Jobs in Aylesford
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Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Background and purpose
Metabolic Support UK (MSUK) is the umbrella patient organisation for people living with and affected by Inherited Metabolic Disorders (IMDs). We are a UK-based organisation with an international reach. There are approximately 40,000 people in the UK living with one of around 1,500 IMDs. Globally an estimated 71, 260 people are born with these conditions each year and 1.43 million people live with IMDs worldwide.
IMDs are rare, lifelong genetic disorders that affect people in a variety of ways including lifestyle, lifespan, diet and medication needs and symptoms. Sadly, some disorders can cause irreversible complications or death.
Since our inception in 1981, we have been at the forefront of rare disease community development; as a founding member of EURORDIS, expanding newborn screening, accelerating the development of IMD treatments, and empowering our community through the Living Well Movement.We enable our inherited metabolic disorder community to live well by offering individual support, building connections, and developing evidence-based insight.
The role
MSUK is looking to recruit a dynamic, ambitious and confident Fundraising Manager to work with the Chief Executive to develop and implement our income strategy. We are seeking a passionate and experienced Fundraising Manager to join our team. The successful candidate will be a core member of the team, developing and delivering the income stream for the charity with fundraising strategies that support MSUK’s mission. The role will report to the Chief Executive and will be responsible for driving forward all aspects of fundraising, including building corporate partnerships, individual giving, major donors, trusts and foundations, legacies and community. The MSUK team is a small but agile team and we expect the successful candidate to be a self-starter with a “can do” attitude, lots of energy and an ability to work autonomously. This is an exciting opportunity to join an exciting and progressive charity and to work with a fun, committed and established team.
Please note this is a remote working position but candidates will need to live permanently in the UK be able to travel to Manchester/Midlands for regular team meetings and across the UK at short notice for community events and meetings.
Main Responsibilities:
Fundraising Management and Development
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Work with the Chief Executive to develop and implement a balanced and realistic fundraising strategy, which builds on MSUK strengths and maximises income for the charity.
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Deliver an integrated fundraising programme, which includes corporate partnerships, individual giving, major donors, trusts and foundations, legacies, community and events.
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Ensure all fundraising activity is compliant with GDPR and relevant fundraising regulation and that all data is accurate and maintained efficiently.
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To maintain and develop the donor CRM platform (currently Nutshell) including building supporter journeys to enhance donor experiences and maximise income for the charity.
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Provide up to date funding reports and fundraising forecasts for the board
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Work with the team to ensure that all opportunities to promote MSUK and develop our fundraising and supporter engagement experiences are explored and maximised.
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With the CEO, manage all aspects of finance and reporting relating to fundraising, including annual budgets, monthly reporting and re-forecasting. Provide monthly reports and updates on all fundraising activities and income streams
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Work with the communications team, internal colleagues and external stakeholders to create impactful storytelling and supporter engagement opportunities to maximise revenue streams.
This job description is intended only as a guide to the range of duties involved. The post holder will need to be flexible and adaptable in order to respond to other duties that may be required from time to time and the changes and developments within the charity appropriate to the role.
Required experience and skills
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Proven experience working in a charity with responsibility for income
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Experience developing and managing a diverse fundraising portfolio with significant expertise in at least one of charitable trusts and grants, corporate partnerships and major donors
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Experience of managing fundraising budgets and ability to make informed forecasts
about income and return on investment
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Experience of effective time management, working to tight deadlines and prioritising conflicting priorities successfully
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Experience in managing successful cross-functional relationships, internally and externally
Skills & Attributes
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Excellent written and oral communications skills with the ability to organise and present information clearly and adapt communication to a variety of audiences
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Excellent organisational abilities with good attention to detail, including the ability to manage a high-volume workload and conflicting priorities
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Confident use of IT – including Teams, Microsoft Word, Excel, PowerPoint, Outlook, CRM Databases
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A salesperson who can represent our charity and tell the stories of our community with confidence and clarity
Other Requirements
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Excellent team player also able to work individually and remotely, with the ability to build and maintain positive, collaborative and trusting relationships
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Belief in and commitment to MSUK mission and values
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Willingness to work flexibly, travel within the UK and internationally and to undertake some evening/weekend work
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Eligibility to work in the UK
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
At Better Story, we are dedicated to raising funds and shining a light on organisations that are making a real impact in the world. From those who provide vital support to refugees, to those who empower individuals to transform their lives, and those who are driving positive change in their local communities, we stand behind causes that truly matter.
An essential part of our sustained growth is the recruitment of a Trusts and Foundations Fundraising Consultant. Could that be you?
As a Trusts and Foundations Fundraising Consultant, you will play a crucial role in serving our clients by:
- Understanding their work in detail and collecting the necessary information to write compelling cases for support and applications.
- Leading communications with the clients you support.
- Researching suitable trust funds and foundations
- Creating a strategic plan for submitting applications.
- Writing inspiring applications that get results and make a real difference to the organisations we support.
Please see the full job description that is attached.
Further Details
- Full Time = 35hrs a week
- Salary: £26,250 (rising to £27,500 in April '25) + Pension contribution + home working allowance + IT equipment.
- Location: Fully remote. With optional meetings in Bristol, UK
- Annual Leave: 35 days per year including Bank Holidays
Please submit a CV and tailored covering letter. We'll be interviewing as and when suitable candidates apply.
We look forward to hearing from you.
The client requests no contact from agencies or media sales.
Usher Kids UK is looking for a compassionate and enthusiastic Family Liaison Officer to provide emotional wellbeing support, guidance and information to our wonderful community of children, young people and their families living with Usher syndrome.
Job Title: Family Liaison Officer
Responsible to: CEO
Location: Remote, with requirement for in-person attendance at some meetings and events during the year (travel expenses covered)
Hours: 17.5 hours per week across a minimum of 3 days per week (flexible days, to be agreed with successful candidate) with some out of hours working required (e.g. our annual summer residential camp and twice-yearly family weekend events, with TOIL for out of hours working)
Salary: £31,000 per year pro rata, 2.5 days/week (£15,500 actual)
Term: 12-month fixed term contract with potential to continue in role as funding allows
Annual leave and benefits: 33 days leave pro rata (16.5 days actual). Employer pension scheme with matched contributions of 5%
Closing Date: 9th February 2025
ABOUT USHER KIDS UK
At Usher Kids UK, we’re dedicated to empowering children, young people and their families living with Usher syndrome - a rare cause of progressive deafblindness.
