Involvement Manager

People with lived experience of Motor Neurone Disease (MND) should have a real and meaningful voice in shaping the services and support available to them. We are looking for an experienced Involvement Manager to join our People, Culture and Inclusion Team. As an Involvement Manager, you will lead our efforts to ensure that those affected by MND influence decisions at every level of our organisation. By creating inclusive spaces and opportunities for involvement, you will help ensure their insights drive real change.

About Us:

Our vision is a world free from MND. Our mission is to improve care and support for people with MND, their families and carers. We fund and promote research that leads to new understanding and treatments and brings us closer to a cure for MND. The Association also campaigns and raises awareness so the needs of people with MND, and everyone who cares for them, are recognised, and addressed by wider society.

What We Offer:

• 28 days holiday, increasing to 33 days after 5 years, plus Bank Holidays.
• Access to UK Healthcare, including dental, eyecare, health screenings, and therapies.
• 24/7 GP access via phone and video.
• Life assurance and confidential counselling helplines.
• Salary sacrifice schemes (Cycle to Work, Buy/Sell Annual Leave).
• Access to Benefit Hub for discounts on everyday shopping.
• Enhanced pension scheme.
• Opportunities for training and personal development.
• Hybrid working.

Key Responsibilities:

As an Involvement Manager, you will provide strategic guidance, advice and leadership to embed involvement across the Association, working closely with people living with and affected by MND, staff, volunteers, and senior leaders.

• Develop and lead the Involvement Strategy, ensuring its integration across the organisation.
• Support and advise the Executive Leadership Team on best practices in involvement.
• Establish and lead involvement structures, enabling people with lived experience of MND to influence our work at all levels.
• Plan and deliver involvement activities that support key organisational initiatives.
• Provide guidance to staff on involving people with lived experience in their work.
• Work with the Learning and Development Team to train colleagues on involvement practices.
• Recruit and support people affected by MND to engage in forums, networks, and co-production groups.
• Ensure involvement activities are inclusive and accessible, identifying and addressing barriers to participation.
• Evaluate and communicate the impact of involvement initiatives.
• Collaborate with the Communications team to share the outcomes of involvement activities.

About You:

We are looking for an experienced Involvement Manager who is an engagement professional with a track record of leading involvement strategies and building strong relationships.

• Significant experience in engagement, involvement, or co-production, ideally in the charity or public sector.
• Expertise in advising on strategic and operational involvement.
• Strong experience in using digital and offline platforms to engage people.
• Ability to manage complex stakeholder relationships effectively.
• Experience in engaging minoritised communities and seldom-heard voices.
• Excellent facilitation, communication, and presentation skills.
• Strong organisational skills and ability to manage multiple priorities.
• Proactive and able to work under pressure within agreed timeframes.
• Confident using digital tools and platforms.

The full job description is available in the candidate pack.

We are committed to equality, diversity, and inclusivity. We work to remove barriers for everyone affected by MND, employees, volunteers, and stakeholders. As part of the Disability Confident Scheme, we guarantee interviews for disabled applicants who meet the role's requirements.

Hybrid Working and Flexibility: This role offers hybrid working, with the expectation to attend 2 days either in London or Northampton or supporting involvement activities. We are open to part-time applications or job shares - please indicate your preferred working arrangement in your application.

Interviews are due to take place week commencing 17 March.

How to apply:

Please submit a CV and supporting statement. Your supporting statement should be no longer than one side of A4 and demonstrate how you meet the following areas of the role.

• Extensive experience of delivering and leading strategic engagement, public and patient involvement, and/or co-production preferably within the public sector or charity sector.

• Extensive experience of providing advice on both strategic and operational engagement, involvement, and/or co-production.

• Experience of navigating complex stakeholder dynamics, and establishing effective working relationships with key individuals in the public and different organisations.

Important Information:

• We may close applications early if we receive a high volume, so early submissions are encouraged.
• If you require sponsorship for this role, please clearly indicate this in your application.
• Depending on the role, a DBS check may be required.
• If you need reasonable adjustments during the application or interview process, please contact us for support.
• We are happy to consider alternative application formats for those who find the online form challenging.

If you are committed to ensuring people's experiences help shape services and support. If this Involvement Manager opportunity is of interest, we would love to hear from you!