentiality)
It is the nature of the work that tasks and responsibilities are in many circumstances unpredictable and varied. All employees are expected to work in a flexible way, as required by Hear Us. Some meetings and other events may be held out of normal office hours and could involve travel away from the local area.
The client requests no contact from agencies or media sales.
The post-holder will be based at GMRC but work alongside TRC and MASH women’s services and work within the pathfinder partnership, across all partner organisations, providing high quality, evidence based, low intensity Cognitive Behavioural Therapy (CBT) based interventions using a guided self-help model, to clients with who have experienced sexual trauma but also have additional mental health needs.
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
We are seeking a Community Development Officer to lead a major in-progress project improving recognition, support, and care for people with smell and taste disorders at a local level across England.
This three-year, volunteer-led programme, funded by The National Lottery Community Fund has achieved significant success in its first eighteen months. We are now recruiting a new postholder to take this strong foundation forward through the next phase of delivery.
Over the past eighteen months, we have recruited and established a thriving network of volunteers and local groups across England. This momentum is expected to continue. The Community Development Officer will work closely with existing volunteers and groups, primarily remotely, while also attending in-person events and meetings in different parts of England as needed.
The postholder will lead the ongoing recruitment, training, and support of volunteer groups, working with them to identify opportunities for local outreach and engagement. Together, you will ensure that more people affected by smell and taste disorders access the information, support, and recognition they need, while continuing to raise awareness of these often-unrecognised sensory impairments.
Our volunteer groups bring together people with lived experience alongside experts from the food, beverage and fragrance sectors, and other relevant fields.
We are looking for a motivated, forward-thinking individual with experience in leading and inspiring others. You will bring energy, creativity, and excellent communication skills to drive the project forward and help build an innovative, sustainable programme of volunteer-led activity, supporting our volunteers to influence change within their communities.
You will empower volunteers to play an active role in transforming public understanding of how essential smell and taste are to our lives, whether they are running peer support groups, organising local events, delivering talks in community settings, or representing the charity at information days.
You will join a small, friendly and ambitious team committed to your professional development as the charity continues to grow.
If you are passionate about making a difference, enjoy working with people, and want to contribute to a pioneering and collaborative organisation that values and empowers its community, we would love to hear from you. We are committed to equality, diversity and inclusion, and welcome applications from people of all backgrounds and experiences.
Please ensure that you read the job description and person specification fully. To access this, please sign into your CharityJob candidate account and click on apply.
SmellTaste is the charity for all those living with impaired smell and taste.
The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
Job Description
Job title Regional Fundraising & Partnership Officer
Responsible to Head of Fundraising
Location Home-based in the South East of the UK, with regular travel across your region and occasional trips to the charity’s Head Office in Ashford, Kent
Hours 35 per week (flexible working patterns considered)
Contract Permanent
Salary £35,622 (rising to £36,035 after probation)
Role purpose
To generate sustainable income and grow our community of supporters through regional fundraising campaigns, community fundraising, local trusts and corporates, and regional membership recruitment. This role also supports project-specific giving, ensuring alignment with our priority impact areas, such as raising awareness, patient services and glaucoma research.
Key responsibilities
Fundraising & Income Generation
- Deliver regional fundraising appeals and campaigns aligned to local services.
- Develop and support community fundraising activities and events.
- Research and apply to relevant rusts and grant makers.
- Identify and engage regional corporate supporters.
- Create compelling sponsorship proposals and corporate packages.
- Lead on regional project-led fundraising tied to specific impact areas (e.g. our ‘Eye Health for All’ outreach programme, glaucoma research).
Membership & Supporter Development
- Support regional membership recruitment.
- Help move individuals from initial contact through to deeper engagement and long-term membership of the charity.
- Promote opportunities for deeper supporter journeys including legacy giving.
Stewardship & Supporter Care
- Follow up with community and regional supporters to thank and update them.
- Tailor recognition to reflect local efforts and giving.
- Share stories of impact from regional initiatives.
- Identify supporters for deeper conversations (major giving, legacies, etc.).
Marketing & Communications
- Provide regional case studies, stories, and testimonials.
- Support regional visibility through PR opportunities and storytelling.
- Work with the Communications team to develop tailored regional materials to support campaigns and stewardship.
Collaboration with Support Services Team
- Collaborate closely with our local outreach teams to ensure relevance of fundraising activities:
- Identify potential projects and fundraising needs.
- Share local insight and opportunities.