From the point of diagnosis onwards we provide information, support and resources tailored to the specific and unique challenges of the condition. We create opportunities for families to connect at virtual and in-person events, helping them build friendships, skills and confidence for the journey ahead.
Our services are already changing the experiences and outcomes of the next generation: "Our daughter came back from Usher Kids UK summer camp absolutely buzzing - she was confident, proud and talked with excitement about how she is unique." Working at Usher Kids UK, you could help to ensure that every family living with Usher syndrome has access to this life-changing impact.
WORKING AT USHER KIDS UK
Our charity provides vital support to the Usher community. In recent years, demand has grown for our services so this year we are very excited to be growing our staff team. The new Family Liaison Officer will work alongside our CEO and Events and Communications Officer, playing a vital role in providing both emotional wellbeing and practical support to our young people and their families.
The role will be varied and offers the chance to be an important part of our small and friendly team. We recognise the value that each person brings to our charity, encouraging innovation and development, and we support each other to provide the very best services for our community.
OVERVIEW OF THE ROLE
Family Support Lead
As Family Liaison Officer, a big part of your role will be providing tailored support, information and advice to families from diagnosis onwards. This will include:
o Responding to enquiries from families
o Assessing support needs and signposting to external services as appropriate
o Providing follow-up remote support where required
o Providing face-to-face support at occasional clinics (normally based in London)
o Designing and maintaining support processes and systems
o Monitoring engagement and using insight gained to make recommendations for service improvement
Emotional Wellbeing Lead
As our lead emotional wellbeing practitioner, you will assist in the design and delivery of several of our projects and events. These will include:
o Providing support and facilitating daily group sessions with young people aged 11-25 at our annual USHthis! summer camp (in 2025, the camp will take place from Friday 25th July - Friday 1st August and you will need to be available for these dates)
o Help to deliver our one-day events in the spring and autumn
o Co-create the Empowerment Programme for 17-25 year olds with Usher syndrome. This is a pilot programme that aims to support our young adults in developing self-advocacy and identity alongside mentoring through the key milestones in young adult life
o Facilitate 1:1 and group sessions on the Empowerment Programme
o Facilitate monthly virtual USHchats for parents and carers (these take place one evening a month)
Across all aspects of the role, you will need to ensure the safeguarding of and promote the welfare of children and adults at risk who are engaging with Usher Kids UK.
PERSONAL SPECIFICATION
Experience and Knowledge:
o Over 2 years’ experience of providing emotional wellbeing support to:
- children and adolescents
- parents/carers and family members
o Experience of supporting families with additional needs
o Experience of supporting families with sensory or dual sensory needs (desirable)
o Experience of family support case management
o Experience of facilitating 1:1 and group sessions
o Minimum of Level 3 qualification in a relevant field (e.g. youth work, health, social care, education)
o Computer literate and confident using MS Office software and video conferencing tools
o Good standard of written English and Maths (GCSE grade 5 or above)
o Good knowledge of safeguarding processes and systems
o Ability to deliver out-of-hours work to accommodate Usher Kids UK events and meetings
Skills and Qualities:
o A strong desire to help young people and families with additional needs
o Excellent communication skills including active listening and a non-judgmental approach
o Resilience and ability to set and maintain boundaries
o Willing to work flexibly and deal with change
o Proactive collaborator and able to develop and maintain external relationships
o Drive, determination and self-motivation, with a positive attitude towards work
o Excellent interpersonal skills, comfortable in team settings and independent working
APPLICATION PROCESS
How to apply:
Please upload the following to Charity Jobs by 9th February 2025:
o An up-to-date CV
o A covering letter (no more than 2 pages) explaining why you think you are the right candidate for this role. Please ensure you provide evidence and examples which demonstrate how your skills meet the criteria set out in the person specification.
To empower children, young people and their families living with Usher syndrome in the UK, by providing information, support and connections
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Location: North West - Home based covering with regular travel to: Cumbria, Lancashire, West Yorkshire, South Yorkshire, Merseyside, Cheshire
We are working in partnership with RABI who, at the heart of farming, provide practical, financial and mental health support across England and Wales and are seeking a Regional Manager to be the RABI lead for volunteering and community engagement across the North West region.
RABI’s grants empower farming people to become financially resilient, so short-term monetary problems don’t create negative life-changing impacts. Their mental health support builds emotional resilience to meet the many challenges that farming brings.
The Regional Manager’s responsibilities include the researching, developing and supporting local community fundraising across the region. Working closely with volunteers, county committees and local partners – developing, delivering and evaluating new initiatives to reach new audiences, grow support for RABI and make a difference for the farming community.
You will:
- Demonstrate relevant experience and proven track record within volunteering and community engagement / fundraising.
- Have a good understanding of volunteer motivations, with the ability to manage and work with volunteers and / or local communities.
- Exhibit excellent interpersonal and communications skills, both verbal and written, a clear and confident presentation style, and the ability to carry out public speaking, handling press / media enquiries and use of social media.
- Have strong project management and events experience.
- Have exceptional time management and highly developed organisational skills.
- Be IT literate – with good working knowledge of email, Word and Excel, as well as CRM and event management systems.
- Be analytical and numerate, confident in report writing including assessing return on investment etc.
A self-starter, you will be confident decision maker, able to work in a sometimes-pressurised environment. You will be a collaborative team player, with the ability to build relationships with people across all levels. You will have empathy and understanding of UK agricultural methods/people and issues facing the industry. Experience with living and/or working among or knowledge of the farming community would be an advantage.
Please note: due the nature of the role it will be necessary to work unsocial hours to fulfil this role e.g., attend weekend shows, evening meetings and events. A full UK Driving Licence and use of a car is essential.
For more information, please contact Louise Portnall, Recruitment Consultant, Charisma Charity Recruitment. Your application should be submitted through the Charisma website and include your CV and supporting statement.
We welcome and encourage applications from people of all backgrounds. We do not discriminate on the basis of disability, race, colour, ethnicity, gender, religion, sexual orientation, age, veteran status, or other category protected by law.
Closing date for applications: 9 February 2025
However, applications are being reviewed on a rolling basis, so please apply without delay to avoid disappointment
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
The Girls’ Network is an award-winning charity with a large and growing network of supporters, mentors and schools across eight regions of England.
