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We are seeking an experienced and dynamic Fundraising Officer to join the fundraising team at the Batten Disease Family Association CIO (BDFA).
The BDFA, founded in 1998 is the only patient organisation in the UK for families affected by Batten disease, a rare and terminal neurodegenerative condition that affects children and young adults. The BDFA offers informed guidance and support to families and the professionals who work with them, as well as actively raising awareness, and promoting research into the management of Batten disease to improve patient care pathways and ultimately find a cure.
This is an exciting time to join the charity, which has grown to offer additional support services for families affected by Batten disease and to implementing a long-term strategy to develop its advocacy, education and research capabilities. Come and join our supportive team as we continue to build and develop the organisation and strengthen our financial resilience.
We’re looking for an individual who has some experience in fundraising, particularly leading on all aspects of community fundraising, developing and nurturing relationships with volunteer fundraising groups and individual supporters. The successful candidate will work under the guidance of our CEO to develop community fundraising maximising the funds raised by volunteer fundraisers and developing supporter engagement. The successful candidate will also work alongside our Trusts and Foundations Fundraising Officer to support our Trusts and Foundations income generation.
The Ideal Candidate for this role will have:
- Experience in all aspects of community fundraising including events, assisting fundraisers to develop imaginative fundraising ideas and inspiring new supporters to raise funds whilst maintaining relationships with existing supporters
- Experience in building and sustaining long-term relationships with fundraising groups and individual supporters
- Experience in managing effective and creative fundraising communications on social media and the website
- Ability to contribute to the overall Trusts and Foundations income stream, including proactively researching and identifying grant funding opportunities
- Ability to lead on creative fundraising campaigns around key events such as Batten disease awareness day and Christmas
This job requires a motivated individual who has a passion for all those within our Batten community and a strong desire to support the development and financial growth of the BDFA. The role is full time (35 hours per week) and is home based with occasional travel around the UK to meet donors and support fundraising events.
The BDFA recognises the positive value of diversity and is committed to creating a diverse and inclusive team. We encourage applications from all suitably qualified or experienced individuals, regardless of their race, gender, biological sex, disability, religion/belief, sexual orientation or age.
Salary £27k - £34k PA dependent on experience
Upload a CV and covering letter to apply
Apply by: Monday 15th December
Interviews for this role will take place on Monday 22nd December
Thank you!
About The Azaylia Foundation
The Azaylia Foundation was founded by Ashley Cain and Safiyya Vorajee in memory
of their daughter, Azaylia, who tragically passed away at just eight months old.
Childhood cancer is the leading cause of death by illness in children in the UK, yet it
receives less than 3% of cancer research funding.
Powered by a passionate community of supporters, The Azaylia Foundation is on a
mission to change this. We fund pioneering PhD research, campaign for better
awareness and funding, and provide vital support to families seeking treatment
unavailable through the NHS. We also have the Azaylia PhD Scholarship
Programme, funding vital childhood cancer research as well cultivating new talent in
childhood cancer research,
Joining us means being part of a movement that turns pain into purpose—fueling
hope, change, and brighter futures for children with cancer.
Role Overview
We are seeking an ambitious and driven Fundraising Manager to grow our income
streams and deepen impact. You will play a central role in developing and delivering
our fundraising strategy, cultivating key relationships, and securing vital funds to
power our mission.
Key Responsibilities
Fundraising & Income Generation
● Support the development and delivery of the Foundation’s fundraising
strategy.
● Build, manage, and maintain a high-quality fundraising pipeline and annual
work plan.
● Research, develop, and submit compelling funding applications to trusts,
foundations, and statutory bodies.
● Contribute to the planning and execution of our annual fundraising events and
community initiatives.
Relationship Management
● Cultivate and sustain meaningful relationships with funders, donors, and
partners.
● Provide tailored impact reports and consistent communication to supporters.
Monitoring, Reporting & Compliance
● Track and report against fundraising targets, including monthly donors and
income streams.
● Maintain accurate records, pipeline data, and activity logs.
● Produce clear, timely reports for senior leadership and trustees.
● Ensure all fundraising activity complies with regulation, best practice, and
GDPR.