- Provide updates and feedback from supporters.
- Build your knowledge of local projects and services that could inspire donations
Supporter Journey Stages You Will Support
- Awareness & Introduction – Inspire new supporters through local presence.
- First Gift / Contact – Encourage entry-level giving and membership.
- Engagement & Involvement – Grow relationships through updates and tailored communication.
- Deeper Connection – Identify and nurture high-potential supporters.
Person specification
Skills and Experience Required
Essential
- Proven experience in fundraising (community, trusts, corporates or individual giving).
- Strong relationship-building skills across a wide range of audiences.
- Ability to write compelling fundraising proposals and stories.
- Confident in working independently and collaboratively.
- Good project management and organisational skills.
- Strong communication skills – verbal, written and interpersonal.
Desirable
- Knowledge of the charity sector and supporter journeys.
- Experience of working with membership or volunteer-based organisations.
- Experience using CRM systems (we use Raisers Edge NXT).
- Understanding of eye health, research or medical charities.
Benefits
Holiday entitlement
25 days holiday per annum (rising by one day per year to 28 days after 3 years’ service), plus Statutory Public Holidays, pro-rated for part-time employees.
Healthcare
Benenden Healthcare cover, with access to a range of services including private diagnostics, treatment and other essential services. 24-hour Employee Assistance Programme for problems which may impact on health or wellbeing.
Pension
Up to 5% contributory pension.
Learning & development
Funded support for learning and development to help employees grow their skills, knowledge and behaviours in pursuit of our strategic objectives.
Working arrangements
Home-based, with regular travel across the South East and occasional trips to the charity’s Head Office in Ashford, Kent.
How to Apply
To apply for the post, please email your CV and a covering letter explaining how you meet the person specification by 5th January 2026
Interviews will take place on 15th or 16th January. Interested candidates are urged to keep these dates free. We will be in touch with shortlisted applicants by 10th January.
Glaucoma UK is the operating name of the International Glaucoma Association, a charity registered in England and Wales no. 274681 and in Scotland no. SC041550
Only applications with a cover letter explaining how you meet the person specification will be accepted.
Our vision is to end preventable glaucoma sight loss.
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
The Christie Charity is a vibrant, fast moving, energetic organisation with a passionate team and a fantastic reputation.
Everything we do is geared to supporting the renowned Christie hospital ensuring cancer patients receive the highest level of treatment and care and have access to world leading research and technology. We provide funding over and above what the NHS provides.
We are currently entering a particularly exciting period of growth and expansion as we fundraise for a number of major projects.
We are looking for a dynamic and enthusiastic self-starter to support the Head of PR, Communications and Celebrity Engagement and work collaboratively with Charity and hospital colleagues to highlight the impact our supporters and fundraisers make to cancer patients.
You will be equally at home pitching a story to a national journalist, working with a senior consultant or scientist to draft a new Charity funded research story, briefing photographers, liaising with fundraisers to tell their story, writing newsletter and marketing copy or devising a communications plan.
The Charity team is responsible for raising millions of pounds each year to ensure Christie patients receive the very best care and treatment. This includes everything from access to world first clinical trials and receiving radiotherapy in state-of-the-art treatment centres, to young adults being cared for in a bespoke age-appropriate centre and being able to offer patients anxiety reducing complementary therapy, or even creative sessions in our art room.
If you want to make a real difference to cancer patients and are ready to rise to the challenge of working for one of the most successful charities in the North-West, then this could be the role for you.
We will be reviewing applications and arranging interviews on a rolling basis, so early submission is encouraged.
The client requests no contact from agencies or media sales.
We are looking for an enthusiastic Volunteer Officer to plan and deliver our new Volunteer Strategy. This role involves leading and coordinating our voluntary role holders across different roles and integrating with the wider work of the team.
We want someone who is passionate about volunteers and who will rise to the challenge set by our Chief Officer for all our work to have a clear fingerprint of volunteers demonstrated. The post holder will have latitude to develop a modern, exciting, and vibrant volunteer base and will work across the team to embed new roles which enable us to spread our reach further into the District.
We work closely with the local health and social care system to use our volunteer’s skills and lived experience to support Patient Safety Walkabouts and Patient Led Assessments of Care Environments (PLACE). We also have the power and responsibility to deliver Enter and View visits as a Local Healthwatch organisation. The Volunteer Officer will coordinate and oversee these activities to continue our successful partnership approach.
We are committed to providing social value to the local population, we do this through our opportunities which include volunteering, collaborating, work experience, and placements.