We believe that no girl's future should be limited by her background, gender or parental income. Our mission is to inspire and empower girls from the least advantaged communities by connecting them with a mentor and a network of professional role models who are women.
We are now looking for a Fundraising Manager to join our team.
THE ROLE
The Fundraising Manage (Trusts & Foundations) role would suit someone who is looking to work with a high degree of autonomy and who welcomes the chance to be innovative and strategic, whilst being supported to achieve their goals. The role is within our Fundraising & Communications team of four staff and works in collaboration with regional Senior Network Managers. There is an opportunity for the post holder to collaborate with the Partnerships Manager on the development of applications to corporate foundations.
Income generation
- Primary focus of the role is the responsibility for Trusts & Foundations fundraising, to meet annual targets.
- Develop compelling funding propositions and case for support to meet priorities, working closely with colleagues in Fundraising & Communications, Programmes and Monitoring, Research, Evaluation & Learning.
- Maintain an up to date pipeline of prospects through research and excellent record keeping, ensuring that applications are made to meet known deadlines.
- Ensure that all reporting and grant monitoring is delivered in a timely manner, working closely with the MERL Manager and colleagues across Programmes.
- Provide internal management information and reporting to the Head of Fundraising on a quarterly basis, or as required.
Stewardship
- Develop data management processes, ensuring timely impact reporting or other agreed deliverables.
- Ensure all donations and supporters are thanked in a timely and appropriate mode to their giving channel.
- Keep all relevant donor and financial information up-to-date on Salesforce, ensuring adherence to GDPR and other relevant good practice, as defined by the Fundraising Regulator and other sector bodies.
- Work with colleagues in Fundraising & Communications and CEO to deliver appropriate partner recognition including events and other engagement activities.
WHAT YOU WILL BRING TO THE ROLE
You will have at least five years relevant experience, ideally with at least three years working in fundraising and be able to demonstrate previous success in generating income and achieving targets. You will be an exceptional communicator with the confidence to work on your own initiative and to build relationships with internal and external stakeholders.
You will be well organised with excellent attention to detail, work well under pressure and have the ability to think both strategically and operationally. Experience of working with CRM systems is preferred.
You have a good understanding of the disadvantages faced by both women and those from the least advantaged communities and have a drive to rectify the inequalities that currently exist.
You understand the time and resource limitations of a small charity, and you thrive on the potential to make a real difference with your work
Essential competencies:
- Proven experience in the charity sector and able to demonstrate fundraising success.
- A skilled and confident relationship builder who enjoys maintaining and sustaining contacts.
- Extremely well organised and self-motivated.
- The ability to recognise opportunities to help achieve income targets.
- Strong written and verbal communication skills.
- Understanding of financial information and ability to provide relevant data for applications including budgets and operational targets.
- Commitment to gender equality and social mobility.
- Confidence managing stakeholders.
- Resilience and ability to self manage workload with support from line manager.
OUR BENEFITS
We want to help everyone achieve more at work as well as in their personal lives and in their wider career, so that they feel proud of the part they play at The Girls' Network. We are committed to providing equality of opportunity in employment and to developing working practices and policies that support work-life balance.
- Pension scheme; employer contribution of 5% and employee of 3%
- 27 holiday days per year, plus public holidays (pro-rata)
- Extended and comprehensive sick pay policy
- Enhanced Family Leave pay policy
Learning & Development
- Annual training budget upon completion of your probation period
- Professional development support and allocated time off for training
- Continual learning and development through team days and whole staff training.
The Way We Work
- Flexible working policy: we respect that people have commitments and provide flexible working hours through discussion
- A positive and supportive team culture, regular check-ins and optional social events
- Working from home allowance to support you with essential tech needs
- We support you with a Girls’ Network buddy who you can reach out to beyond the induction period.
For more details about this role and our organisation, and instructions on how to apply, please visit our website.
The client requests no contact from agencies or media sales.
This is an exciting opportunity to support the setup of the new provision in Tilbury, Essex, working with the Executive Headteacher and other trust leaders to build a team, and plan and run a transition programme to support pupils and their families. Once open, you will undertake the day-to-day management and leadership of OA - North View by ensuring the vision and values of the trust are embedded and achieved. You will play a vital part in the school as a leader ensuring it is a beacon of best practice in the education and care of pupils who have experienced considerable difficulty in a mainstream school so that they can re-engage with education, make good progress, achieve academically, and, wherever possible, return to a mainstream education. The successful candidate will:
• Provide consistent and motivational leadership to the senior team, the teaching and support staff, children, families and the wider community served by OA - North View.
• Ensure the successful, day-to-day implementation of an innovative curriculum offer and the day-to-day smooth running of the school.
• Ensure the successful delivery on a day-to-day basis of the vision, ethos, aims and objectives as determined with and agreed by the trust.
• Ensure that statutory requirements, the decisions of the School Board and Trust, and the needs of the students are met on a day-to-day basis.
• Maintain a curriculum model that will address the previous underachievement of children attending OA - North View, re-engage them with learning and ensure rapid progress to the point where they can successfully re-integrate into a mainstream setting.
• Ensure the collection, analysis and dissemination of data to drive improvement at OA - North View.
• Ensure a range of high-quality, multi-agency services are available to support the educational, behavioural and social needs of children attending OA - North View.
• Ensure full, day-to-day compliance with health and safety legislation, including the Health and Safety at Work etc. Act 1974, the Health and Safety Policy and all locally agreed safe methods of work.
• Promote the trust’s Equal Opportunity Policy and Diversity Strategy, maintain standards of conduct which prevent discrimination from taking place and promote the trust’s policy of inclusion.
• Manage the day-to-day development and implementation of policies for OA - North View and ensure that the values, ethos, policies and procedures are fairly and consistently implemented across the school.
• Attend, as required, a range of meetings within, and occasionally beyond, the local authority area.
• Undertake any other reasonable duties commensurate with the nature and grade of the post at the direction of the Executive Headteacher, school board, CEO or MAT board.
• Lead on the overall curriculum design, teaching and learning and promoting the acquisition of appropriate qualifications and accreditation by students.
• Prioritise and promote improved attendance, re-integration to school and progression to further education and training.
• Provide a broad and balanced curriculum offer with integrated care support as appropriate.
