Job Title: Chief Executive Officer (CEO)
Responsible to: Board of Trustees
Working Hours: Part-time – 18 hours per week
Salary: £19,656 per annum (£40,950 FTE based on a 37.5-hour week)
Base: Home-based with occasional travel
About Us
Pathfinders Neuromuscular Alliance is a user-led organisation that promotes independence, choice and quality of life for teenagers and adults with muscle-weakening conditions. We empower individuals to take control of their health, access opportunities and contribute to their communities.
Rooted in the social model of disability, our work is driven by collaboration, lived experience, and evidence-based practice. Together, we champion choice, inclusion and better services for our community.
The Opportunity
We are seeking an exceptional and visionary Chief Executive Officer to lead Pathfinders Neuromuscular Alliance. The CEO will be the public face of the organisation, building strong relationships with stakeholders, advocating for the voice of adults with muscle-weakening conditions and driving the organisation’s strategic vision.
This is a unique leadership opportunity for someone with lived experience of muscle-weakening conditions to shape the future of a dynamic and impactful organisation. You will ensure the charity’s sustainability, provide operational oversight and work collaboratively with the Board of Trustees, staff and beneficiaries to meet the priorities of our community.
Key Responsibilities
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Deliver and implement the strategic vision of the organisation.
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Represent Pathfinders as its public face, advocating for the needs and voices of adults with muscle-weakening conditions in public, media, and campaign spaces.
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Build partnerships and networks across sectors, fostering collaboration to support our mission.
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Work with trustees to oversee governance, ensure statutory compliance and risk management - building a culture of open communication with the trustees.
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Build teamwork and co-operation within the Charities Management Team
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Manage an appropriate risk management policy and ensure all policies are relevant and up to date.
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Oversee fundraising initiatives to secure sustainable income, working across diverse funding streams.
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Manage organisational finances, including budget preparation, financial oversight, and reporting to the Board and funding bodies.
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Be responsible for budgeting and oversee payroll, HR and contracts.
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Be able to manage projects and add extra project delivery capacity when needed.
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Foster a positive and inclusive culture among staff and volunteers, ensuring alignment with Pathfinders’ mission and values.
Person Specification
Essential Skills and Experience:
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Lived experience of muscle-weakening conditions
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CEO experience, or equivalent within a large organisation
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Experience of successfully working with Boards in order to ensure the current and future success of the organisation
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Strong financial management skills, including budgeting, reporting and risk assessment.
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Experience in fundraising, securing income from a range of sources (e.g., trusts, corporate sponsors, and community support).
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Knowledge of charity governance, safeguarding, data protection and compliance requirements.
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Excellent communication skills, with experience of building relationships with stakeholders and engaging with diverse audiences.
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Understanding of human resources and personnel management.
Desirable Attributes:
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Confidence in public speaking and in writing, with the ability to represent the organisation in high-profile spaces.
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Strategic thinking with the ability to identify trends and opportunities to advance the charity’s mission.
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Empathy, adaptability and a collaborative approach to leadership.
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Proficiency in IT tools and financial software.
Our Values:
Pathfinders Neuromuscular Alliance is built on the principles of:
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Enabling and encouraging independence.
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Being user-led and collaborative.
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Rooted in the social model of disability.
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Valuing shared lived experiences.
What We Offer
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A unique leadership opportunity within a values-driven, user-led organization.
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Flexible, home-based working arrangements.
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The chance to make a significant impact on the lives of individuals with muscle-weakening conditions.
How to Apply
To apply, please submit your CV and a cover letter detailing your lived experience, leadership skills and vision for the role. Applications close on Tuesday 11th March at 6pm.
In your cover letter, please detail how you meet the person specification and detail your lived experience, leadership and vision for the role. The cover letter should be no more than two pages.
The client requests no contact from agencies or media sales.
Thank you!
Contract Type: Fixed Term Contract (2 years) potential to become permanent
Salary: £32,300 - £34,000 per annum
Department: Governance
Directorate: Professional Services
Location: Working from home, with very occasional UK travel
Reports to: Governance Manager
We are seeking someone with a keen eye for detail and who has the ability to work on their own initiative as part of a remote team. A willingness to learn, get on with the job, to question and to challenge will be essential.
As the Governance and Reporting Officer, you’ll play a crucial role in the relationship with a key stakeholder and our largest funder, the Ministry of Housing, Communities and Local Government (MHCLG), ensuring the good governance and excellent reporting of progress against this Grant. You’ll be a great communicator, with the ability to influence, negotiate and problem solve.
Key Responsibilities:
You’ll provide overall coordination of MHCLG grant governance and reporting, ensuring all areas delivering under the terms of the grant are aware of reporting deadlines, providing them with the necessary support and advice in preparing progress reports.
Supporting the production of concise, relevant and timely updates and responses for our Senior Leadership Team.
Delivering high quality reports by ensuring a high level of accuracy and attention to detail is applied.
Supporting the Governance Team in ensuring high standards of governance and reporting in all activities.
Providing general administrative support to the overall grant governance process and to the Governance Manager including but not limited to checking stakeholder and key personnel availability for meetings, producing accurate minutes, records and action logs arising, coordinating company reporting to meet deadlines and reviewing documents for tone of voice, uniformity, conformity and completeness.
Building and maintaining good working relationships with key stakeholders.
