Trustee Treasurer

Wolfram Syndrome UK (WSUK)

WSUK is a small national charity based in West Sussex that supports children, young people and adults affected by Wolfram Syndrome (WS) and their parents/wider families. WS is an ultra-rare genetic disorder which causes a complex range of symptoms, including diabetes mellitus, vision problems, renal problems, deafness, and neurological problems. WSUK provides current, accurate and family-friendly information, raises awareness of WS among health professionals and the public, and helps to fund WS research. 

WSUK Treasurer

The WSUK Board is seeking to recruit a Treasurer to complement and extend the range of skills and experience of its current members. This voluntary role will maintain an overview of WSUK’s activities to ensure its financial viability and that proper financial procedures are maintained. Through active participation in quarterly Board meetings (on-line), this role will help WSUK to achieve its ambitions to continue to develop the activities and services it delivers to the WS community.

Skills and experience

WSUK is seeking a treasurer who is committed and motivated to help lead this small, but growing charity. Some financial experience and skills are needed, along with good independent judgement, an ability to communicate clearly and a team-oriented approach. You will become an important part of a dynamic charity, and you will be able to see how your involvement, skills and experience, directly benefit the people living with this challenging, ultra-rare condition.

The closing date for applications is Friday 13th September 2024..

Treasurer role description

Summary of the role:

The overall role of the Treasurer is to maintain an overview of the organisation’s affairs, ensure its financial viability and ensure that proper financial records and procedures are maintained.

Overall responsibilities:

The responsibilities of the Treasurer include:

·       Overseeing and approving budgets, accounts and financial statements.

·       Ensuring proper records are kept and effective financial procedures and controls are in place.

·       Regularly reporting the financial position at Board meetings (e.g. quarterly reports), drawing attention to important points in a coherent and easily understandable way.

·       Overseeing the production of an annual budget and proposing its adoption at the last meeting of the previous financial year.

·       Being assured that the financial resources of the organisation meet its present and future needs.

·       Keeping the Board informed about its financial duties and responsibilities.

·       Liaising with members of the WSUK team about financial matters.

·       Liaising at a Board level with external auditors on specific issues in the auditing process.

·       Guiding and advising fellow trustees to formally approve the annual report and audited accounts.

·       Contributing to the fundraising strategy of the organisation.

·       Appraising the financial viability of plans and proposals.

Responsible to: This role works closely with the Chair and Board of Trustees

 Experience and skills:

The treasurer should have the following qualities:

·       Financial experience. (e.g. as a Financial Director, Financial controller or qualified accountant).

·       Financial analytical and evaluation skills.

·       Good, independent judgement and strong leadership skills.

·       Ability to communicate clearly.

·       A team-oriented approach to problem solving and to management.

·       Understanding and acceptance of the legal duties, responsibilities and liabilities of trusteeship.

·       A willingness to devote the necessary time and effort and be available to staff for advice and enquiries on an ad hoc basis.

·       A commitment to Nolan’s seven principles of public life: selflessness, integrity, objectivity, accountability, openness, honesty and leadership.

This is a voluntary position although all reasonable expenses are paid (in line with the WSUK expenses policy).

This role will require a Disclosure and Barring Service (DBS) check.

Time commitment

·       The Board meets around 4 times per year, held virtually in the evening.

·       The AGM is typically held as a face-to-face meeting on a Saturday afternoon in / near Worthing, West Sussex.

·       Attendance at fundraising events and the Wolfram Syndrome annual conference is optional.

 The Applicant needs to reside in the UK.