Fundraising engagement lead jobs in Edinburgh

Family Support Coordinator

Dravet Syndrome UK

Key Information

• Location: Home-based/remote,  with travel to national events throughout the year both for the Family Services and occasional travel for the wider needs of the organisation
• Salary: £28,000 - £32,000 per annum
• Hours: 40 hours per week
• Contract: Permanent
• Working Pattern: Monday-Friday, 9am-5.30pm, with occasional evenings and weekends (TOIL provided) 

About Us

Dravet Syndrome UK (DSUK) is the leading UK charity supporting people affected by Dravet Syndrome, a rare and severe form of epilepsy that impacts the whole family. Founded by parents in 2008, we provide family support, professional education and fund vital research to improve lives and create hope for the future. [Family Sup...JD v1 (1) | Word]

About the Role

We're looking for a compassionate and organised Family Support Coordinator to help deliver practical, emotional and financial support to families affected by Dravet Syndrome.

Working closely with the Head of Family Services, you'll be a key point of contact for families, supporting enquiries, coordinating grants, managing online communities, helping organise family events, and ensuring families can access the information and support they need.

This is a varied and rewarding role combining family support, community engagement, event coordination and administration. 

Key Responsibilities

Family Support

• Manage a caseload of families, providing practical and emotional support.
• Respond to enquiries and signpost families to appropriate services.
• Support newly diagnosed families, bereaved families, and those navigating transition to adulthood.
• Maintain accurate records using the charity's CRM system.

Grants & Community Support

• Coordinate family grant applications and payments.
• Moderate and support the charity's private Facebook community.
• Collect feedback and help improve family services.
• Escalate safeguarding concerns in line with policy.

Events & Engagement

• Support the delivery of the Annual Family Weekend Away and other family events.
• Assist with webinars, support programmes and educational activities.
• Build positive relationships with families and volunteers.
• Attend key family-facing events across the year. 

Administration

• Support reporting, record management and service administration.
• Ensure compliance with safeguarding, GDPR and organisational policies.
• Attend team meetings, training and charity events. 

About You

Essential

• Experience supporting children, adults and families.
• Experience supporting people with complex medical, learning or additional needs.
• Strong communication, organisational and relationship-building skills.
• Ability to provide empathetic, person-centred support.
• Experience using Microsoft Office and CRM/database systems.
• Understanding of safeguarding, confidentiality and GDPR.
• Ability to work independently and manage competing priorities.
• Willingness to travel and work occasional evenings and weekends.

Desirable

• Background in Health & Social Care, Mental Health, Community Development, Counselling or Education.
• Experience organising events or community activities.
• Knowledge of Dravet Syndrome or other neurological conditions.
• Full UK driving licence and access to a vehicle. 

Why Join Us?

• Make a meaningful difference to families affected by a rare and life-limiting condition.
• Join a supportive and flexible remote-working charity.
• Play a key role in delivering services that support hundreds of families across the UK.
• Be part of a passionate team committed to improving lives through support, education and research. 

Bowel Research UK is looking for a permanent Research and Grants Manager to coordinate and evaluate the management of the charity’s research activities. This role covers all aspects of pre- and post-award research management, impact reporting, grant finance management and governance, co-ordination of the Charity’s scientific committees and shaping external scientific communications to supporters and other stakeholders. Additionally, you will foster and maintain strong relationships with researchers, serving as the primary point of contact for engaging with the research community. 

Bowel Research UK are bringing this permanent role following time spent with an interim postholder in position to create a solid foundation and understanding of what the role needs.

This is an opportunity to work with the UK’s leading specialist bowel cancer and bowel disease research charity. Bowel Research UK believe that a cure for bowel cancer and effective treatments to mitigate, or entirely eradicate, other bowel diseases is possible – but only if vital research is funded and investment made into the scientific and medical communities today, to see the benefits tomorrow. 

Bowel Research UK are a flexible employer, for this post they are looking for someone to be comfortable with joining the team in the London office once a month. If the post holder would prefer to work more regularly from an office base, the charity has office space at Royal College of Surgeons in central London. Most team members work from here on Tuesdays and Thursdays. 

For further information and to apply please follow the guidance in the Candidate Pack to arrange a conversation about your suitability for the role and next steps.

Closing date: midnight Wednesday 22nd July

The selection process will involve a two-stage interview process.

Job Purpose 

To provide a physiotherapy service as part of a multi-disciplinary team, on a part-time basis

Key Working Relationships

Physiotherapists are self-employed contractors and report to the Clinical Lead.

Other key working relationships:

• Other physiotherapists within the team
• Other members of the services team
• Action for M.E. colleagues

Job Description

Key duties

• Respond to physiotherapy referrals
• Carry out assessments, provide advice and recommend interventions to manage the symptoms in patients with M.E./C.F.S. and related conditions, working with a whole person approach, and involving family/carers where appropriate
• Provide written reports for the person with M.E. and others involved in their care with consent of the patient
• Participate in clinical team meetings at least once a quarter (approximately 1 hour)
• Participate in quarterly physiotherapy team meetings (approximately 1 hour)

Key Tasks 

• Arrange and undertake consultations in the most appropriate manner for the patient - remotely by either telephone, Zoom or email.
• Record consultation details (date, length of consultation, charge) on Action for M.E.’s internal tracker for invoicing purposes
• Consider choices and in collaboration with the person with M.E., agree attainable and realistic goals, however small, during assessment
• Offer a selection of gentle progressive interventions to facilitate an improvement in their quality of life
• Offer follow-up consultations with patients by phone, Zoom or email
• Raise any safeguarding concerns to appropriate colleagues.

Working Practices  

• Seek to reduce fear associated with the illness and to create an environment for healing
• Offer clear and consistent information and advice to people with M.E. and their family/carers
• Work within Action for M.E. policies ensuring privacy and dignity.

Person Specification

Qualifications/Key requirements

• Must be registered HCPC
• Must be registered with Chartered Society of Physiotherapy or other professional body which can provide PLI
• Up to date professional indemnity insurance
• Safeguarding training to Level 3
• Eligible to work in the UK

Experience and Knowledge

May be varied but would typically include:

• Several years of post-graduate work experience in different aspects of the profession
• Familiarity with the NICE Guideline for the management of M.E. (2021)
• Experience in the management of long-term conditions
• Experience in the management of chronic pain and its impact on the quality of life
• Working in a multi-disciplinary team

Skills and Behaviours

• Excellent communication skills, in both active listening and careful word usage
• Proficient with Microsoft Office (including Word, Excel, Outlook, Teams) and the ability to quickly learn relevant bespoke software systems

Attitudes

• Understanding that ME/CFS is a complex biomedical condition
• A desire to help people holistically to manage their ME/CFS
• A willingness to think outside established protocols