Contract International Development Jobs in South East
We are seeking a passionate and committed Chief Executive Officer who will help us unite the global Prader-Willi syndrome (PWS) community to collectively find solutions to the challenges of the syndrome. Our vision is to create a world where people with PWS receive the services and supports they need to fulfil their potential and achieve their goals. PWS is a complex genetic disorder characterised by low muscle tone and failure to thrive at birth, and later evidence of short stature, intellectual disabilities, behavioural and psychiatric challenges and impaired satiety.
IPWSO is the international umbrella body for PWS associations around the world with 47 full paying country members and contacts in over 120 countries. We are committed to supporting people with PWS and their families whatever their needs and wherever they live.
What we do
We build communities between people with Prader-Willi syndrome, their families and the professionals who support them to share knowledge and expertise and improve outcomes for people with Prader-Willi syndrome and their families everywhere.
We want everyone with Prader-Willi syndrome to get equal access to diagnosis and treatment no matter where in the world they live. We want to ensure better, more consistent outcomes for people with the syndrome and their families.
We work to ensure research into the condition works for everyone and reflects the diverse experiences and environments of those living with the syndrome around the world today.
Main purpose and scope of role
Working closely with the President and the Board of Trustees, the CEO will provide strategic vision and leadership and will strive to ensure that IPWSO delivers its charitable purposes and remains successful and sustainable.
Duties and Responsibilities (to include but not limited to)
Leadership
· Strive to ensure that the charitable purposes of IPWSO are followed and that it delivers the public benefit set out in its governing document.
· Take overall responsibility for the management and administration of IPWSO.
· Provide support and information to the Board of Trustees to enable trustees to fulfil their roles and legal responsibilities.
· Pursue close cooperation with, and accountability to, IPWSO’s members.
· Act as an ambassador for IPWSO by representing IPWSO at events and networking to build new strategic relationships.
· Keep abreast of relevant new research, treatment recommendations and service developments for people with Prader-Willi syndrome.
Governance
· Strive to ensure that IPWSO has governance systems in place that enable it to consistently fulfil its legal, statutory and regulatory responsibilities.
· Maintain awareness of risks and changes in the external environment that could affect IPWSO and advise the Board of Trustees accordingly.
· Together with the President manage complaints (including from whistle-blowers) and recommend actions to the Board of Trustees
Finance and Fundraising
· Work with the Treasurer and the Finance Committee to ensure the overall financial health and sustainability of IPWSO.
· Work with the Treasurer and the Finance Committee to prepare budgets for review by the Board of Trustees and to enable IPWSO to operate within its financial means.
· Seek to ensure that appropriate financial reports are submitted to the Charity Commission and other entities as required.
· Support the work of the Fundraising Committee and strive to ensure a sustainable income from both IPWSO members and individual, corporate, philanthropic and government donors.
· Build relationships with potential donors and prepare funding proposals.
· Seek to provide high quality support to existing donors, by means including the preparation of regular reports and updates.
· Seek out and build new income streams.
Staff, Trustee and Volunteer and Committee Support
· Provide support to staff, trustees and volunteers to enable them to carry out their duties.
· Deputise for other staff members during periods of leave.
· Conduct annual reviews with staff.
· Participate in the recruitment of new staff as required.
· Provide support and advice to IPWSO committees and conference organisers.
Project Support
· Seek to ensure that all IPWSO projects are designed and implemented in accordance with IPWSO’s mission and objectives.
· Support IPWSO’s Project Managers and others who lead IPWSO projects and, if necessary, manage projects directly.
Person specification
Experience, Knowledge and Skills
Essential
Proficiency in English.
Experience of working in a leadership role in the charitable sector either as a CEO or as part of a wider Senior Management Team.
Ability to articulate a compelling vision to inspire others
Broad understanding of global development issues, geopolitical dynamics, and cultural nuances and able to take into account the diverse contexts in which IPWSO operates.
Strategic Thinking: experience of leading and or contributing towards strategic development as well as experience of organizational management and supporting change.
