Make a real impact by empowering individuals and families affected by Bardet-Biedl Syndrome (BBS) with the knowledge, advice, and support they need to thrive.
At Bardet-Biedl Syndrome UK (BBS UK), we are dedicated to improving the lives of those affected by this rare genetic condition. Our support services help individuals and families navigate the challenges of BBS, ensuring they have access to expert advice, advocacy, and practical assistance to enhance their well-being and independence.
We are seeking an experienced and dedicated Advice Worker to join our passionate and committed team. This role offers a unique opportunity to provide tailored guidance on social care, disability benefits, health services, and education support, making a meaningful difference to those we serve.
About the Role
As an Advice Worker, you will ensure individuals and families receive timely, practical support that empowers them to navigate key challenges. You will:
- Provide specialist advice on disability benefits, social care, education, and healthcare services.
- Advocate for individuals and families, ensuring they receive the support they need.
- Assist with applications and appeals for welfare benefits, social care assessments, and education support plans.
- Work collaboratively with healthcare professionals, social workers, and educators to provide holistic support.
- Attend BBS Clinics, community events, and outreach sessions to deliver in-person advice.
- Stay up to date with relevant legislation and policies affecting individuals with disabilities and rare conditions.
This is a home-based role with occasional travel across England. Travel expenses will be reimbursed in line with BBS UK policies.
Who We’re Looking For
We are looking for a knowledgeable, committed, and proactive Advice Worker with the skills and drive to make a real difference.
Essential Experience & Skills
- Experience providing advice and support to individuals with disabilities or long-term conditions.
- Strong knowledge of social care systems, disability benefits, and education support.
- Experience in advocacy and casework, supporting individuals with complex needs.
- Strong IT skills, including Microsoft Office and case management systems (e.g., CharityLog).
- Excellent communication and interpersonal skills, with the ability to engage with a diverse range of people.
- Ability to work independently, manage a varied workload, and use initiative.
- A deep understanding of the challenges faced by individuals with rare genetic conditions.
Desirable Experience & Skills
- Experience working remotely as part of a dispersed team.
- Knowledge of Education, Health and Care Plans (EHCPs) and experience supporting families with applications and reviews.
- Access to a car for travel (mileage and travel expenses reimbursed).
Why Join BBS UK?
BBS UK is a small, dedicated charity making a real difference in the lives of those affected by Bardet-Biedl Syndrome. We work closely with NHS England to provide essential support services and advocate for improved care and assistance.
By joining us, you will:
- Have a direct and meaningful impact on people’s lives.
- Be part of a supportive, close-knit team that values collaboration and innovation.
- Work flexibly from home while engaging directly with the community.
- Receive ongoing training and professional development.
- Help shape the future of support services for people with BBS.
Additional Information
- DBS Check: An enhanced DBS check is required for this role.
- Safeguarding: Completion of safeguarding training within the first month of employment.
- Flexible Working: Some evening or weekend work may be required, with time off in lieu provided.
- Travel Expenses: Covered for outreach work in line with BBS UK policies.
How to Apply
If you’re ready to use your skills and experience to make a real impact, we’d love to hear from you!
If you would like to discuss the role before applying, details can be found in the application pack.
Application Deadline: Sunday 27th April 2025
Registered Charity
6 - 10
We support and empower our community, champion wellbeing, and raise awareness, ensuring understanding, support, and hope for all affected.
The client requests no contact from agencies or media sales.
Thank you!
Using Anonymous Recruitment
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Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
We are looking for a highly motivated and inspiring Director, to provide strategic and operational leadership of our independent adoption support charity.
Working as part of a small yet mighty staff team, you will work collaboratively with the Board of Trustees, Committees, Volunteers, Working Groups and other Stakeholders to lead significant growth across a variety of programmes, infrastructure and fundraising opportunities.
You will bring an entrepreneurial approach to growth, seeking new opportunities and forging new strategic partnerships to support agile growth both nationally and regionally, whilst also nurturing our existing deeply committed volunteers and members. As an empathetic leader, you will show understanding and commitment to the needs of adopters and prospective adopters and their families and how WAF services can most effectively address these needs.
Key responsibilities include:
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Steering Strategic Development & Organisational Leadership
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Managing Financial & Budget Controls
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Leading on Fundraising & Strategic Partnerships
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Overseeing Monitoring and Impact
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Contributing to Communications
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Championing our Advocacy efforts
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Collaborating with our Board and Committees
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Empowering our Team
Person Specification
Essential
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Experience of developing and nurturing partnerships with statutory, voluntary
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and private sector organisations (E)
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Track record in identifying and securing new funding streams, these could include: earned income, corporate giving, individual giving, crowd funding and value in kind (E)
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Experience of bid writing for trust & foundations / fundraising applications (E)
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Experience of budget setting and budget control (E)
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Experience of managing staff and volunteers (E)
Desirable
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Experience of working within a co-produced or beneficiary-led service (D)
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Experience of working with a Board of Trustees (D)
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Understanding of the current issues affecting adopters and prospective adopters (D)
About We Are Family
We Are Family is an extraordinary peer support community for adopters and prospective adopters. We’re there for parents throughout their adoption journey. Online and in person, our parents’ groups, events, resources, podcasts and talks offer mutual support, information and inspiration to adopters and those considering adoption. We are the leading peer support community for adopters across Greater London and the Home Counties, and offer digital-membership nationally; we have ambitions to scale our in-person services provision significantly over the coming years.
You can find out more about us here.
To Apply
If the opportunity to join an exciting, rapidly growing charity appeals to you as someone able to make a valuable contribution, we would love to hear from you!
Please read our full application pack via our website
Deadline to apply: Thursday 24th April 10am
Start Date: ASAP
Please note that applications are received and reviewed on an ongoing basis, therefore an early application is advised.
One of the great strengths of We Are Family is that we are volunteer and member driven, and we represent a diverse community of adoptive parents. We particularly welcome applicants from Black, Asian and minority ethnic backgrounds to ensure that the organisation can benefit from this diversity of experience.
The client requests no contact from agencies or media sales.
Thank you!
The role will involve creating and delivering a programme of activities, events, and small exhibitions in Manchester Histories Hub at Manchester Central Library.
A focus of the role will be on heritage and wellbeing, weaving this into the programme of activities and ensuring that our values of compassion, curiosity and justice are reflected throughout. Another key aspect of the role involves supporting our team of dedicated volunteers in engaging with visitors to the Hub and coordinating their recruitment and training while fostering a collaborative approach. Volunteers are vital in supporting the aims of the charity and in return we aim to provide our volunteers with an enjoyable, rewarding and stimulating experience.
The Hub is a space for people to come together to reveal and celebrate Greater Manchester’s rich and diverse histories and heritage. This is an opportunity to shape the hub to become an even more welcoming, dynamic and vibrant space.
The client requests no contact from agencies or media sales.