Purpose
To have responsibility for the Healthwatch Wakefield Volunteer Strategy. To lead on recruitment, co-ordination, and support of a diverse range of volunteers for Healthwatch Wakefield; including a ‘buddy’ system to help overcome barriers to involvement. To facilitate and maintain an activity and training record, and report on volunteer contributions on a regular basis. To remain up to date with relevant legislation and good practice in volunteering. To review and develop the roles available for volunteers in Healthwatch, working collaboratively with volunteers, contributors and the team.
Main duties and responsibilities
- Promote and deliver volunteering opportunities
- Recruit, induct, support and develop volunteers
- Lead Enter and View visit planning and coordinate patient safety activities
- Provide leadership for the volunteer programme
Person specification
Essential Criteria:
- Experience of supporting and supervising volunteers, including recruitment and induction.
- Experience of producing systems and procedures for volunteers.
- Experience of delivering and co-ordinating training.
- Experience of working with a diverse range of communities.
- Experience of working in partnership and with external stakeholders.
- Experience of report writing.
- Communication, facilitating, and liaison skills.
- Ability to confidently build and maintain professional relationships.
- Ability to work as part of a team and to collaborate with others.
- Good planning and organisational skills, including ability to prioritise workload.
- Able to work effectively under pressure and to deadlines.
- Able to produce succinct, articulate and well-formatted documents and reports.
- Ability to understand, interpret and analyse basic financial information
- Competence in IT skills and internet use.
Desirable Criteria:
- Experience of developing a volunteer policy.
- Experience of working with volunteers within a health or social care setting.
- Experience of managing a project budget.
- Knowledge of the third sector in Wakefield District and the environment within which it works.
- Knowledge of health and social care structures.
Your local health and social care champion
The client requests no contact from agencies or media sales.
We are seeking a Community Engagement Officer to provide vital administrative support to our policy & campaigns function and across the organisation, facilitating strong engagement with our community of dementia carers. The successful candidate will act as the first point of contact for enquiries around our carer engagement projects, and will assist with the coordination and administration of policy and campaign activities. You'll be joining us at an exciting time as we build on our successes and continue to grow our reach and impact to make a difference for dementia carers.
What we do at Dementia Carers Count
We support, advocate and campaign for dementia carers so that no-one feels isolated, invisible or alone.
Key responsibilities of the role
- Be the first point of contact for enquiries, managing incoming phone calls and generic inboxes for policy and campaigns, ensuring that enquiries are escalated efficiently and calls transferred to appropriate DCC team members.
- Record carer details and interactions on the database.
- Support the recruitment and ongoing management of the dementia carer community, including working across DCC teams to facilitate the promotion and ongoing coordination of a range of engagement opportunities.
- Assist in the planning, coordination, and delivery of campaigns and community engagement activities.
- Support communication with and management of the Carers’ Advisory Panel, including scheduling meetings, maintaining attendance records, and facilitating communication among members.
- Provide support for carer engagement, as required, to other teams in DCC.
We are looking for the following experience:
- Managing incoming enquiries via phone and email, with the ability to efficiently triage and escalate as needed.
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Using databases to record and manage personal information
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Coordinating appointments, meetings, or events.
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Using email or community and campaigns engagement clients like MailChimp, Campaign Monitor or Engaging Networks.
Full job description and person specification can be found in our recruitment pack via our website.
This role is remote, with periodic days in London required.
The client requests no contact from agencies or media sales.
Action Duchenne supports, empower and equip every Duchenne Muscular Dystrophy community in their journey from diagnosis and beyond.
Duchenne Muscular Dystrophy is a muscle wasting condition for which there is no cure, but we journey alongside communities to empower them and provide information for them to make informed decisions. Action Duchenne has a team of passionate, supportive staff who are keen to do more for families living with Duchenne and has several staff with direct lived experience.
At Action Duchenne, values are more than words—they shape how we work and interact every day. For this role, we are looking for a team member who can reflect our values:
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Supportive – Actively assist colleagues and stakeholders, fostering a culture of collaboration and reliability.
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Empathetic – Approach challenges with understanding, considering the impact on people internally and externally.
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Respectful – Ensure all communications and decisions uphold dignity and fairness, especially when handling sensitive matters.
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Community Focused – Make decisions that strengthen our community, ensuring all activity supports inclusive engagement and shared purpose.
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Inclusive – Promote accessibility and equity, ensuring everyone feels valued and heard.