• Ensure effective delivery of educational support to each pupil against an agreed individual educational plan or education health and care plan.
• Develop and maintain effective assessment, recording and reporting systems to monitor each pupil’s progress across a range of academic, behavioural and social indicators and to improve standards of teaching.
• Ensure that each pupil has access to a personalised curriculum offer aligned to their needs.
• Lead the day-to-day implementation of policies and procedures for behaviour management, and influence and effect
Head of School
OA – North View
the use of positive strategies by staff and pupils to manage behaviour.
• Implement agreed strategies that will promote ‘student voice’ and involve pupils in a meaningful way in the future development of the school, treating them as partners in the learning process.
• Maintain high expectations amongst staff for the academic progress of all pupils.
• Ensure that OA - North View pupils and their parents are well-informed about curriculum attainment and progress and are able to understand targets for improvement.
• To take day-to-day responsibility for behaviour, pastoral care, safeguarding and student progress.
• Participate in the recruitment and selection of teaching and support staff.
• Provide inspirational leadership and professional guidance for the teaching staff.
• Implement the robust performance management policy and processes that will set operational and/or performance goals for all members of staff and which are clearly linked to the long term objectives as set out in the strategic and annual improvement plans.
• Contribute to and implement the strategy for classroom observations, linked to the performance management policy, which is focussed on the quality of teaching and learning.
• Maintain a working environment that attracts and retains the best staff and volunteers.
• Ensure HR policy and procedures are implemented on a day-to-day basis.
• Manage the on-going professional development of staff, in alignment with the strategic goals of OA - North View.
• Deliver effective day-to-day management of OA - North View’s financial and physical resources.
• Contribute to opportunities to enhance and extend resources to further the vision through partnership working, external funding and smart working, as agreed with the Executive Headteacher.
• Implement positive solutions to achieving diversity, dignity and equality in all
aspects of service delivery and engagement with the broader community.
• Act in accordance with legislation pertaining to the conduct of the school, particularly for matters of health and safety and employment rights. Ensure health and safety assessments and the risk assessment of OA - North View’s day-to-day budget are undertaken.
• Provide information to the Executive Headteacher during the formation of the annual budget, in order to ensure the school achieves its objectives.
• Ensure the most effective day-to-day deployment of staff to achieve the highest quality of education and value for money.
• Plan, manage and monitor the curriculum within the agreed budget, setting appropriate priorities for expenditure, allocating funds and ensuring effective administration and control.
• Contribute to opportunities to enhance and extend resources to further the vision through partnership working, external funding, and smart working, as agreed with the Executive Headteacher.
• Implement positive solutions to achieving diversity, dignity and equality in all aspects of service delivery and engagement with the broader community.
• Act in accordance with legislation pertaining to the conduct of the school, particularly for matters of health and safety and employment rights. Ensure health and safety assessments and the risk assessment of Olive - North View’s day-to-day budget are undertaken.
• Plan, manage and monitor the curriculum within the agreed budget, setting appropriate priorities for expenditure, allocating funds and ensuring effective administration and control.
• Take day-to-day responsibility for the communication with parents, carers and external agencies.
• Create strong links and collaborative ways of working with all OA - North View’s stakeholders including the wider community, partner schools (primary and secondary) and sponsor organisations, ensuring OA - North View is at the heart of the community.
Head of School
OA – North View
• Recruit pupils by developing effective partnership arrangements with local schools and robust procedures for the commissioning of places at OA - North View.
• Work with OA - North View’s stakeholders and partners to achieve common goals.
• Contribute to working with Children’s Services in the local authority in support of the achievement of transformation of educational opportunities for disaffected and vulnerable pupils.
• Offer a wide range of curriculum enrichment activities and promote the opportunities provided for pupils and families and the school community.
• Manage the day-to-day partnerships and opportunities for collaboration with local industries to support pupils developing awareness of the world of work.
• Work collaboratively with local schools in order to share expertise and bring positive benefits to the school.
• Provide information, objective advice and support to the Executive Headteacher so the School Board can be enabled to meet its responsibilities for securing effective teaching and learning; high achievement and value for money.
• Contribute to accurate accounts of the school performance in a form appropriate to a range of audiences e.g. governors, trust members, commissioners and parents.
• Contribute to monitoring of the performance of the school, so it is
effectively measured against transparent targets so that strategic planning is based on reliable data and shared knowledge.
• Participate in, and personally conduct, common systems of performance management and appraisal and set performance indicators that will promote continuous improvement against evidenced outcomes.
• Ensure any necessary conduct or capability proceedings are taken forward in a timely and appropriate manner, under the direction of the Executive Headteacher.
• Ensure that all day-to-day activities operate in accordance with statutory obligations and appropriate commissioning, especially where third party agencies are engaged.
• Have regard to all DfE Statutory Guidance concerning alternative provision and provision for pupils with medical difficulties and work to ensure compliance with legislation concerning full-time provision.
• Contribute to preparations for inspections by the trust, auditors, Ofsted, HSE, etc.
• Take day-to-day responsibility for ensuring data quality and as such the integrity of management information through the proper use and safekeeping of data and record systems both manual and computerised.
The client requests no contact from agencies or media sales.
Introduction and background
The Maternal Mental Health Alliance (MMHA) was founded in 2011 by people with lived experience, healthcare professionals, and organisations who understood the impact of perinatal mental problems and shared a commitment to improving the lives of women and their families.
Today, the MMHA is a UK-wide charity and network of over 130 member organisations. We work with parents, families, clinicians, and academics to ensure all women, birthing people, babies, and families have access to high-quality, compassionate mental health care. We bring the perinatal mental health community together and make change happen by combining the power of real-life experience with clinical and professional expertise.
We actively contribute to significantly improving mental health outcomes for people who experience discrimination, trauma and deprivation during the perinatal period and tackle systemic inequity and injustice.
We are now seeking a Chief Executive to take over from our interim CEO and lead the MMHA in the next stage of our development.
We have recently been awarded a 5-year grant by the National Lottery Community Fund to tackle maternal mental health inequities through community action. This project, due to start in Spring 2025, will develop, test and replicate a model of community-based decision making, support and service provision that is led by women with lived experience. This project aims to achieve system change locally and nationally to improve the mental health of marginalised women and is the next phase of the MMHA’s programme to tackle maternal mental health inequities across the UK. This will be our biggest piece of work over the next five years and will dovetail with other activities aimed at achieving our mission, where funding allows.
