Action Duchenne

Who we are

Action Duchenne exists to support, empower and equip every DMD community in their journey from diagnosis and beyond.

Duchenne Muscular Dystrophy is a muscle wasting condition for which there is no cure, but we journey alongside communities to empower them and provide information for them to make informed decisions. Action Duchenne has a team of passionate, supportive staff who are keen to do more for families living with Duchenne, and has a number of staff with direct lived experience.

Our culture and values

Our values – Supportive, Empathetic, Respectful, Community Focused, and Inclusive – are demonstrated in every interaction, decision, and process.

We expect our values—Supportive, Empathetic, Respectful, Community Focused, and Inclusive—to be demonstrated in every interaction, decision, and process, creating a space where people feel valued, heard, and connected.

Our values in action look like:

• Supportive – Foster a culture of collaboration and reliability.

• Empathetic – Approach challenges with understanding, considering our impact.

• Respectful – Ensure all communications and decisions uphold dignity and fairness, especially when handling sensitive matters.

• Community Focused – Make decisions that strengthen our community, ensuring all activity supports inclusive engagement and shared purpose.

• Inclusive – Promote accessibility and equity, ensuring everyone feels valued and heard.

At Action Duchenne, values are more than words—they shape how we work and interact every day.

Equality, diversity and inclusion policy

Action Duchenne is committed to having a team that is made up of diverse skills and experiences. We encourage applicants from all sectors of the community and are especially keen to encourage candidates with relevant lived experiences and those from under-represented groups to apply.