Chair of Trustees

PMRGCAuk is an ambitious, patient-led charity that achieves a great deal with very limited resources. We are growing and this is an exciting time to be involved. The new Chair will play a leading role in the charity’s future development. 

What will you be doing?

The role of the Chair is to provide leadership and direction to the board of Trustees.

The Chair’s aim is to enable the board to fulfil their responsibilities for the overall governance and strategic direction of the organisation.

The Chair will ensure that the organisation complies with its governing document, charity law, company law and any other relevant legislation or regulations and to make sure that the organisation pursues its objects as defined in its governing document.

The Chair's role is also to work in partnership with the Director and support the employees, helping them achieve the aims of the organisation; and to optimise the relationship between the board of Trustees and staff.

It would be an advantage if the Chair was able to commit to a three-year term.

This position is not remunerated but reasonable out of pocket expenses incurred fulfilling the duties of the role are reimbursed.

Main Responsibilities:

• Providing leadership for the board of trustees in their role of setting the strategy and policy of the organisation.
• Chairing and facilitating the board meetings.
• Liaising regularly with the Director and Treasurer to maintain a clear grasp of the charity’s financial position and to ensure full and timely financial transparency and information disclosure to the Board.
• Representing the organisation at appropriate events, meetings or functions.
• Acting as a spokesperson for the organisation where appropriate.
• Leading the Board in fostering relations with potential partners/funders/donors.
• Consulting with the Director on matters of strategy, governance, finance and HR.
• With the Director, raising funds for the charity.
• Maintaining careful oversight of any risk to reputation and/or financial standing of the organisation.
• With the Director, maintaining oversight of the organisation’s work and financial performance.
• Reviewing and appraising the performance of the Director.
• Attending and being a member of other working groups when appropriate.

What are we looking for?

ESSENTIAL

Knowledge

• Knowledge of the UK voluntary sector
• Understanding of the legal responsibilities and liabilities of a trustee

Skills

• Leadership ability
• Strategic vision
• Ability to take decisions for the good of the organisation
• Ability to communicate sensitively and effectively with a wide range of people, verbally and in writing
• High level of competence in IT applications including MS Office
• Ability to work collaboratively with colleagues in different locations

Personal qualities

• Passionate about improving outcomes for people with PMR and GCA
• Willingness to devote the necessary time and effort to their duties as Chair
• Good judgement and integrity
• Tact and diplomacy
• Willingness to speak one’s mind and listen to the views of others
• Commitment to equal opportunities
• Ability to protect confidentiality and awareness of data protection issues
• Enjoyment of working with people and enabling them to develop their skills

DESIRABLE

​Experience

• Experience of being a trustee or having another governance role
• Experience of charity fundraising
• Experience of line management

Knowledge

• Knowledge of health and social issues affecting older people

Skills

• Ability to understand budgets and financial projections

What difference will you make?

The Chair of Trustees provides leadership alongside the paid Director, and is therefore one of the most influential and important roles in the charity. We are looking for a Chair who can contribute strategic vision as we move to the next level in terms of impact, professionalism and size.

Polymyalgia Rheumatica (PMR) and Giant Cell Arteritis (GCA) are linked rheumatic conditions that are little known by the public and have been poorly understood in medicine, although scientific interest in them is now increasing. They can strike separately, but often together and usually affect older people. They cause severe pain and discomfort and the standard treatment is long-term use of corticosteroids. Undiagnosed and untreated GCA can lead to catastrophic sight loss, although this is easily prevented if caught in time.

Polymyalgia Rheumatica & Giant Cell Arteritis UK (PMRGCAuk) is a registered charity established to meet the needs of people with these debilitating conditions, their friends, families and helping professionals.

What we offer

We offer information and support at all stages – from diagnosis through to recovery. We provide information packs, a helpline, newsletters, support groups around the country, and a web forum where you can share your experiences and learn from other people with PMR and GCA.

Above all, we offer hope!