For further information about the MMHA please visit our website.
Main responsibilities
Leadership and strategy
- To provide clear strategic and inspirational leadership to the MMHA To drive the MMHA forward into the next stage of its development
- To ensure MMHA tackles maternal mental health inequities across the UK
- To be responsible for the management and administration of the charity within the strategic and accountability frameworks laid down by the Board of Trustees
- To work with Chair and Trustees in shaping the MMHA’s strategic mission, policies, aims and objectives
- To ensure long term sustainability of the MMHA through effective governance, sound finance and implementation of operational plans.
People
- To take overall responsibility for all permanent and temporary staff, and other members of the MMHA team, including contractors, champions and ambassadors
- To promote diversity and equality of opportunity for all staff in accordance with the MMHA EDI policy and strategy and foster a workplace culture built on inclusion, respect and equality.
Governance, finance and compliance
- To support the Chair and Trustees to ensure that the governance of the charity is proportionate and effective, and that the charity fulfils its legal, statutory, regulatory and moral duties and responsibilities
- To be responsible overall for the financial sustainability of the charity, and ensure that there are effective mechanisms to ensure the robustness of external and internal controls (financial and non-financial), supported by the Consultant Finance Director
- To support the Consultant Finance Director to ensure the timely and complete preparation of key reports, information and activities, including management accounts, budgets, annual report and accounts, and payroll
- To ensure that the major risks to which the charity is exposed are reviewed regularly by the Board and the Executive team, systems have been established to mitigate these risks
- To work with the Chair and the Board Secretary to ensure that meetings of trustees are effective and that Trustees have appropriate information to perform their duties.
Income generation
- To take overall responsibility for the MMHA’s income generation activities, securing the future of the organisation and delivering its ambition for the mental health of women during the perinatal period
- To lead on all trust, foundation and lottery fundraising, establishing and maintaining relationships, including with the National Lottery Community Fund
- To support the Marketing & Partnerships Director to develop corporate partnerships, taking the lead on the relationship with Tommee Tippee
- To work with the Marketing & Partnerships Director to secure funding from individuals.
Communications and external affairs
- To support the Head of Engagement to maintain a relevant, diverse and effective range of members organisations, and ensure their ongoing contribution to achieving the goals of the charity 4
- To have oversight of the social, economic, clinical and policy context and how they impact on maternal mental health and MMHA strategy
- To ensure the Alliance is working effectively across the 4 UK nations and devolved administrations
- To act as a visible leader for the charity, representing the MMHA at external events and networking opportunities, and act as a spokesperson
- To oversee the development and delivery of marketing and communications strategies which effectively promote all aspects of the Alliance.
Other/service delivery
- To embed MMHA’s values throughout the organisation
- To promote a culture of commitment, trust, mutual support and professional behaviour
- To run the charity efficiently and effectively by ensuring that it has an appropriate management structure and management systems in order to fulfil its strategic objectives and to carry out its work
- To take forward the MMHA EDI strategy and plan and be a champion for anti-racist and anti-discriminatory behaviour
- To develop an organisation that is constantly seeking ways to learn and to improve its performance
- To work with staff to ensure the views of the members, champions, and ambassadors shape the work of the MMHA and its members.
This job description is intended to provide a broad outline of the main duties and responsibilities only. The post holder may be asked to carry out any other delegated duty or task that is in line with their post, seniority, or the needs of the organisation. Whilst most of the work will be undertaken during standard working hours, some work will be required in the early morning, evenings, or weekends.
How to apply
Application is by CV and a cover letter of no more than two pages of A4 each. In the cover letter, please explain how you meet the list of essential experience detailed above.
We will be anonymising applications before shortlisting. To make this easier, please ensure that your cover letter includes your initials rather than a full name.
Applications should be sent to the email address provided in the attached job pack by 10am on Tuesday 28th January 2025. Applications received after this time, or which do not follow the requested process, will not be considered.
The first interviews are expected to take place in London in early February, provisionally on Wednesday 5th or Thursday 6th.
The MMHA is committed to increasing the diversity of our team. We would appreciate it if candidates could fill out our equal opportunities monitoring form. This is anonymous and will not be linked to applications.
We are keen to ensure that our recruitment process helps us find the best candidate for the role, not the candidate who is best at completing applications and carrying out job interviews. If there is anything we can do to assist you in the recruitment process, if you have any queries, or if you would like an informal conversation about the role with the interim Chief Executive, Justin Irwin, please contact us on the recruitment email address provided in the attached job pack.
The successful candidate will be appointed subject to satisfactory references and will need to undertake a DBS and other employment checks.
The MMHA is dedicated to ensuring women and families affected by perinatal mental health problems have access to high-quality, compassionate care.
The client requests no contact from agencies or media sales.
Permanent, part-time (4 days per week)
Remote working with regular meetings in London
Immediate start
About us
Sustainability First is a leading UK think tank and charity that acts as a critical friend to businesses, regulators, governments, and civil society, to create more sustainable energy and water sectors in the UK. We work tirelessly to advocate for policies that support environmental and consumer protection and to engage the public through accessible and impactful communication. We believe that it is possible to create a thriving economy that respects environmental limits and enables social equity.
About the role
We are seeking an analytical thinker with a curiosity-driven mindset and a collaborative approach to working. This role will be central to our ongoing success as a highly regarded independent research organisation, building an evidence base in favour of embedding sustainability principles into business practices, regulatory and public policy thinking. You will help to amplify our voice with decisionmakers, including business leaders, senior officials in central government, regulatory bodies, and amongst politicians, helping to shape public policy and legislation for a socially equitable and environmentally sustainable economy.
Ideally, you will have a sector-specific understanding (energy and/or water utilities), including familiarity with key policies and strategies, such as Net Zero targets, climate adaptation strategies, and consumer vulnerability protections. You will be able to draft practical policy recommendations, informed by evidence and stakeholder input, and be familiar with key players, including government departments, regulators, consumer groups, industry bodies, and environmental organizations. This is an excellent opportunity to develop a core role in our charity, as well as make a tangible impact on the environment and social equity in the UK.
