Trustee

2025 is a pivotal time for our small, family centred Charity as we move into our 22nd year. This year our Board will be defining our new mission and preparing for implementation. We're seeking new trustees to join us to contribute to our new mission and define the Charity's direction as we conclude our first mission in late 2025.

The Muscle Help Foundation (MHF) is a small multi-award winning, family-centred charity, delivering both in-person and virtual interventions and experiences in the UK - these moments-in-time are called Muscle Dreams, designed specifically for children & young people (8-28yrs) with the muscle wasting disease, Muscular Dystrophy (MD).

MHF’s impact is felt by beneficiaries and their families across the UK – from improved confidence, greater self-esteem, and an increased sense of hopefulness to a powerful shared identity that connects families, giving a platform to share knowledge, memories and establish lasting friendships.

DETAILED DESCRIPTION

We are looking for Trustees who have a passion to take the charity forward, to grow impact, to leave a personal legacy and to feel the sense of personal fulfilment from the time they volunteer.

AS A TRUSTEE, YOU WILL

• Have an opportunity to help improve the lives of children, young people and their families
• Contribute to the governance of our small, well respected, national charity
• Have strategic responsibility for a specific skill area
• Act as an advocate/champion in promoting the charity's work across your network
• Receive induction, support and training
• Bring your lived experience, in using and further developing your skills for the benefit of others
• Be a part of the team that will help the charity achieve its overarching 657 Muscle Dream mission

REQUIREMENTS + KEY CRITERIA

Commitment to the charity’s values, bags of enthusiasm, an understanding and passion for our work, great comms skills and a real desire to want to make a difference to the lives of our vulnerable community. You may have experience of living with muscular dystrophy, other disabilities or life limiting conditions, but this is not essential.

MAIN BOARD MEETINGS + EXPENSES

Trustee Board meetings take place virtually. They are usually 2hrs. Over and above this time commitment, trustees on average, depending on their role, may give additional time in being directly involved in occasional ad projects – MHF Trustees ‘own’ a ‘bucket’, in other words, an area of responsibility like HR, Fundraising, Safeguarding, Marketing, Finance, Digital, Risk or Campaign Management that allows an individual to bring their skills, experience and talents to the charity. Reasonable expenses will be covered.

WHAT ARE WE LOOKING FOR – PERSON SPECIFICATION

• Absolute belief in the cause
• Desire to learn the trustee role, previous governance expertise is an advantage
• Excellent communicators with great listening, responding and interpersonal skills.
• Ability to both empower and challenge supportively.
• Strong commitment to equality, and an understanding of disability and how for example this may impact on the quality of life and life choices for disabled people and their families.
• Commitment and time to dedicate to the role and responsibilities of being a Trustee.
• Commitment to the charity’s vision, mission and values.
• Strong desire to make a difference to the lives of our vulnerable beneficiary community.
• Understanding of the context/environment in which the charity works - it is estimated that some 96% of MHF's beneficiaries are those with Duchenne Muscular Dystrophy (DMD), the most severe variant of muscular dystrophy - it is life limiting.
• Understanding the importance of ensuring public confidence and trust in the charity.
• Collaborative working (part of a team), using sound independent judgement and collective decision making.
• The capacity to grasp issues outside ones personal experience.
• The ability to think creatively both in terms of high level strategy and development.
• Commitment to equality and diversity with other trustees, staff, beneficiaries and other stakeholders.

WHAT DIFFERENCE WILL YOU MAKE?

To provide strategic leadership in line with our values and goals. Trustees will use their knowledge, skills, passion and experience to ensure that the charity achieves its objectives – as a Trustee, you will represent the interests of all stakeholders and act as an ambassador. 

AN AMAZING OPPORTUNITY TO BRING YOUR UNIQUE SELF

As an MHF Trustee, this is an exciting opportunity to bring your unique skill set to help the strategic progression of the charity in reaching its overarching goal to deliver 657 Muscle Dream interventions, that's one experience for every muscle in the human body, cherished moments-in-time that truly changes lives and give hope, and beyond as we reach this goal.

IN RETURN FOR YOUR COMMITMENT

• You will have an opportunity to help improve the lives of children, young people and their families
• Be part of a team all supporting the charity and rowing in the same direction
• Contribute to the governance of a national charity, that's worked tirelessly over the past 20 years
• Have your voice heard and listened to
• Attend events, meet beneficiaries & families and directly witness the impact of the charity’s work
• Have strategic responsibility for a skill area such as: HR, Fundraising, Corporate Partnerships etc
• Network with other like-minded individuals with common values
• Receive induction, support and training
• And much more…

INCLUSION - PROUD OF OUR BOARD DIVERSITY

Our greatest strength as a board and as an charity is in our community's diversity. We are particularly interested in hearing from applicants with diverse skills and experiences that reflect the diversity of our beneficiaries and welcome applications from first time Trustees.