Make a real impact by empowering individuals and families affected by Bardet-Biedl Syndrome (BBS) with the knowledge, advice, and support they need to thrive.
At Bardet-Biedl Syndrome UK (BBS UK), we are dedicated to improving the lives of those affected by this rare genetic condition. Our support services help individuals and families navigate the challenges of BBS, ensuring they have access to expert advice, advocacy, and practical assistance to enhance their well-being and independence.
We are seeking an experienced and dedicated Advice Worker to join our passionate and committed team. This role offers a unique opportunity to provide tailored guidance on social care, disability benefits, health services, and education support, making a meaningful difference to those we serve.
About the Role
As an Advice Worker, you will ensure individuals and families receive timely, practical support that empowers them to navigate key challenges. You will:
- Provide specialist advice on disability benefits, social care, education, and healthcare services.
- Advocate for individuals and families, ensuring they receive the support they need.
- Assist with applications and appeals for welfare benefits, social care assessments, and education support plans.
- Work collaboratively with healthcare professionals, social workers, and educators to provide holistic support.
- Attend BBS Clinics, community events, and outreach sessions to deliver in-person advice.
- Stay up to date with relevant legislation and policies affecting individuals with disabilities and rare conditions.
This is a home-based role with occasional travel across England. Travel expenses will be reimbursed in line with BBS UK policies.
Who We’re Looking For
We are looking for a knowledgeable, committed, and proactive Advice Worker with the skills and drive to make a real difference.
Essential Experience & Skills
- Experience providing advice and support to individuals with disabilities or long-term conditions.
- Strong knowledge of social care systems, disability benefits, and education support.
- Experience in advocacy and casework, supporting individuals with complex needs.
- Strong IT skills, including Microsoft Office and case management systems (e.g., CharityLog).
- Excellent communication and interpersonal skills, with the ability to engage with a diverse range of people.
- Ability to work independently, manage a varied workload, and use initiative.
- A deep understanding of the challenges faced by individuals with rare genetic conditions.
Desirable Experience & Skills
- Experience working remotely as part of a dispersed team.
- Knowledge of Education, Health and Care Plans (EHCPs) and experience supporting families with applications and reviews.
- Access to a car for travel (mileage and travel expenses reimbursed).
Why Join BBS UK?
BBS UK is a small, dedicated charity making a real difference in the lives of those affected by Bardet-Biedl Syndrome. We work closely with NHS England to provide essential support services and advocate for improved care and assistance.
By joining us, you will:
- Have a direct and meaningful impact on people’s lives.
- Be part of a supportive, close-knit team that values collaboration and innovation.
- Work flexibly from home while engaging directly with the community.
- Receive ongoing training and professional development.
- Help shape the future of support services for people with BBS.
Additional Information
- DBS Check: An enhanced DBS check is required for this role.
- Safeguarding: Completion of safeguarding training within the first month of employment.
- Flexible Working: Some evening or weekend work may be required, with time off in lieu provided.
- Travel Expenses: Covered for outreach work in line with BBS UK policies.
How to Apply
If you’re ready to use your skills and experience to make a real impact, we’d love to hear from you!
If you would like to discuss the role before applying, details can be found in the application pack.
Application Deadline: Sunday 27th April 2025
Registered Charity
6 - 10
We support and empower our community, champion wellbeing, and raise awareness, ensuring understanding, support, and hope for all affected.
The client requests no contact from agencies or media sales.
Thank you!
Applicants who are based in the UK, EU, Middle East and Africa (EMEA) are welcome to apply. Please note, however, that the listed salary is in reference to UK based applicants.
Background:
Amna means safe in Arabic - representing the core of our work - supporting communities and frontline workers to bring non-clinical mental health support to every person affected by war, conflict and displacement. At Amna, our core values of respect, understanding, curiosity and connection guide everything we do. Our mission is to build community capacity for healing. Our vision is a world where refugees can determine their future unbounded by the impacts of conflict and displacement.
We partner with local organisations and institutions working with displaced communities to set up psychosocial healing services in which individuals and groups can discover and connect to practices that promote their healing and wellbeing. We invest in and train people within these organisations to provide this support, and we help partners build psychosocial interventions in collaboration with refugee communities – all with a values-based, trauma-sensitive and identity-informed approach.
Our partnerships are not limited. We connect partners through our global healing network of peer organisations to exchange learnings and enhance their practices as the network strives to support forcibly displaced communities around the world.
