Make a real impact by empowering individuals and families affected by Bardet-Biedl Syndrome (BBS) with the knowledge, advice, and support they need to thrive.
At Bardet-Biedl Syndrome UK (BBS UK), we are dedicated to improving the lives of those affected by this rare genetic condition. Our support services help individuals and families navigate the challenges of BBS, ensuring they have access to expert advice, advocacy, and practical assistance to enhance their well-being and independence.
We are seeking an experienced and dedicated Advice Worker to join our passionate and committed team. This role offers a unique opportunity to provide tailored guidance on social care, disability benefits, health services, and education support, making a meaningful difference to those we serve.
About the Role
As an Advice Worker, you will ensure individuals and families receive timely, practical support that empowers them to navigate key challenges. You will:
- Provide specialist advice on disability benefits, social care, education, and healthcare services.
- Advocate for individuals and families, ensuring they receive the support they need.
- Assist with applications and appeals for welfare benefits, social care assessments, and education support plans.
- Work collaboratively with healthcare professionals, social workers, and educators to provide holistic support.
- Attend BBS Clinics, community events, and outreach sessions to deliver in-person advice.
- Stay up to date with relevant legislation and policies affecting individuals with disabilities and rare conditions.
This is a home-based role with occasional travel across England. Travel expenses will be reimbursed in line with BBS UK policies.
Who We’re Looking For
We are looking for a knowledgeable, committed, and proactive Advice Worker with the skills and drive to make a real difference.
Essential Experience & Skills
- Experience providing advice and support to individuals with disabilities or long-term conditions.
- Strong knowledge of social care systems, disability benefits, and education support.
- Experience in advocacy and casework, supporting individuals with complex needs.
- Strong IT skills, including Microsoft Office and case management systems (e.g., CharityLog).
- Excellent communication and interpersonal skills, with the ability to engage with a diverse range of people.
- Ability to work independently, manage a varied workload, and use initiative.
- A deep understanding of the challenges faced by individuals with rare genetic conditions.
Desirable Experience & Skills
- Experience working remotely as part of a dispersed team.
- Knowledge of Education, Health and Care Plans (EHCPs) and experience supporting families with applications and reviews.
- Access to a car for travel (mileage and travel expenses reimbursed).
Why Join BBS UK?
BBS UK is a small, dedicated charity making a real difference in the lives of those affected by Bardet-Biedl Syndrome. We work closely with NHS England to provide essential support services and advocate for improved care and assistance.
By joining us, you will:
- Have a direct and meaningful impact on people’s lives.
- Be part of a supportive, close-knit team that values collaboration and innovation.
- Work flexibly from home while engaging directly with the community.
- Receive ongoing training and professional development.
- Help shape the future of support services for people with BBS.
Additional Information
- DBS Check: An enhanced DBS check is required for this role.
- Safeguarding: Completion of safeguarding training within the first month of employment.
- Flexible Working: Some evening or weekend work may be required, with time off in lieu provided.
- Travel Expenses: Covered for outreach work in line with BBS UK policies.
How to Apply
If you’re ready to use your skills and experience to make a real impact, we’d love to hear from you!
If you would like to discuss the role before applying, details can be found in the application pack.
Application Deadline: Sunday 27th April 2025
Registered Charity
6 - 10
We support and empower our community, champion wellbeing, and raise awareness, ensuring understanding, support, and hope for all affected.
The client requests no contact from agencies or media sales.
Thank you!
Using Anonymous Recruitment
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Ambitious, professional, committed and friendly. That describes us. If it also describes you and you have a passion for corporate fundraising, then we’re keen to hear from you.
We have 600 volunteers supporting unrepresented litigants in the civil and family courts in England and Wales, helping over 50,000 times last year. At a time when legal support is increasingly limited, we have a vision that no one should have to go to court alone. To make this vision a reality we have a focused fundraising strategy to ensure the charity has the resources it needs and our corporate partnerships are key.
We’re looking for a Corporate Partnerships Manager (Maternity Cover) to join our team, to steward existing partnerships and grow new connections, especially with those in the legal sector. As well as running our Guardians’ network, you’ll arrange key supporter events and develop bespoke partnerships.
It’s a busy role and you’ll be supported by an assistant and a close working fundraising team. You’ll also be able to build on the firm foundations we already have in place.
We’re open to applications from experienced corporate fundraisers, as well as corporate fundraisers ready to step up into managing the corporate income streams.
Interviews will be held on the 14th May 2025
The client requests no contact from agencies or media sales.
Thank you!
Advocacy Manager
Location – Remote from the UK with regular travel to Manchester and London
Starting Salary - £40,416 per annum (plus contributory pension)
MAG saves lives and builds futures by working with others to reclaim land contaminated with the debris of conflict, to reduce the daily risk of death or injury for civilians, and to create safe and secure conditions for development. MAG shared the 1997 Nobel Peace Prize as a founding member of the International Campaign to Ban Landmines for our work to ban landmines. Our vision is a safe and secure future for men, women and children affected by armed violence and conflict.
We are looking for an exceptional Advocacy Manager to work within our Policy and Strategic Partnerships team. This is a fantastic opportunity to join a dynamic international charity that shared the 1997 Nobel Peace-Prize.
You will be working with the Director of Policy and Strategic Partnerships in the development and delivery of MAG’s advocacy work, including leadership of MAG’s UK parliamentary engagement, and contribution to the European and US engagement strategies.
The successful candidate will have previous experience of engaging and influencing UK parliamentarians, including the House of Commons and House of Lords, in support of advocacy objectives through a variety of tactics. You will have up-to-date knowledge of the UK political scene, and key players for MAG’s focus areas, knowledge of UK parliamentary processes and influencing tactics. You will also have a proven track record of meeting targets and deadlines and an ability to build, manage and develop relationships with key stakeholders. Excellent coordination and communication skills will also be essential.
The role will involve travel in the UK and Internationally.
What you can expect in return:
· Competitive salary
· 25 days annual leave per year, plus public holidays.
· Company pension (matching at 5%
· Employee Assistance Programme: MAG offers free access to Health Assured, a service providing 24/7 confidential support and expert advice on a wide range of issues.
Further information and how to apply:
For the further information on the role, the application pack and details of how to apply, please visit the MAG website by the closing date of 5th May 2025.
Application is by submission of the following documents to humanresources [@] maginternational [.] org by the closing date of 5th May 2025:
1. Up-to-date CV
2. Cover letter, setting out why you believe you are suitable for this position, and how you feel you align to MAG Values.
3. Completed Candidate Profile Form
Due to the high volume of applications, we receive, we cannot respond to every application. If you have not heard back from us within 3 weeks of applying, your application has not been successful.
Please note that as part of MAG's commitment to safeguarding, this post is subject to background checks before an offer of employment is confirmed. For more information on MAG’s approach to safeguarding here and background checks here. You can also find more information in the candidate information pack, available on our website.
MAG is committed to the principles of diversity, equality and inclusion. If you think you would be suited to one of our roles we would welcome your application regardless of your background. We strive to provide an inclusive and supportive working environment where all employees feel respected and supported in fulfilling their potential.
Registered Charity
More than 1000
We do whatever it takes to get to a landmine before another child does.
The client requests no contact from agencies or media sales.