Collaborative approach: outstanding interpersonal and communication skills, with the ability to build and maintain positive relationships, based on mutual respect and shared goals.
Experience of managing budgets, financial planning, preparation of funding applications and report writing.
Experience of working with volunteers.
Desirable
Fluency in another language.
Experience of working in a leadership role in an international organisation within health or disability either as a CEO or as part of a wider Senior Management Team.
Knowledge / experience of PWS.
Willingness to travel internationally as needed to support IPWSO’s priorities.
An understanding of charity operations and governance structures in the UK.
Personal Attributes
Essential
Enthusiasm for IPWSO’s work and commitment to its vision, mission and values including dedication to equity, diversity, and inclusion.
Empathy for disadvantaged people.
Cultural sensitivity and respect. Confidence and ability to work well with people from different backgrounds from around the world.
Highly self-motivated and able to work on own initiative as well as part of a team.
Adaptability and flexibility. Able to navigate change and uncertainty. Able to accommodate international time zones as well as GMT for UK based staff. 20% of time may be outside of normal working hours.
Ethical leadership.
Resilience and determination.
Desirable
Desire to empower and mentor staff and foster a culture of learning, growth, and innovation.
Please submit your CV with a covering letter of no more than 2 A4 pages, describing how you meet the requirements of the role and the criteria outlined in the person specification. Include in your covering letter the names, positions, organisations, email and telephone contact of two referees, one of whom should be your current most recent employer. References will only be sought once your express permission has been granted. Please send to nmcnairney@ipwso. org. The closing date for applications is 9.00 am (UK time) on 25 October, 2024.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Here at Action For Humanity (AFH), we are looking for an Advocacy & Policy Manager to join us. You will join us on a full-time basis and in return you will receive a competitive annual salary of £40,000 to £45,000. This role is remote but based in London.
AFH is an NGO that provides aid and assistance to people affected by natural and man-made disasters. Our vision is a world of crises-resilient communities. Our mission is to mobilise and respond to emergencies and critical needs through humanitarian, development and peace-building action, helping affected communities survive, recover and build a better future.
AFH has taken a leadership role on advocacy for the ongoing conflict in Gaza and has a long history of being a thought leader on the humanitarian crisis in Syria. In order to help achieve this goal, AFH is recruiting an Advocacy & Policy Manager, where the successful candidate will report directly to the Director of Communications, manage and strengthen AFH’s advocacy campaigns, and develop and build networks to support our advocacy efforts. The Advocacy & Policy Manager will also be the focal point between the organisation and policymakers, in the UK and beyond.
The Advocacy & Policy Manager will advocate the humanitarian needs stemming from the crises in Gaza, Syria, Yemen and other contexts in which the organisation works. They will convey the voice from the ground, to various external audiences, and will build a presence there to promote the organisation’s work, which is rapidly evolving and is entering newer phases.
Your accountabilities as our Advocacy & Policy Manager will include the following:
Building external relations
- Lead on creating and executing an Advocacy strategy and relationship-building plan to ensure AFH is well connected and respected amongst key stakeholders including politicians, policy makers, governing bodies, other NGOs, etc. Regularly seek new opportunities to enhance external relations.
- Represent AFH in advocacy meetings, humanitarian coordination and other forums, conferences, events, and working groups, leading as many as possible.
- Build and maintain AFH’s relationships with influential people and authorities, including politicians and Governing bodies. Facilitate supporting regular and meaningful engagement with them.
- Build and maintain relationships with regional advocacy groups in and around Palestine, Syria, Yemen and other contexts.
- Position AFH as influential in public debates on Palestine, Syria, Yemen and other countries where AFH works, making AFH a resource for journalists and other key stakeholders covering related issues.
- Keep abreast of regional advocacy groups in and around Palestine, Syria, Yemen and other contexts.
Supporting internal stakeholders
- Guide and advise AFH’s head and field offices on advocacy issues and trends.
- Support our field offices with Advocacy capacity building and enhancing business development, partnerships, and institutional funding.
