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Top job
Association for Multiple Endocrine Neoplasia Disorders (AMEND), Tonbridge, Kent (Hybrid)
£50,000 - £55,000 per year
CEO Needed for Small but Mighty Rare Disease Charity
Posted 4 days ago Apply Now
Top job
School for Social Entrepreneurs, Remote
£51,482 per year pro-rata + 5% pension
Seeking an experienced senior finance business partner to lead budgeting and help colleagues make confident, well-informed decisions.
Posted 3 days ago
Closing in 4 days
Mid and North East Essex Mind, Colchester, Essex (Hybrid)
£26,550 per year (pro rata for part time)
Posted 2 weeks ago

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Closing in 2 days
Stroke Association, Hereford and Worcester (Hybrid)
Circa £22,600 per annum (FTE circa £28,300 per annum)
Posted 3 weeks ago
Not For Profit People, Greater London (Hybrid)
£56,000–£65,000 (dependent on experience)
Posted 1 week ago
Closing in 5 days
Government Property Agency, Birmingham (Hybrid)
£36k - 41k per year
Posted 3 weeks ago Apply Now
Closing in 3 days
The Scout Association, Lancing (On-site)
£31716.00-£31716.00 per year
Posted 2 weeks ago
Closing in 3 days
Prospectus, London (Hybrid)
£40,000 per annum
Posted 3 weeks ago
Closing in 3 days
IRIS Recruitment, Greater Manchester (On-site)
£65,000 per year
Posted 3 weeks ago
Closing in 2 days
Rise:61, Salisbury, Wiltshire (Hybrid)
Salary: £36,000 – £40,000 FTE
Head of Finance and Operations
Posted 1 week ago
Closing in 2 days
Stroke Association, Lincolnshire (On-site)
Circa £17,000 per annum (FTE circa £28,300 per annum)
Posted 3 weeks ago
Closing in 3 days
The Royal College of Radiologists, Multiple Locations (Hybrid)
£45,904 per year
Posted 5 days ago
Page 63 of 84
Tonbridge, Kent (Hybrid)
£50,000 - £55,000 per year
Full-time
Permanent

Using Anonymous Recruitment

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Job description

This is an exciting opportunity for a new Chief Executive Officer to lead our well-respected rare disease patient organisation through the next phase of growth and impact, in particular focussing on financial sustainability and influencing health policy for these rare diseases.These sit alongside the other grass-roots duties of a small charity CEO, including working with our Medical Advisory Team to develop new and maintain existing patient education resources, and overseeing our support services including volunteers and a professional psychological counselling service. Reporting to and working with the Board of Trustees, the CEO will be responsible for delivering our 2027-2030 Strategic Plan, ensuring robust governance, and driving forward our mission to improve the lives of people affected by rare diseases.The CEO manages the part-time Executive Administrator and works with up to 30 current volunteers (patients, carers, and health professionals) to deliver services with impact.This role includes occasional weekend work, as well as approximately 15 days travel (national and international) per year to represent and advocate for the charities’ beneficiaries. 

Application resources
Organisation
Association for Multiple Endocrine Neoplasia Disorders (AMEND) View profile Organisation type Registered Charity Company size 1 - 5

The object of the CIO is to relieve people who suffer from Multiple Endocrine Neoplasia (M.E.N.) of all types, their families, friends and carers

Edzard session.jpggroup photo.jpgENU2022.jpgBES 2022 Jo Talking.jpg
Posted on: 06 July 2026
Closing date: 05 August 2026 at 23:30
Tags: Project Management, Advocacy, Cancer, Health / Medical, Strategy, Sustainability, Wellbeing

The client requests no contact from agencies or media sales.