Collaboration & Communications
● Work closely with the Head of Social Media and Community to align messaging
and impact storytelling.
● Support Foundation Ambassadors with campaigns and fundraising activities.
● Ensure children's voices and lived experiences remain at the heart of all
fundraising communication.
About You – Key Attributes
● Proven success in multi-channel fundraising, securing and growing significant
income.
● Experience in fundraising for a children’s or health charity (desirable).
● Skilled in partnership cultivation and stewardship of high-net-worth individuals,
foundations, and key stakeholders.
● Strong understanding of fundraising reporting, compliance, and GDPR.
● Experience in event fundraising and community-led initiatives.
● Strategic thinker with excellent organisational skills and a strong commitment
to meeting deadlines and targets.
● Passionate, empathetic, and motivated by making real change for children
and families affected by cancer.
Why Join Us?
✔ Be part of a mission-driven, heartfelt organisation creating real impact.
✔ Fully remote, flexible working.
✔ Supportive and passionate team culture.
✔ Opportunity to shape the future of childhood cancer research and support.
Together, we can make a difference to children fighting cancer. Let’s go, champ!
The client requests no contact from agencies or media sales.
Thank you!
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
Introduction
Digital Care Hub CIC (DCH) is the leading digital support organisation for adult social care providers in England. We provide practical guidance, resources, and leadership to help care services adopt and implement digital technologies safely, efficiently, and in line with regulatory expectations. As digital transformation accelerates across health and care, Digital Care Hub plays a crucial role in shaping a future where technology enhances, rather than replaces, human-centred care. As part of our continued development, we are expanding our regional delivery model to ensure greater alignment, visibility, and consistency across our support offers. The Regional Strategic Manager will play a key leadership role in this model.
About the role
The Regional Strategic Manager will act as the main point of coordination and leadership for our work across all 9 regions, ensuring local support is high quality, consistent, and strategically aligned with national goals.
You will work closely with our Local Support Organisations (LSOs), local authorities, Integrated Care Systems (ICSs), system partners and care associations to build strong regional networks, ensure insight flows between local and national levels, and embed DCH and Better Security, Better Care (BSBC) priorities.
Reporting to the Programme Director, you will be part of the national delivery team but focused on regional strategy, delivery oversight, and stakeholder engagement.
Key responsibilities
• Provide strategic oversight of all regional delivery activity, ensuring alignment with the national programme objectives.
• Act as the main point of contact for LSOs in the region, supporting them to meet their grant requirements and develop high-impact local delivery plans.
• Coordinate and facilitate regional & cross-regional networks, communities of practice, and events.
• Build and maintain strong relationships with key regional stakeholders including local authorities, ICSs, ADASS branches, and care associations.
• Lead regional reporting and insight gathering, ensuring local intelligence informs national strategy and vice versa.
• Support consistency and quality of LSO delivery across the region, sharing best practice and facilitating joint working.
• Represent DCH and BSBC at national and regional meetings, boards, and strategic forums.
• Feed into the development of regional strategies, funding bids, and improvement plans.
• Work closely with the national team to ensure strong integration of regional activity within wider programme delivery.
About you
Skills and experience
• Proven experience in a strategic or delivery leadership role within health, care, or the public sector.
• Strong understanding of adult social care and/or digital transformation within the care system.
• Demonstrated ability to manage relationships with senior stakeholders and build collaborative networks.
• Experience supporting or overseeing delivery partners or commissioned services.
• Ability to work independently while contributing to a wider team.
• Confident in using data and local insight to drive planning and improvement.
• Excellent communication skills, including verbal presentation and written reporting.
• Highly organised and adaptable, comfortable working in a fast-paced and evolving context.
• Understanding of regional policy structures, local government, or ICS and ICB governance is desirable.
Send your CV and a short covering statement outlining your interest in the role and
how your experience fits what we’re looking for via the Charity Jobs platform.
Early applications are encouraged as applications may close early if we receive a high volume of candidates.
Non Charity Employer
11 - 20
The Digital Care Hub provides free information, guidance and support to enable adult social care providers to make the most of digital technology
The client requests no contact from agencies or media sales.