Scientific and Patient Information Manager

·       Location: Home-based/Remote. Must be based in the UK, Germany, France or Spain

·       Travel required: 25 days / year (approx.)

Please, send your CV and cover letter at recruitment @ mpeurope. org.  Applications without a cover letter will be rejected.

As Scientific and Patient Information Manager, you will work in the Medical Education and Scientific Engagement team at Myeloma Patients Europe. Under the Department Head and MPE Leadership Team, you will oversee the following projects and activities:

European Myeloma and AL Amyloidosis Clinical Trial Navigator Management (Approximately 50%)

MPE has developed an online clinical trial search tool of European myeloma and AL amyloidosis clinical trials for patients and advocates (https:// navigator.mpeurope. org/en). This role will be responsible for the management, improvement, and promotion of this core MPE programme, including:

• Maintain up-to-date and accurate database of all industry and academic recruiting myeloma, AL amyloidosis, MGUS, and smouldering myeloma clinical trials in Europe
• Liaise with industry and academic clinical trial sponsors, clinical trial sites, and other stakeholders to maintain database up-to-date
• Liaise with web developers to manage the Navigator website, make enhancements, and fix technical issues 
• Oversee implementation of translated materials in multiple languages
• Elicit feedback from patients, family members, clinicians and other stakeholders to ensure continued improvement and enhancements
• Manage website news and content

Patient Education Management (Approximately 40%)

A key role of MPE is providing up-to-date, comprehensive, and patient friendly educational materials and tools for our members and the patient community, as well as communicating about advances in myeloma and AL amyloidosis. This role will be responsible for working across MPE to develop an educational plan and develop and deliver resources including:

• Perform efficient scientific watch (monitoring advancements in research and clinical development)
• In coordination with the Head of Medical Education and Scientific Engagement, as well as other department Heads (Patient Research, Access and Policy, Communication, Capacity Building and Advocacy), develop and prioritise a patient educational plan based on member and patient needs, scientific advances and cross-department projects
• Research, write, and develop patient education materials including factsheets, Q&As, webinars, infographics, news stories and social media content related to clinical and scientific updates
• Attending (in person or virtually) scientific congresses and developing conference and scientific meeting summaries, organising post-conference webinars for patients in collaboration with the Communication department
• Manage the execution of educational materials from conception to publication in coordination with Department Head, other MPE departments, and external stakeholders (key opinion leaders, proofreaders etc.)

Patient and member support (Approximately 5%)

• Answer medical and scientific inquiries from patients, carers and MPE members
• Seek information by liaising with appropriate stakeholders (industry, academia, MPE Medical Advisory Committee)
• Build good relationships with MPE’s members

Other 5%  -  staff meetings, annual events, support the rest of the team with clinical and scientific information.

About you

Essential

• A Bachelor’s or a Master’ s degree in a relevant scientific field
• Minimum of four years of relevant experience
• Demonstrable experience (and tested during the interview process) of writing and communicating scientific/complex information for lay audiences across different media
• Ability to understand, read and process complex scientific information (from clinical trials, scientific papers etc)
• Excellent capacity for analysis and communicating (verbally and in writing) clearly for a range of different audiences
• Demonstrable project management experience
• Excellent level of both written and spoken English
• Excellent communication and presentation skills
• Ability to work independently on assigned tasks and take appropriate initiatives
• Confidence in representing an organisation in meetings with external stakeholders at all levels
• Good networking abilities
• Rigorous work methods and high attention to detail
• Willingness to learn and curiosity
• Proficient in Microsoft Office (Word, Excel, PowerPoint, Outlook)

Desirable

• Knowledge of clinical development and how drugs are brought to market for patients
• Knowledge of myeloma and AL amyloidosis and/or immuno-oncology or other relevant field
• Experience of working in a non-profit organisation
• Experience of working in European patient advocacy and/or with patients and their families
• Advanced degree (PhD) in a relevant topic
• Experience with data management

We offer:

• A permanent position with flexible hours in a remote setting
• An exciting position in a European non-profit organisation in the emerging fields of patient-centered healthcare and patient advocacy, working together with key patient advocacy leaders across Europe
• An opportunity to integrate in a young, dynamic and multi-cultural team working from different European cities

About MPE

Myeloma Patients Europe (MPE) is a pan-European organisation representing 50+ myeloma and amyloidosis patient groups from over 30+ European countries. It is registered as an international non-profit organisation under Belgian Law. A Board mainly composed of patients and caregivers is elected by the membership to oversee the strategy and governance of the organisation. A team of 10+ staff members runs remotely the day to day operations, programmes and services within 4 divisions: Access and Policy, Medical Education and Scientific Engagement, Capacity Building and Advocacy, and Patient Evidence.

MPE is dedicated to improving the treatment, care and quality of life of patients with myeloma and AL Amyloidosis. To this end, the main goals of the organisation are:

• Collaborating on projects to the benefit of the myeloma community
• Exchanging information and best practice
• Developing existing patient groups and encouraging and facilitating the setting up of new groups
• Helping to shape appropriate health-related policies and initiatives on a European and national level
• Ensuring patients across Europe receive timely access to new treatment
• Stimulating and promoting patient-centred research and clinical trials
• Developing a strong evidence base for the needs and wants of patients and their role in research
• Providing information, educational and outreach programmes to member groups

Learn more about our programmes: https:// www. mpeurope. org/  

If you wish to apply, or have any questions, please send an email to recruitment @ mpeurope. org.

The deadline for applications is July 19th and all applications will be reviewed immediately afterwards. Our hiring team will schedule interviews with successful candidates to take place in the following weeks. We will be in touch following the review period regarding next steps.