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The BDFA is seeking a new Volunteer Treasurer/Trustee to join our passionate and dedicated Board.
As a trustee, you will play a key role in shaping the strategic direction of the BDFA, ensuring strong governance, and helping to improve the lives of children, young people, and families affected by Batten disease across the UK.
The overall role of Treasurer is to maintain an overview of the organisation’s affairs, ensure its financial viability and ensure that proper financial records and procedures are maintained.
As our Treasurer, you will:
- Oversee, approve and present budgets, accounts and financial statements
- Assure that the financial resources of the organisation meet its present and future needs
- Prepare and present financial reports to the Board
- Ensure that appropriate accounting procedures and controls are in place
- Have oversight of and give guidance to BDFA Accounting & Financial Administration Officer
- Attend board meetings
- Present financial overview at the AGM
Ideal Background:
Fully qualified chartered accountant/financial qualifications and experience. Some experience of charity finance and fundraising.
We welcome suitably qualified applicants who share our commitment to inclusion, integrity, and advocacy, and who are willing to contribute their time, skills, and experience to drive meaningful change.
Trustees meet regularly (virtually and occasionally in person) and contribute to board discussions, sub-committees, and strategic projects, including attending our in person meeting once a year.
This is a voluntary role, but the personal and social impact is immeasurable.
About us
Batten disease is a very rare genetic disorder that affects the brain and nervous system. Symptoms sometimes begin in infancy and sometimes later in childhood, after apparently normal early development. Occasionally it may start in adulthood. In individuals suffering from Batten disease, nervous system function steadily declines, causing a wide variety of neurologic problems, including loss of vision and seizures. The life expectancy of a child born with Batten disease can vary, depending on the form of the disease and the age of onset. Some children die in early childhood, while others may be able to live into their teens or twenties.
The BDFA was registered as a charity in 2001 and our mission is “to enable children and adults who are affected by Batten disease to live life to the full and to provide families with the care and support they need so that they do not walk this path alone.” The BDFA offers informed guidance and support to families and the professionals who work with them, as well as actively raising awareness, and promoting research into the management of Batten disease to improve patient care pathways and ultimately find a cure.
Work Location: Remote
The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Rights & Security International (RSI) is offering this exciting opportunity for new volunteer Trustees to join our Board.
About us
We are a small, expert charity dedicated to promoting the freedoms of expression, belief and identity, while stopping governments from treating people as ‘terrorism’ threats simply because of who they are.
We challenge religious, racial and gender bias in national security programmes, promote justice and transparency, and ensure that the voices of communities facing discrimination are heard.
We were founded by a group of women activists in Northern Ireland in 1990 to seek justice for rights violations committed as part of the conflict in the region, and now work throughout the UK and internationally.
Today, we focus especially on ending Islamophobia and racism in counter-terrorism programmes, stopping governments from treating migrants and asylum-seekers as ‘security’ threats unfairly, and upholding the rights of peaceful protesters.
Globally, we work primarily to support civil society and expose harmful ‘security’ or ‘emergency’ laws in several parts of Latin America and East Africa; our project on environmental human rights defenders also brings together activists from Southeast Asia. We raise the profile of rights violations and help develop new narratives and strategies.
We have a large impact for our size, publishing groundbreaking investigations and carrying out effective advocacy in Westminster, at the UN and elsewhere.
About you
The successful candidates will bring a dedication to upholding human rights and equality, especially in the counter-terrorism and national security contexts. You should have a strong dedication to human rights principles and an understanding that human rights are for everyone.
You should have experience in a field that is relevant to charity work, such as community organising/grassroots activism, law, communications, advocacy, accounting, management or supporting human rights defenders.
We are especially interested in applications from candidates with lived experience of:
· Migration to, or seeking asylum in, the UK; OR
· Promoting people’s fundamental rights in El Salvador, Mexico, Honduras, Ecuador, Colombia, Peru or Chile.
About the Trustee role
As a Trustee, you will have an active role in shaping our organisation and ensuring that we are well run. We welcome enthusiastic, active governance and a curiosity about why and how we do our work. You would have an impact by shaping our strategies, helping us build our networks and (as appropriate) collaborating directly with staff. We work from the grassroots level (advising migrants) to the international one (drawing UN attention to rights violations), so your impact as a Trustee will ultimately make a difference to both individual lives and broader systems.
Trustees are expected to attend remote Board meetings approximately six times per year.
Trustees who live in/near the UK are also expected to attend one annual in-person ‘away day’ in London.
We are looking for Trustees who will enthusiastically promote RSI, including to potential donors.
All Trustee roles are unpaid, although reasonable expenses arising due to the role will be reimbursed.
Application Details: If you are interested in this volunteer role, please send a statement of interest (no more than two pages) and your CV through Charity Job.
RSI strives to be diverse, equitable and inclusive. We treat all staff, trustees and interns like team members and encourage everyone to bring their full selves to our work. We welcome applications from candidates from groups that have historically been underrepresented in the human rights, legal or policy fields, and/or who are from communities that have been directly impacted by the issues we address. All applications are considered on an equal-opportunity basis.
By submitting your application, you consent to our processing and retention of your personal data to the extent, and for the time period, necessary to consider the application. We will keep your application on file for no more than one year.
The client requests no contact from agencies or media sales.