Supporting continuous improvement of the reporting across the organisation by working with all areas of the organisation to improve the presentation, accuracy and consistency of data and reporting.
Undertaking such other tasks as may be reasonably requested by the Governance Manager.
Full details of the role and what we are looking for can be found in the Job Description on the NFCC website.
What you can expect:
We are people centred and focus on creating a positive and engaging working environment. Wellbeing, reward, recognition, and personal development are not just words we talk about, we put them into action daily.
We offer an enhanced annual leave allowance of 26 days plus bank holidays, Health Care Cashplan, access to an Employee Assistance Programme and support flexitime working.
If this sounds like the kind of opportunity that you would be interested in; please have a look at the detailed Job Description on the NFCC website and apply.
How to apply:
Please complete the application form linked to this vacancy and apply. CV’s will NOT be accepted for this position.
Closing Date – 13 March 2025 with interviews being conducted week commencing 17th March 2025.
PLEASE NOTE – THIS VACANCY WILL CLOSE BEFORE THE CLOSING DATE IF WE RECEIVE A HIGH NUMBER OF APPLICATIONS.
NFCC is committed to safeguarding and promoting the welfare of children, young people and adults and will require a DBS check to be completed prior to commencing in post.
NFCC is committed to being an inclusive employer. We comply with the Equality Act 2010, and we believe that everyone deserves to work in safe environments that are free from bullying, harassment and discrimination, abuse, and harm, where they feel supported, welcome, and able to thrive.
NFCC acknowledges the duty of care to safeguard, protect and promote the welfare of children and vulnerable adults and is committed to ensuring safeguarding practice reflects statutory responsibilities, government guidance and complies with best practice, all staff are expected to share this commitment.
Registered Charity
101 - 500
NFCC is an independent membership association and the professional voice of UK fire and rescue services.
The client requests no contact from agencies or media sales.
Thank you!
Youth Liaison Officer – North Wales (Anglesey / Bangor area)
Location: Homebased with travel within North Wales
Salary: £18,731 pro-rata including holiday pay, based on a working pattern of 30hrs/week across 4 or 5 days, and 39 weeks/year. £26,700 FTE
Hours: 30hrs a week, working term time only (39 weeks/year). The hours and days of coverage may be negotiable for the right candidate and experience.
Contract: Permanent
Ideal opportunity if you enjoy working with young people and want to help them be the best they can be.
Flexible and rewarding position within a dedicated and supportive team, working together to develop teamwork, leadership, and employability skills that inspire the next generation to aim high.
Join our team and make a real difference!
Our charity, the Jon Egging Trust, is looking for a highly motivated individual with experience of working with young people, to plan and deliver inspiring teamwork, leadership and employability programmes in North Wales. The role involves liaising with school staff, local partners (including the Military and local businesses) and volunteers to ensure programmes meet the needs of our young people and is supported by the Regional Manager, North Wales.
The successful candidate will be based from home with a requirement to travel to partner schools and business sites in and around Anglesey, Bangor and occasionally along the A55 corridor. Fuel expenses are paid and travel time is included as part of working hours. Working with secondary schools to provide early support programmes, core delivery time is usually within the school working day and during school terms only. All other working hours can be managed with flexibility by the post holder to ensure that all administrative tasks are completed as required.
About the Jon Egging Trust (JET)
At JET, we support vulnerable young people to get back on track and realise their potential; more than 30,000 young people right across the UK to date, and there’s so much more we can do. We’re an organisation that really values its people and we’re immensely proud that our team culture is based on caring and raising each other up.
Our benefits package includes:
- Flexible working
- Enhanced annual leave
- Homeworking allowance
- Occupational pension scheme
- Occupational sickness scheme
- Special paid leave provision
Read our Applicant Privacy Notice
Child and adult at risk protection policy statement
The Jon Egging Trust is committed to providing a safe and positive environment for everyone involved in its services and activities. The Trust takes its extended moral and legal duty of care very seriously in relation to children, young people, staff and volunteers. We seek to ensure the safety and wellbeing of all children and to protect them from harm or abuse when they engage in any of our activities. JET expects all employees and volunteers to share this commitment. The suitability of all prospective employees or volunteers will be assessed during the recruitment process in line with this commitment.
To apply
Please complete our online application form.
The closing date is Sunday 23rd March at 23.30 hrs.
Interviews will be held in person at one of our partner schools in North Wales week commencing 31st March 2025, location to be confirmed.
Please note: To become an employee at JET you must be able to produce evidence of your Right to Work in the UK and a satisfactory DBS check – enhanced with children’s barred – is required for this role.
On 20th August 2011, Flt Lt Jon Egging lost his life whilst completing a display at the Bournemouth Air Festival. He was coming to the end of his first year with the world-famous Royal Air Force Aerobatic Team, the Red Arrows, flying in the position of Red 4.
Jon was an inspirational individual, and inspiration is at the heart of everything we do. Like Jon, our staff and volunteers are chosen for their ability to act as positive role models; in turn they inspire and enthuse our vulnerable young students to reach their full potential. Our long-term support programmes increase self-confidence, self-esteem and aspiration, and ultimately empower young people to become role models within their own communities.
The Jon Egging Trust realises Jon’s dream of inspiring young people through his love of aviation, STEM, teamwork and leadership, helping them to overcome adversity, identify their strengths and work towards their dreams.
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