Main Purpose of the Role:
To provide proactive, emotional, and practical support to families and individuals affected by Duchenne Muscular Dystrophy (DMD) across England. The role will focus on early engagement, wellbeing assessment, community building, and delivery of workshops and events, while ensuring accurate tracking of support outcomes and data.
The successful candidate will also lead on support for our End of Life and Bereavement projects, working collaboratively with healthcare professionals, palliative care teams, and hospices to ensure families have access to appropriate services and resources.
Specific Tasks:
1. Proactive Family Support
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Initiate contact with newly registered families within agreed timeframes (email within 3 working days, call within 7–10 working days)
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Contact to be made to all registered Action Duchenne members, knows to us in the Regions you will be covering, to ensure the current support offer is clear
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Provide ongoing support tailored to individual needs, including emotional wellbeing, physical health, housing, financial security, self-esteem and respect, decision-making, social engagement, quality of life, and access to care
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Use the Action Duchenne Assessment Form and Action Plan to identify and respond to areas of concern
2. Advanced and End-of-Life Care Support
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Provide compassionate, practical, and emotional support to children, young people, and adults living with Duchenne, and their families, as they navigate advanced stages of the condition and end-of-life care.
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Work collaboratively with healthcare professionals, palliative care teams, and hospices to ensure families have access to appropriate services and resources.
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Develop and share guidance, resources, and workshops to help families prepare for and manage advanced care planning, symptom management, and emotional wellbeing.
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Support families in understanding available options for care settings (home, hospice, hospital) and facilitate informed decision-making.
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Ensure continuity of care and communication between multidisciplinary teams, while respecting family preferences and cultural considerations.
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Offer signposting to bereavement support and follow-up services for families after loss.
3. Wellbeing Tracking and Outcome Measurement
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Administer wellbeing questionnaires and record scores across key domains (e.g. physical health, emotional wellbeing, financial security)
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Collaborate with families to co-create action plans and track progress
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Ensure all data is entered into CRM (E-Tapestry or similar) within the allotted timeframe, i.e. immediately after or during the call.
4. Community Engagement and Event Delivery
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Organise and deliver regional meetups (minimum one per quarter)
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Facilitate support groups (virtual and in-person) for parents, young people, and extended family (minimum one per quarter)
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Support delivery of workshops and events aligned with programme schedule (e.g. music, life skills, employability)
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Actively participate in networking events to promote Action Duchenne within our communities, build relationships, and drive growth in membership by encouraging registration of families affected by Duchenne
5. Stakeholder Collaboration
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Liaise and develop relationships with external organisations including NHS care advisors and clinics, local authorities, counselling services, and other charities
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Represent Action Duchenne in across your regions and build relationships with local networks
6. Administration and Reporting
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Maintain accurate records of all interactions and support provided
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Contribute to quarterly reporting on activity delivery, capacity utilisation, and family impact
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Support development of CRM processes and service delivery improvements
7. Key Performance Indicators (KPIs):
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New contact acknowledgement email: within 3 working days
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New contact follow-up call: within 7–10 working days
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Families contacted per week: 12–15 hours of direct contact
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Regional meetups: 1 per quarter
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Support groups delivered: 9–12 per year
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CRM data entry: within the same day of interaction
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Family outcomes tracked: via wellbeing questionnaire and action plan
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Number of families receiving end-of-life care guidance or resources per quarter.
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Advance Care Planning: Percentage of families supported with advance care planning discussions within 4 weeks of request.
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Palliative Care Signposting: Number of referrals/signposts made to palliative care or hospice services.
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Resource Development: Number of end-of-life care resources (guides, workshops, webinars) created and shared annually.
NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets.
Please find the job specification, including required skills and qualifications below.
Application deadline: 22nd December at 9am GMT.
Action Duchenne is a charity providing holistic support to those living with Duchenne Muscular Dystrophy (Duchenne) and their families.



The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
We are seeking an experienced and dynamic Fundraising Officer to join the fundraising team at the Batten Disease Family Association CIO (BDFA).
The BDFA, founded in 1998 is the only patient organisation in the UK for families affected by Batten disease, a rare and terminal neurodegenerative condition that affects children and young adults. The BDFA offers informed guidance and support to families and the professionals who work with them, as well as actively raising awareness, and promoting research into the management of Batten disease to improve patient care pathways and ultimately find a cure.