The post will be primarily based remotely, working from home, but with access to shared office space in Camden and Monument in London. Our board of trustees meet twice a year in person in central London (and twice more online), and our Executive Director is often in London for meetings once or twice a week. You must also be able to attend occasional meetings in central London and be willing to travel (infrequently) within the UK.
For further details about the role, please download the job description.
How to apply
Please click the apply button to be taken to our vacancies page.
When applying, please submit a CV (no more than three pages of A4) and covering letter that sets out how you meet the selection criteria for this role. Please also complete our Equal Opportunities Monitoring Form.
Closing date: Sunday 8th February 2025.
Interviews will be online via Microsoft Teams in February.
We apologise that due to the expected high levels of applications we may not be able to reply to all candidates. If you have not heard from us by 28th February, please assume you have not been shortlisted.
Sustainability First is an equal opportunities employer and promotes equity, diversity and inclusion through its work, and through its employment practices. You must be able to work in the UK to take up this role.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Location: To cover the Dorset, Avon and Somerset, Gloucestershire and Wiltshire area
Working pattern: Remote work with frequent travel required. You will be expected to deliver a face-to-face service to clients in their own home or safe meeting place within the South West area.
Deadline for applications: 31st January 2025 (we reserve the right to close this vacancy early if we receive a high volume of applications)
Interviews to be conducted: Early February
Start date in role: Mid-late March 2025
Rare opportunity: Help those affected by road crashes and create lasting change with Brake, the renowned road safety charity.
Who we are: Brake has been supporting victims of road carnage since 1995, and we're on a mission to prevent future collisions. Every 20 minutes, someone is killed or seriously injured on our roads, impacting lives profoundly.
Join our team: We're expanding our National Road Victim Service and need a dedicated caseworker to join our dynamic, compassionate team. Your role will involve delivering world-class support services to those at their most vulnerable.
Not your average job: This isn't a 9 to 5. You could play a significant part in rolling out trauma-informed support services nationwide. Make a real difference in the lives of those affected by road crashes.
What we offer:
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A generous 35 days of annual leave (including bank holidays and 3-day shutdown period between Christmas and New Year, pro-rata for part-time working patterns)
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Birthday day off
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Enhanced sick pay and compassionate leave
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Death in service benefit
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Pension
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Employee Assistance Programme
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Flexible working
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A rewarding role with purpose
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Be part of a skilled, friendly team with an engaged Board of Trustees
Who you are: We need passionate, self-starters with a background in providing high-quality emotional support and advocacy. Your experience in roles within the police, criminal justice, counselling, caseworker or health and social care sectors could make you an ideal candidate.
Specifically seeking candidates with:
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frontline support service experience
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a full, clean UK driving licence, access to your own transport and are willing to use it for work purposes (we reimburse travelling expenses)
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experience supporting people who have suffered sudden bereavement or working with those with heightened vulnerabilities.
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research and advocacy skills – you will reach out to other organisations to support your cases where required
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competent IT skills for remote work
Join our mission: Your greatest reward will be knowing you've made a positive difference in someone's recovery from psychological trauma.
About us: Brake is passionate about creating an inclusive workplace that values diversity. We welcome your application whatever your background or situation. We particularly welcome applications from those who are part of the global majority, the LGBTQIA+ community or disabled. We are proud to be a disability confident employer. We don’t want you to ‘fit’ our culture, we want you to enrich it. So, if you have a passion for making a difference and share in our vision for a world where no one is killed on our roads, we would love to hear from you.
Apply now: If you're up for a new challenge and have the skills, apply now.
Not for traffic offenders: Due to the nature of our work we can't accept applications from traffic offenders. Candidates will be asked to disclose whether they have any unspent points on their licence at interview.
A DBS check is required due to the sensitive nature of our service.
Join us today and be part of the solution!
We welcome cover 'letters' in a different format if that suits you better, feel free to send us a video instead.
We work to stop road deaths and injuries, support people affected by road crashes and campaign for safe and healthy mobility for all.
The client requests no contact from agencies or media sales.
Macular disease is the biggest cause of sight loss in the UK, with around 300 people diagnosed every day. The Macular Society is the only charity determined to beat the fear and isolation of macular disease with world class research, and the best advice and support.
To support people affected by macular disease now, the Macular Society provides a range of support, information and services. Our research programme is focused on finding new treatments and a cure to beat macular disease forever.
We are seeking someone who can help our regional managers recruit, train, develop, and support local Macular Society services and volunteers. The candidate needs to have an open and collaborative approach and the ability to multitask and prioritise multiple projects and work streams.
If you feel you have the above attributes, then we would love to hear from you.
In return, we provide a great working culture and offer flexible working options, 26 days annual leave, the ability to buy or sell annual leave, supportive family policies, and a 6% pension contribution.
We are an equal opportunities employer, and we welcome applications from all suitably qualified persons.
This role is predominantly home-based; however, travel may be required across the North of England and occasionally to Andover in Hampshire.
The client requests no contact from agencies or media sales.
Trauma Foundation South West (TFSW) is seeking a half-time Director of Operations at an exciting period of growth for our small, but well-established and loved charity.
Responsible to: Board of Trustees
Contract: Permanent Part Time, 6 months’ probation period
Working hours: 0.5 FTE/17.5 hours pw (occasional evening/weekend working)
Location: Flexible work from home with travel to Bristol as required (about 4 times a year)
Salary: Salary £38,850 (£19,425 pro rata)
Benefits: NEST pension, 25 days annual leave (pro rata) + bank holidays (pro rata); flexible working from home. Access to TFSW training programme.
About TFSW
We provide free, long-term psychotherapy to traumatised asylum seekers, refugees and trafficked people in Bristol; and professional training and supervision to individuals working with traumatised people in the Southwest and nationally.
We are a warm, welcoming team with a strong commitment to staff wellbeing and personal development and core values of compassion, collaboration and courage.
TFSW are part of a healing, welcoming and supportive community for traumatised refugees across the Southwest and have an ambitious vision to be a centre of excellence in our areas of specialism so that people get the support they need. In the past few years, we have made a successful transition from being volunteer-led to being a professionally-led charity with increased funding, staff and clients and the foundations laid for the next stage of growth.
