Trustees

Join our board as a trustee: help us navigate a path to a sustainable future

 Are you passionate about making a difference and equipped with the skills to guide a small charity through challenging times?

CMV Action are seeking proactive and committed trustees to join our board and support us in building a sustainable future.

About CMV Action

CMV Action is the only charity in the UK providing support and information to families affected by congenital cytomegalovirus (CMV). Congenital CMV is the most common viral infection that can affect babies before birth, with potential long-term health impacts such as hearing loss, developmental delays and vision loss. It can also cause miscarriage and stillbirth.

As many as 1 in 200 newborn babies are born with congenital CMV.  The majority of these will not have any symptoms.  However, around 1 in 1,000 born in the UK every year will have permanent disabilities as a result of congenital CMV – around 900 children every year.  As congenital CMV is a relatively unknown condition, it is a common misconception that it is rare.  It is in fact more common than Down’s syndrome, Toxoplasmosis, Spina Bifida or Cystic Fibrosis.

What we’re looking for

 We welcome application from everyone, and are particularly interested to hear from individuals who share our values and can bring the following skills and experience to our board:

• Proactive and strategic thinkers: You are purposeful about the directions you choose and willing to explore new paths to drive our charity towards self-chosen outcomes.
• Experience in finances, fundraising, marketing or strategy planning: Your expertise in charity finance, fundraising strategy, business development, or organisational change will help us build a sustainable future.
• Collaborative leaders: You excel in building strong relationships and working effectively with a diverse range of people and organisations.
• Evidence-based decision-makers: You value research and expert advice, using robust evidence to guide strategic decisions that achieve the best outcomes.
• Committed to accountability and transparency: You act with integrity, ensuring our charity operates openly and ethically.
• Advocates for inclusivity: You are dedicated to ensuring that our work is accessible and equitable for all, embracing the diverse needs of the community we serve.