This is an exciting time to join the charity, which has grown to offer additional support services for families affected by Batten disease and to implementing a long-term strategy to develop its advocacy, education and research capabilities. Come and join our supportive team as we continue to build and develop the organisation and strengthen our financial resilience.
We’re looking for an individual who has some experience in fundraising, particularly leading on all aspects of community fundraising, developing and nurturing relationships with volunteer fundraising groups and individual supporters. The successful candidate will work under the guidance of our CEO to develop community fundraising maximising the funds raised by volunteer fundraisers and developing supporter engagement. The successful candidate will also work alongside our Trusts and Foundations Fundraising Officer to support our Trusts and Foundations income generation.
The Ideal Candidate for this role will have:
- Experience in all aspects of community fundraising including events, assisting fundraisers to develop imaginative fundraising ideas and inspiring new supporters to raise funds whilst maintaining relationships with existing supporters
- Experience in building and sustaining long-term relationships with fundraising groups and individual supporters
- Experience in managing effective and creative fundraising communications on social media and the website
- Ability to contribute to the overall Trusts and Foundations income stream, including proactively researching and identifying grant funding opportunities
- Ability to lead on creative fundraising campaigns around key events such as Batten disease awareness day and Christmas
This job requires a motivated individual who has a passion for all those within our Batten community and a strong desire to support the development and financial growth of the BDFA. The role is full time (35 hours per week) and is home based with occasional travel around the UK to meet donors and support fundraising events.
The BDFA recognises the positive value of diversity and is committed to creating a diverse and inclusive team. We encourage applications from all suitably qualified or experienced individuals, regardless of their race, gender, biological sex, disability, religion/belief, sexual orientation or age.
Salary £27k - £34k PA dependent on experience
Upload a CV and covering letter to apply
Apply by: Monday 15th December
Interviews for this role will take place on Monday 22nd December
At Hestia, we are guided by our core values and are dedicated to fostering an equitable, diverse, and inclusive organisation. Our mission is to empower individuals to rebuild their lives and achieve independence. Right now, we are looking for a Community Outreach Officer to play a pivotal role in our Connect to Work Service in Merton.
Sounds great, what will I be doing?
The Community Outreach Officer is a key member of the Connect to Work team in Merton, responsible for borough-based engagement, visibility, and collaboration. This is a community facing role that requires regular travel across the Merton borough, and occasionally wider South London, to establish new
partnerships, meet partners, attend events, and support service integration.
The postholder will build strong and trusted relationships with local stakeholders, referral partners, and community organisations to identify eligible residents and connect them to the programme. Working closely with partners across South London, including subcontractors and Local Authorities, the officer ensures that Twining-Hestia's Connect to Work offer is fully integrated with existing pathways and support services, helping create a cohesive, person-centred, and impactful employability
What do I need to bring with me?
You'll need to be able to demonstrate the core skills this role requires as well as match our values and mission. You don't have to tick all the boxes right away; the important thing is that you're willing to learn. We also value lived experience of the areas we support, so if you feel comfortable, please do mention this on your application.
Here's what the team will be looking for
You have proven experience working to multiple contractual targets and performance measures within fast-paced employment or programme environments, effectively managing competing priorities. You understand the importance of service integration within employability programmes and its impact on wider resident outcomes.
You bring strong stakeholder management skills, confident in presenting to and engaging a range of partners. You are an excellent verbal and written communicator, able to tailor your message to inform, motivate, and inspire diverse audiences.
Highly organised, you can manage busy workloads under pressure while maintaining contractual compliance and GDPR standards. You possess strong digital skills, with accurate data handling and proficient use of Microsoft Office and online communication tools. You are also willing to travel across the borough and wider South London area when required.
When will I be working?
You will be working Monday to Friday 09:00 to 17:00
Interview Steps
We keep our interview process simple, so you know exactly what to expect.
- Shortlisting call: We have a team of dedicated recruitment specialists who will speak to you about your experience, motivations and values. They will also tell you about all the great work we do!
- Face to face interview: Now you will have face to face interview with the hiring manager. Our interviews are value and competency based.
Don't be alarmed if there are other stages in the process, it's all part of the plan for some of our roles.
Our commitment to Equality, Diversity, and Inclusion
Our services users come from all walks of life and so do we. We hire great people from a wide variety of backgrounds because it makes us stronger. We are committed to creating and maintaining a diverse and inclusive workforce and value the skills, abilities, talent and experiences, different people and communities bring to our organisation.