The Director of Operations is a critical role, ensuring the charity is effectively run while leading on the fundraising and development that will enable TFSW to further grow our reach. We are seeking an experienced leader to rise to this challenge, someone who will enjoy working across all aspects of the organisation, effectively balancing the day-to-day operations of the charity with a strategic and ambitious mindset. If you are enthusiastic about the work we do, share our values and would love to bring your experience to a charity looking to consolidate then expand our reach across the Southwest, we’d love to hear from you.
We believe that diversity is a strength, and the more perspectives, voices and experiences we can bring to our work the better. We particularly welcome applications from people with lived experience relevant to our work as well as people from all marginalised groups, communities and backgrounds. We are committed to supporting you in your application; if you do not meet all the requirements of the role and feel you have other relevant experience we would love to hear from you. If you have any questions, or any disability and require reasonable adjustment/s to any part of the selection process please do get in touch.
(For the full job description and person specification, please read the attached document).
We improve mental health in people fleeing torture, oppression and war and those who work with them.
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Civitas Recruitment are delighted to be working with a fantastic UK based non-profit organisation that provides free legal advice to parents and carers on their rights at work. The charity’s mission is to remove the barriers that people with caring responsibilities face in the workplace. An exciting opportunity exists for a Supervising (Employment) Solicitor to join the team. As Supervising (Employment) Solicitor, you will be advising parents and carers on employment law as well as having a supervisory role in the team. This is a part-time role, (22.5 hours per week) remote working with up to two working days in London per month.
Who are we looking for?
To be successful, candidates must have a legal qualification as a solicitor or barrister with at least 2 years PQE specialising in employment law. You will have expertise in and experience of providing autonomous advice on employment law including discrimination and parental employment rights. The role will manage advisors on the legal helplines as well as work with external and internal stakeholders to help improve the charities service and offerings. As such as we are seeking candidates who can develop team members and have excellent relationship management skills. Awareness of the social and political issues relevant to the charity; including parental rights at work, work-life balance, affordability of childcare, disability, and benefits is also essential for the role.
If the above role description sounds of interest and you feel like you meet the criteria; please apply immediately or for further information, please contact Syed at Civitas Recruitment for a full JD and informal discussion. Early applications are encouraged as we will be reviewing on a rolling basis, and roles may closer earlier than initially indicated.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Trusts Fundraiser - Horatio's Garden
Please apply with a CV and one page covering letter. Any applications without a covering letter will not be considered.
We are seeking an enthusiastic and committed individual, with flair for communicating through the written word, to support our Trusts & Foundations fundraising. You will be given support and training throughout the job.
Horatio’s Garden is a growing, award winning, national charity improving the lives of people with spinal injuries by creating and nurturing outstanding garden projects in NHS spinal injury centres.
Trusts & Foundations is our largest income stream, generating income for both ongoing running costs of the existing gardens and for our capital build projects. You will join an experienced Trusts & Foundations team to help meet, and exceed, our income targets and to provide fantastic support to our donors.
We are an equal opportunities employer, and welcome applications from all suitably qualified persons. As a charity we are committed to creating and promoting a culture that protects and preserves the welfare of the vulnerable people in our care. Our safer recruitment practices support this by ensuring that there is a consistent and thorough process of obtaining and evaluating information from and about candidates including criminal record checks, to ensure that all persons appointed are suitable to work for our charity.
Main duties:
- Identify and research grant giving trusts and foundations to whom Horatio’s Garden is eligible to submit applications for funding.
- Proactively approach relevant trusts and foundations, where possible, to discuss potential applications before submission.
- Prepare and submit high quality applications for funding for a range of Horatio’s Garden projects.
- Prepare and submit high quality, timely progress reports to grant givers, contributing to longer term relationship development with funders.
- Maintain the Trusts and Foundations pipeline to maximise supporter retention and income generation.
- Identify and deliver opportunities to engage grant givers with Horatio’s Garden, through events and garden tours, to increase supporter engagement.
- Support the whole fundraising team with tasks where required.
General duties:
- Work with the gardens and finance teams at Horatio’s Garden to understand the need for funding and the impact of Horatio’s Garden to maintain profitable relationships with supporters.
- Ensure all contact and communications with supporters is recorded on our CRM database and on pipelines to enable continuity with supporters across the team.
- Keep up to date with trends and developments in fundraising to identify opportunities for Horatio’s Garden to increase sustainable income.
- Actively contribute to team and organisation meetings.
- Actively contribute to projects and activities across the organisation, supporting colleagues and volunteers where necessary.
Skills, Knowledge and Experience for this role:
- Minimum of one to two years’ experience working in trusts and foundations fundraising, or relevant role with transferable skill set.
- A flair for preparing compelling and persuasive written proposals/documents.
- Excellent interpersonal skills, with a warm, friendly and engaging manner.
- Numerate and able to interpret data and trends.
- Ability to manage a varied workload, work on own initiative to multiple tight deadlines with demonstrable time management skills and processes.
- Ability to form and maintain good relationships and to work within a team.
- High level of efficiency – able to work under pressure.
- Energetic with initiative and drive.
- Enthusiasm for working in the charitable sector.
- Excellent working knowledge of MS Office packages, particularly Word, Excel and Outlook.
- Empathy and understanding of the issues faced by spinal injury patients.
We are looking for someone to work 22 - 30 hours per week, with a salary of £27,000 - £29,000 pro rata, dependent on experience. Some out of hours work may be required, for which time off in lieu will be provided. Flexible working arrangement with mutually agreed days at our head office, just outside Salisbury in Coombe Bisset, SP5 4LN.
Salary: £27,000 - £29,000 pro rata, dependent on experience
Hours: 22 - 30 hours per week (flexible)
Job type: Part-time, one-year fixed term contract
Location: Flexible, with some travel to our head office near Salisbury and other gardens around the UK where required.
Application deadline: 2nd February 2025, with interviews starting 10th February.
Start date: April 2025,TBC.
Please apply with a CV and one page covering letter. Any applications without a covering letter will not be considered.
Please apply with a CV and one page covering letter. Any applications without a covering letter will not be considered.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Education for All Morocco (EFA) is a transformative charity dedicated to creating opportunities for marginalized girls in Morocco to access quality education. Established in 2007, we have worked tirelessly to transform the lives of young girls, giving them full access to education and additional support thanks to a well-resourced learning and living environment.
In order for us to continue to connect with donors and partners worldwide, we are looking for a Communication Co-Ordinator to drive our communication and marketing strategy to amplify our impact and champion educational equity in Morocco.