Safeguarding:
The role-holder will have experience working according to ethical and good practice safeguarding principles. They will be expected to adhere to and promote Amna’s Child and Vulnerable Adult Safeguarding Policies as they will be involved and responsible for programmes working with children and vulnerable groups in different settings.
How Will You Make a Difference?
Amna is seeking a compassionate and experienced Arabic speaking facilitator to join Amna’s team of trainers, with therapeutic/clinical background. As a Trainer & Facilitator your responsibilities will involve delivering training sessions and group facilitation to support and create learning spaces for training participants on themes centred around trauma and identity informed psychosocial healing care with displaced communities. The role holder is expected to work on multiple responses, and will lead Amna’s Gaza and Syria responses, while working closely with Arabic speaking team members.
Amna’s identity and trauma informed approach is centred around community healing practices with communities that aim to restore participants sense of safety, belonging, agency and joy. Amna services are co-created with the communities being worked with and we prioritise refugee participation and leadership in service design and delivery wherever possible.
The role holders need to have experience working with communities affected by adversity, including displacement, war and conflict, poverty, abuse or marginalisation. Given the nature of Amna’s work in emergency settings with displaced communities, applicants need to be comfortable working in environments where there is uncertainty, change and exposure to distress.
Specifically, successful candidates will have a strong experience in following areas:
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Work with children and families in an emergency context;
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Therapeutic experience – Individual and Groups;
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Community work experience;
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Designing and delivering trainings across different context;
Amna will train role holders in Amna’s training and facilitation approach.
Responsibilities include:
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To deliver high quality, interactive trainings in person and online.
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To lead on Amna’s Gaza and Syria responses, working closely with a diverse, cross-cultural team and partners.
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To develop Amna’s training materials including engaging content, structure, visuals and activities.
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To provide ongoing support to Amna’s training participants from a range of countries on how to set up safe, community healing spaces with displaced communities.
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To facilitate learning and support groups for Amna training participants.
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To coordinate the preparation and delivery of in person and online trainings.
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Outside of Amna’s trainings, to maintain engagement with Amna’s training participants to share and exchange learning.
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Travel to various countries to visit, train and observe partner organisations.
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To work in collaboration with all departments within Amna to achieve Amna’s objectives.
Qualifications and Experience:
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Minimum three years of experience working therapeutically with communities affected by adversities.
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Minimum three years of experience delivering therapeutically informed community programmes in emergency or acute contexts using creative tools.
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Experience working in a therapeutically informed way, e.g. working with sensitivity to the needs and experiences of the communities worked with.
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Comfortable working in English – spoken and written.
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Comfortable in designing and delivering content in Arabic.
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Confident computer skills, especially in Microsoft Office and PowerPoint.
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Able and willing to travel for work (if you have travel restrictions to some countries, please notify us in your application).
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Right to work in the country of residency.
Desirable:
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Life or work experience with refugee or/and displaced communities.
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Education or experience in psychology, social studies such as community work, social work, intercultural education, or creative healing practices.
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Therapeutic training (minimum 2 years training).
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Work experience coordinating / project management role.
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Experience in delivering trainings to groups with mixed genders, languages, cultures, ethnicities, religions, (dis)abilities.
Work Location and Environment
This role is a remote job opportunity, and open to applicants in the UK, EU, Middle East and EMEA region.
Amna offers a hybrid working environment to its employees allowing for a blend of remote and in-person work.
Please note that the nature of working environment and hybrid schedule may be adjusted as per the organisation’s evolving needs.
Remuneration Package
At Amna we are committed to attracting and retaining top talent by offering competitive compensation and benefit packages. We believe in rewarding talent and expertise at a level that corresponds with the local market conditions, ensuring that all our team members are fairly compensated for their skills and contributions.
In compliance with international standards, Amna utilizes a global payroll provider to ensure seamless and efficient compensation processes for our diverse team.
Commitment to Diversity, Equity, and Inclusion
Amna is committed to fostering a diverse and inclusive workplace where all employees are valued, respected, and empowered to contribute their unique perspectives and talents.
As an equal opportunity employer, we do not discriminate on the basis of race, religion, color, ethnicity, sex, gender, sexual orientation, age, marital status or disabilities status.
Applications are strongly encouraged from people with personal or family lived experience as refugees and displacement, especially individuals from Palestine or individuals with experience working on living in Palestine.
The client requests no contact from agencies or media sales.