We are a disability confident employer
Hestia is proud to be a disability confident employer, dedicated to the employment and career development of individuals with disabilities. We offer a guaranteed interview scheme for all applicants with disabilities who meet the minimum criteria for the role they have applied for. We also provide reasonable adjustments during the selection and interview process, and throughout your employment with us.
Safeguarding Statement
Hestia is committed to safeguarding and promoting the welfare of adults, children and young people who are potentially at risk, and we therefore expect all staff and volunteers to do the same. We require all staff to undertake internal and external safeguarding training throughout their employment with Hestia.
Important Information for Candidates
If your application is successful, please be aware that you will be required to undergo pre-employment checks before a formal offer of employment can be confirmed.
We reserve the right to close this job advert early should we receive a high volume of applications or if the position is filled before the closing date. We encourage interested candidates to apply as soon as possible to ensure their application is considered.
We deliver services across London as well as campaign and advocate nationally on the issues that affect the people we work with.



The client requests no contact from agencies or media sales.
This is a brand-new role with big potential. We’re looking for an experienced community fundraiser who’s excited to build something meaningful for Possability People.
You’ll lead local community and corporate fundraising, spark supporter engagement, and drive income through events, partnerships, and donor initiatives. You’ll also coordinate trust and foundation applications, support individual giving, and play a part in major donor work.
Working closely with teams across the charity, you’ll help shape fundraising that truly reflects our values and fuels our future growth.
Why we’re recruiting
We’re creating our first dedicated Fundraising Officer role to boost community fundraising, grow local partnerships, and coordinate income from trusts, foundations, individual donors, and corporate supporters. You’ll be the go-to person for bids, working with project leads and the CEO to spot opportunities and move applications forward.
With strong local relationships and a respected reputation already in place, we’re ready for someone who can turn that potential into a steady, sustainable pipeline of support. This is a hands-on role with real autonomy, perfect for a fundraiser who enjoys building structure, nurturing supporters, and driving results while helping shape the charity’s wider fundraising direction.
Day-to-Day Overview
You’ll spend your time out and about in the community, planning and running fundraising events like fun runs, afternoon teas, and seasonal campaigns, while being the face of Possability People. You’ll also act as the central point for coordinating bids and grant applications, working closely with Project Leads and the CEO to ensure opportunities are identified, tracked, and progressed. Alongside this, you’ll manage local corporate partnerships and sponsorships, building relationships that support our events and wider fundraising activity. This is a hands-on, mid-level role where your experience and initiative will shape how our fundraising operates and grow our income locally.
Why work for us?
Working for Possability People means being part of something bigger than just a job. You’ll help improve the lives of disabled people while enjoying a supportive, inclusive workplace that values your wellbeing and development. We offer generous holidays, flexible working, a pension scheme, and excellent learning opportunities. You’ll be supported through regular supervision, wellbeing initiatives, and access to free counselling and mental health support. As a Disability Confident employer with strong quality standards and a genuine commitment to inclusion, we’re proud to create a place where everyone can thrive, feel valued, and make a real difference every day.
Salary: £35,000 (pro-rata: £21,000 for 21 hours, £28,000 for 28 hours)
Department:Core
Line Managed by: Chief Executive Officer
Holidays: 28 days plus Bank Holidays (pro rata for part time staff: 21 hrs = 17 days, to 28 hrs = 22.5 days)
Working Hours: 21 hrs (0.6 FTE) to 28 hrs per week (0.8 FTE) (to be agreed)
We’re open to the role being between 21 and 28 hours a week because finding the right person matters most. We’re very happy to chat about how those hours could work for you while still meeting the needs of the role. Whether you’d prefer to spread your hours across five days, start a bit later, or work longer days over fewer days, we’re open to a range of options. The role includes attending events and travelling around the local area, and there are also opportunities to work from home for part of the week.
About Possability People
Possability People is a pan-impairment disability charity based in Brighton. We work with people with a number of health conditions, including mental health and neurodivergent conditions, as well as with older people.
Enabling and empowering people with health conditions to live the life they choose.



The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
This is a unique opportunity to take ownership of a creative, varied and meaningful communications portfolio within a small, supportive charity. You’ll lead on digital content, social media, and storytelling — working closely with NHS, local authority, and community partners to ensure people’s experiences are heard and acted upon. If you’re looking for a role where your work has real purpose, where you can grow your skills and where new ideas are genuinely welcomed, we’d love to hear from you.
The client requests no contact from agencies or media sales.






