Chairperson

Empower change: Join BBS UK as Chairperson and make a lasting impact.

Applications close at 9 a.m. Tuesday 6th August 2024.

Location: Remote/UK

About BBS UK

Bardet-Biedl syndrome (BBS) is a rare, complex genetic disorder that causes blindness, learning disabilities, and obesity, along with other symptoms. BBS UK is the only UK charity dedicated to helping individuals with BBS and their loved ones. Our aim is to offer wraparound support to those impacted by BBS, to empower them to live the lives they choose, as valued members of society.

BBS UK provides advocacy services, NHS clinic support, up-to-date publications, and events that connect our community members and help them to navigate living with Bardet-Biedl syndrome. Through these projects, we aim to ensure that those who seek our help are supported, connected, and empowered to achieve the best possible outcome.

We have a team of eight dedicated part-time staff members who facilitate the delivery of these services, and volunteers who assist with our events. We support approximately 550 individuals with BBS each year.

It’s an exciting time to join our work! We aim to expand our team, improve our communication channels, and increase our overarching community benefit, all within the next few years.

About the role

BBS UK are looking for a new Chairperson to contribute to the development and success of our charity.

We are looking for an experienced, professional and compassionate Chairperson to lead our Board of Trustees, many of whom have lived experience of BBS.

You will support and lead on our strategic planning, deliver on all governance requirements, and be a highly visible member of our BBS UK community.

Who we are looking for

We’re looking for someone with:

·         Strong leadership skills

·         Excellent communication skills who can liaise with board members, staff, service users, medical professionals and other stakeholders

·         Experience in charity governance, as a Chair or Vice-Chair

·         Passion for making a difference, with a particular interest in empowering persons with disabilities

·         A proven track record in developing strategic initiatives and steering an organisation forward, ensuring continued growth and success

·         Integrity, dedicated to abiding by our charity’s ethos and ethical principles

As a BBS UK Trustee, you will have:

·         Induction, training, and reimbursable expenses

·         Opportunities to make strategic decisions and develop new skills

·         Occasions to network with likeminded organisations and professionals

·         Influence to shape innovative projects

·         Capability to make a real difference for the well-being of our BBS community

Please click 'Apply via website’ to be redirected to the Peridot Partners website, where you can find full details of the candidate profile and register your interest to apply.

Applications for this role close at 9 a.m. Tuesday 6th August 2024.