Volunteer Bibliography Coordinator

Location: Remote 

Commitment: Part-time, flexible (estimated 3-5 hours per week) 

Reports to: Medical Liaison , Joy Mason

Duration: Ongoing 

About Mast Cell Action

Mast Cell Action provides support for people living with MCAS, unites the MCAS community and creates a cohesive voice; to lobby for awareness, universally available diagnosis and the best possible care for those affected.

Mast Cell Action currently has 4 trustees plus a small but dedicated support team and our Director who will work closely with the successful candidate to strengthen our communications function. This is an exciting time for the charity, with unprecedented growth and an expanding team giving the right candidate unending potential to prove themselves and to shape the role.

We are a close-knit group, our internal behaviours are to be smart, strategic and ambitious, fun, collaborative and empowered. We work in collaboration both internally and externally and support each other to be the best that we can be and make the biggest possible difference to people affected by MCAS. If this sounds like a team you would like to be part of we would love to hear from you!

Role Overview

As the Volunteer Bibliography Coordinator, you will be integral in maintaining an up-to-date and comprehensive bibliography of scientific and medical papers related to MCAS. This vital role supports our research initiatives, enabling both patients and healthcare professionals to access the latest and most relevant information. Your contributions will directly influence the work of our charity and the understanding of MCAS across the medical community.

Key Responsibilities

• Research & Update Bibliography: Regularly identify new medical papers, studies, and articles on Mast Cell Activation Syndrome and related conditions.
• Document Management: Organise and update the existing bibliography, ensuring correct citations and categorisation.
• Literature Reviews: Summarise key papers and highlight significant findings that inform MCAS research or patient care.
• Database Maintenance: Maintain a user-friendly bibliography accessible to internal staff, healthcare professionals, and other stakeholders.
• Website Updates: Ensure the bibliography section of our website reflects the latest research.
• Support Evidencing: Assist in providing relevant research papers to support the production of information within the charity.

Skills and Experience

• Research Skills: Experience in academic or medical research, with a knack for finding, evaluating, and organizing scientific literature.
• Attention to Detail: Excellent organisational skills and meticulous attention to detail when managing citations.
• Familiarity with Medical Literature: Knowledge of research databases like PubMed or Google Scholar is a plus.
• Communication: Strong written communication skills for summarising findings.
• Self-Motivated: Able to work independently and efficiently with minimal supervision.
• Commitment to the Cause: A passion for medical research, healthcare, or Mast Cell Activation Syndrome is beneficial, though not required.

Benefits

• Contribute to meaningful research that can improve the lives of individuals with MCAS.
• Gain experience in a charitable Charity dedicated to medical research and advocacy.
• Flexible working hours and the opportunity to work remotely.

Mast Cell Action is committed to creating a diverse environment and is proud to be an equal opportunity employer. All qualified applicants will receive consideration for this volunteer position without regard to race, colour, religion, gender, gender identity or expression, sexual orientation, national origin, genetics, disability, or age.