- Support the head office with enhancing business development, partnerships, and institutional funding, through targeted external stakeholder engagement and improving the technical branding of Action For Humanity in the eyes of potential partner institutions.
- Identify advocacy opportunities by working with the wider Communications and Marketing departments in the writing, editing, commissioning and disseminating of press-releases, op-eds, statements etc., to secure coverage of the organisation’s work across the media spectrum.
- Collaborate with the Marketing team to create interesting and engaging multimedia content to ensure the organisation’s marketing and brand strategies incorporates our advocacy position.
- Provide analysis to the CEO, Director of Communications and other stakeholders, including inputs and talking points for meetings, as required.
- Promote a principled approach to advocacy, policy and external relations among relevant internal stakeholders, and ensure that external messaging is evidence-based and driven by field realities.
General
- Closely monitor the evolving humanitarian and political context in the Middle East, Asia and Africa, particularly where AFH currently operates, and disseminate written and verbal updates and analysis in a timely manner to internal and external stakeholders.
- Produce high quality public and private policy and advocacy materials including letters, briefing notes, position papers, and advocacy reports.
- Build up AFH’s advocacy work in relation to domestic programmes.
- Promote the advocacy positions of the Syria Relief brand as well as the Action For Humanity brand.
What we are looking for in our Advocacy & Policy Manager:
Education
- Degree (or equivalent) in relevant field i.e., International Development, International Relations, Public Relations, Economics, Politics.
- Evidence of sector-specific continuous professional development.
Experience
- Strong experience and track record in an advocacy or similar role.
- Experience in building strong relations and networking with key staff within various UN agencies, especially I/NGO, Forums, UN, OCHA meetings and with local ones.
- Collaborating in multi-national organisational problem solving, operations in complex organisations.
- Active participation with I/NGO Forums desirable.
- Understanding of UK political and media landscape.
Skills & Attributes
- Excellent communication and presentation skills.
- Excellent analytical and interpretive ability.
- Team player with a positive, can-do attitude; comfortable with continuously changing priorities in a fast-paced environment.
- Strong IT skills (programmes such as MS Office, Outlook and PowerPoint).
- Ability to balance multiple priorities in a fast-paced environment.
- Willingness to work variable hours, occasional weekends and evenings, and to travel both nationally and internationally.
Languages
- Strong written and spoken English
- Written and spoken Arabic (desirable)
Location
- This is a remote role but the successful candidate must be in London.
Benefits of joining us include:
- A salary of £40,000 to £44,000 per year depending on experience;
- 25 days’ holiday allowance + your birthday off + bank holidays;
- Matched pension contributions;
- Remote and flexible working arrangements possible;
- Opportunities for frequent travel within and outside the UK. AFH’s Head Office is in Manchester, most activities for the role are in London, and there will be opportunities to go on international deployment/field visits, where appropriate;
- Enhanced sick, maternity/paternity pay;
- Structured annual performance development review process, which informs annual salary reviews and involves training and development provision;
- EAP which includes access to free 24/7 helpline, counselling, and legal and financial advice;
- Hundreds of discounts and special offers, for shopping, dining out, joining a gym, and more;
- Annual away days/retreats involving training, teambuilding, outdoor and social activities;
- Subsidised sports and social activities.
This would be an ideal role for an Advocacy & Policy specialist who is passionate about AFH’s causes. We are looking to appoint this role ASAP and will be reviewing applications on a rolling basis, so for the best chance of success please apply today – we would love to hear from you.
All offers of employment will be subject to satisfactory references and appropriate screening checks, which can include criminal records and terrorism finance checks. Action For Humanity also participates in the Inter-Agency Misconduct Disclosure Scheme. In line with this Scheme, we will request information from job applicants’ previous employers about any findings of sexual exploitation, sexual abuse and/or sexual harassment during employment, or incidents under investigation when the applicant left employment.
By submitting an application, the job applicant confirms their understanding of these recruitment procedures.
The client requests no contact from agencies or media sales.