Position Overview:
We are seeking an experienced and passionate Communications Coordinator to develop and execute our communication strategy. The successful candidate will play a pivotal role in telling the story of our mission and driving our message forward across diverse platforms. This will include managing both internal and external communications, developing compelling content, enhancing donor engagement, and strengthening our digital presence.
Key Responsibilities:
1.Communications Strategy:
·Collaborate with the Managing Director to design and execute a comprehensive communications plan.
·Ensure consistency in messaging and alignment with the charity’s goals.
2.Digital Marketing Strategy:
·Develop and manage a multi-channel digital marketing strategy and a content calendar.
·Grow and engage with our online community, to create a vibrant presence across our social media platforms.
3.Donor Relations:
·Create impactful, consistent donor-facing communications, including compelling case studies, impact reports and thank-you messages.
·Liaise with donors and other funding partners to align and deliver communication strategies.
4.Content Creation:
·Develop compelling written and visual content for marketing purposes, including social media, newsletters, annual reports and press releases.
·Capture the impact of our work through storytelling, photography and videography, as needed.[MB1]
5.Publicity:
·Act as the liaison for media enquiries and public relations opportunities.
6.Monitoring and Reporting
·Track and analyze communication metrics to evaluate the success of the strategies and inform future strategies.
Personal Qualities:
·A creative thinker with a passion for storytelling, promoting social change and embracing the importance and impact of our work.
·Strong organizational skills and a proactive approach to problem-solving.
Required Skills and Experience:
·Proven experience in communications and digital marketing, ideally in the charity sector
·Exceptional written and verbal communication skills in English, proficiency in Arabic is an advantage.
·Expertise in social media management and content creation.
·Strong storytelling skills with a creative eye for visuals and branding.
·Experience with donor engagement practices and impact reporting.
·Ability to work independently, meet deadlines, and manage multiple projects.
Working Hours, Location and Benefits:
·8-12 hours per week, based on workload[MB2]
·This is a contractor position, allowing flexibility and remote work.
·Competitive remuneration to be determined based on experience and expertise.
How to Apply:
Interested candidates should upload their CV, cover letter and examples of their previous work by the 5th of February.
We want to give girls from rural Morocco the chance of a secondary Education because we believe that everyone has the right to an education.
Salary: £40-£45k pro rata
Hours: 28
Job Type: Part time
Contract Type: Permanent
Role Purpose:
This role oversees a team of community support workers and volunteers, ensuring smooth day-to-day operations. As part of a small, dynamic team, the Service Delivery Manager will contribute to fundraising, communications, and event management, while supporting the Director of Operations, Engagement, and Services in executing strategic priorities.
Key Responsibilities:
Operational Management
- Oversee the daily operations of community support services, ensuring the effective delivery of support to individuals affected by MCAS.
- Lead and manage a large team of volunteers, working with the HR team to coordinate recruitment, onboarding, and ongoing training to maintain high service standards.
- Support core functions including fundraising, communications and events, to ensure operational efficiency and delivery of integrated campaigns.
- Monitor and evaluate service delivery, ensuring that objectives and key performance indicators (KPIs) are met and that the charity complies with relevant regulations and best practices.
- Assist in the development and implementation of operational policies, procedures, and systems to streamline processes and enhance service quality.
Team Leadership & Volunteer Management
- Provide day-to-day support and supervision to community support team, offering guidance, performance management, and development opportunities.
- Act as the primary team manager for volunteers, ensuring they receive support to feel valued, supported, and engaged in their roles.
- Organise regular volunteer meetings and training sessions to ensure alignment with our client's mission and objectives.
- Support volunteer retention and recognition efforts.
Fundraising, Communications & Events
- Work closely with the Director of Operations to support fundraising initiatives, including donor engagement, event planning, and community outreach activities.
- Contribute to the development and delivery of communications campaigns, ensuring consistent messaging across all channels.
- Assist in the planning and execution of events, including community support activities, fundraising events, and awareness-raising initiatives.
Collaboration and Stakeholder Management
- Develop and maintain relationships with key stakeholders, including service users, volunteers, healthcare professionals, and partners.
- Collaborate with the wider team to identify opportunities for service improvement and growth.
- Represent our client at external meetings, events, and networking opportunities to raise awareness of the charity and its work.
Person Specification:
Essential:
- Proven experience in operations management, preferably within a charity or community services setting.
- Experience managing and supporting volunteers and/or staff.
- Strong leadership and people management skills, with the ability to motivate and engage a team.
- Excellent organisational skills with the ability to multitask and manage competing priorities in a fast-paced environment.
- Strong communication skills, both written and verbal, with experience in stakeholder management.
- A collaborative and flexible approach, with a willingness to support multiple functions such as fundraising, comms, and events.
- Proficiency in using Microsoft Office, project management tools, and CRM systems.
- Commitment to the mission and values of our client.
Desirable:
- Experience in fundraising, communications, and/or event management.
- Knowledge or lived experience of Mast Cell Activation Syndrome or experience working within the healthcare or chronic illness sectors.
Benefits:
- Flexible working hours and remote working options.
- Professional development opportunities.
- Being part of a passionate and supportive team dedicated to making a difference in the lives of those affected by MCAS.
- 8% pension contribution
- Christmas closure
- 25 days annual leave plus bank holidays (pro rata)
Bringing the Mast Cell Activation Syndrome community together
Our client is a small UK rare disease charity. Our client established at the end of 2015 to respond to Mast Cell Activation Syndrome (MCAS). MCAS is a crippling, unpredictable and frightening condition affecting the immune system. Sufferers from MCAS have “wrongly programmed” immune systems that react to a wide range of triggers including food, drink, stress, temperature and many others. The effects range from unpleasant allergic reactions, through to an overall debilitation resulting in people being unable to leave their houses. It was first recognised internationally in 1990, with a set of diagnostic criteria agreed in 2011, but is little known or understood in the UK, where incidence seems to be increasing. Here patients can wait 3-5 years for a diagnosis, often receive very little knowledge or help from within the medical establishment and can find themselves in a frightening limbo.
Their mission is to provide support for MCAS patients & their families; to bring the MCAS community together and create a cohesive voice; to lobby for awareness, universally available diagnosis and the best possible care for MCAS patients; and to inspire increased research into mast cell activation and related conditions, to improve understanding and treatment.
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