Introduction
Cystic Fibrosis Trust is the charity uniting people to stop cystic fibrosis (CF). We fund vital research, improve care, speak out and race towards effective treatments for all. We won’t stop until everyone with cystic fibrosis can live without limits. Cystic fibrosis (CF) is a genetic condition which causes sticky mucus to build up in the lungs and digestive system. It affects more than 11,000 people in the UK.
In recent years, improvements in the treatments for CF have transformed the symptoms and quality of life experienced by many, but not all of the community. The enormous leap forward that has been made is both wonderful and challenging and brings new support needs.
With better health, more people with CF now want to plan careers, but need to balance this with management of their condition. Others still need support with barriers to work or help to navigate their rights at work when they need to focus on their health. This led us to create Work Forwards, a dedicated programme of career, work and employment support for the CF community.
Background about the Work Forwards Programme
Building on the foundations of our existing financial and welfare support, our Work Forwards employment programme aims to give people with CF the confidence and skills to move towards secure, fulfilling employment which fits around their health needs.
Having secured three-year funding from the National Lottery Community Fund in autumn 2022, since then the programme has been helping people affected by CF with work, employment and careers. The project’s ultimate aim is to ensure they have the finances and resources to stay as well as possible and live a long, fulfilling life.
The project employs two staff and sits within our wider support service team lead by the Head of Support and Programmes. There are a number of key deliverables for the project including one-to-one support and guidance, online sessions, information resources, and a case study library. Outcome measures are focused on improing skills and confidence and ensuring people affected by CF can navigate barriers to work and employment.
Project Brief
We are now looking to evaluate the programme and seeking a freelance/consultant with expertise in evaluating programmes.
Working closely with Cystic Fibrosis Trust throughout, the consultant will design, implement and deliver an evaluation to enable us to monitor and assess to what extent the project is achieving the programme aims and make recommendations for future delivery.
The overall aim of this work is to compile and provide us with a comprehensive, well-presented, and easy-to-read independent report to demonstrate to what extent we have met the outcomes intended throughout this project, as described in the funding proposal.
The deadline for when we need this report completed is July 2025 and which we can then submit to the National Lottery Community Fund and use this to inform the development of future funding bids.
Key Deliverables
· Quickly develop a deep understanding of our project and anticipated project outcomes.
· Work with us to quickly develop the ways in which we will evaluate how we have achieved the project outcomes, through qualitative and quantitative data collection.
· Take lead responsibility for ensuring all research data and information is collected as required, to inform the development of a comprehensive report.
· Liaise with us throughout the process to ensure the report is developed to the standard we expect.
· By July 2025, provide us with an excellent final report which tells the story of the delivery of our project, the challenges, learnings and how we have met the project outcomes.
· Suggest a suitable methodology, within timeframe and budget, but we would expect it to include;
- - Interviews with beneficiaries who have been involved in the programme.
- - A review of key documents and resources produced through the programme.
- - Interviews/focus groups with people affected by CF to identify any future needs around work and employment not covered by the programme.
- - Review and compilation of all impact and evaluation data collected through the programme.
- - Review of the successes and challenges of the programme so far, to support us to learn from these and to suggest where they may be gaps in delivery/further opportunities to help us shape our possible future work in this area.
Indicative Budget
There is budget available to deliver this project and this is up to a maximum of £6,000. This must cover all costs to complete this work, including consultant fees, and any materials and resources needed to undertake the research and data-gathering element of the project.
It is accepted that it may be the responsibility of some other providers (including ourselves) to collect and provide some of the data required.
Role Requirements
The successful person will:
· Be a suitably experienced project consultant, researcher and report-writer.
· Have knowledge of delivery of funded programmes within a charity, particularly those funded by NLCF.
· Ideally understand work and employment programmes in a charity environment.
· Ideally have lived experience of cystic fibrosis – this will be a distinct advantage.
Tender Submissions
Your proposal to undertake this work should include:
1. Details of you/your organisation, core skills, experience and competencies.
2. Case studies/examples of specific projects you have worked on, including details of two referees.
3. Details of availability to undertake work distributed across the project period and through to completion.
4. Confirmation of ability to work as an independent consultant/freelancer (e.g. Have your own office/IT equipment and the correct tax and NI status to work as a freelancer)
5. Evidence of any professional indemnity insurance/public liability insurance you have in place.
6. Details of how you would fulfil the project brief, the fees you would charge and the steps you would take to deliver the project to budget and timescale.
Selection Criteria
Proposals will be assessed according to the following criteria:
· Extent to which the tender demonstrates an understanding of and meets the brief.
· Previous experience of delivering similar briefs in a relevant field.
· Overall quality of the submission.
· Availability to deliver to timeline.
· Lived experience of cystic fibrosis.
Timeline
We expect you to work with us across a 6–8-week period as follows:
· Closing date for tender submissions – 13 March 2025
· Tender selection – week commencing 17 March 2025
· Expected project start date – 1 April 2025
· Final report delivered by – 11 July 2025
Closing date and how to submit your Tender
The closing date for submission of proposals is 5pm on 13 March 2025
The client requests no contact from agencies or media sales.