Chair of trustee board volunteer volunteer roles in Edinburgh
Help safeguard our future: Join BBS UK as our Treasurer
Bardet-Biedl Syndrome UK (BBS UK) is seeking a new Treasurer to join our Board of Trustees and play a key role in ensuring the charity remains financially strong, sustainable, and well governed.
Bardet-Biedl syndrome (BBS) is a rare, complex genetic condition that causes blindness, learning disabilities, obesity, and a range of additional health challenges. BBS UK is the only UK charity dedicated to supporting individuals and families affected by BBS.
We provide advocacy services, NHS clinic support, publications, and community events that help people navigate life with BBS. Each year, we support over 700 individuals, working alongside a small team of dedicated part-time staff and committed volunteers.
It’s an exciting time to join our charity. We are looking to strengthen our governance and build on our financial foundations to support future growth and impact.
The role
As Treasurer, you will oversee the financial governance of BBS UK, working closely with the Board of Trustees, Operations Manager, and external accountant.
This is a strategic oversight role, not a hands-on bookkeeping position. Day-to-day financial administration is carried out by staff; the Treasurer provides assurance, guidance, and clarity to support good decision-making.
Key responsibilities include:
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Maintaining a strategic overview of the charity’s financial health
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Presenting clear summaries of financial information at Board meetings
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Advising Trustees on the financial implications of plans and decisions
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Overseeing the annual budget and supporting longer-term financial planning
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Ensuring appropriate financial controls and procedures are in place
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Supporting the preparation of annual accounts and liaison with the Independent Examiner
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Helping ensure appropriate reserves are maintained in line with policy
The Board of Trustees retains collective responsibility for the charity’s finances.
We’re looking for someone with:
Essential:
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Experience in finance, accounting, bookkeeping, or financial oversight
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Confidence interpreting financial information and explaining it clearly to non-financial colleagues
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Understanding of financial controls and good governance
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Ability to think strategically and identify financial risks
Desirable:
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Experience in a charity or not-for-profit setting
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Understanding of restricted and unrestricted funds
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Experience working with budgets or management accounts
We particularly welcome applications from people with lived experience of BBS or a connection to the BBS community, though this is not essential.
As a BBS UK Trustee, you will have:
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Induction, training, and ongoing support
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Reasonable expenses reimbursed
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Opportunities to develop new skills and contribute at a strategic level
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The chance to make a meaningful difference to a rare disease community
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Opportunities to collaborate with dedicated trustees, staff, and partners
Time commitment
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Attendance at four Board meetings per year (online, approximately 3 hours each)
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Reviewing financial information monthly or quarterly
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Additional input around budget setting and year-end accounts
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Attendance at our annual conference weekend (in person; expenses covered)
If you would like an informal conversation about the role before applying, we would be very happy to arrange a chat with our Chair.
BBS UK is committed to equality, diversity and inclusion, and we welcome applications from people of all backgrounds who share our values and want to support our community.
By applying for this role you confirm that you are willing and eligible to act as a trustee of BBS UK, that you understand the charity’s purposes and governing document, and that you are not disqualified from acting as a trustee under charity law, including due to relevant unspent convictions, insolvency restrictions, regulatory removal or disqualification, director disqualified from acting as a trustee under charity law, including due to relevant unspent convictions, insolvency restrictions, regulatory removal or disqualification, director disqualification, or other legal prohibitions.
Registered Charity
6 - 10
We support and empower our community, champion wellbeing, and raise awareness, ensuring understanding, support, and hope for all affected.
The client requests no contact from agencies or media sales.
Thank you!
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Harry’s HAT is a UK-based charity focusing on paediatric hydrocephalus.
Our mission is to make life better for children and their families who are affected by hydrocephalus. We work towards this through:
1. Awareness: delivering workshops and training to help people understand paediatric hydrocephalus.
2. Research: supporting research and funding training for professionals in health, social care and related fields.
3. Signposting and support: helping families find organisations that can offer advice, guidance and peer support.
4. Campaigning for early diagnosis of the condition.
We are now recruiting a Governance Trustee to strengthen our Board and help ensure our governance framework remains robust as the charity grows.
The Governance Trustee will play a key role in supporting good oversight, strong policy development and effective decision-making across the organisation.
Key responsibilities of the role:
• Supporting the Board in maintaining strong and effective governance.
• Helping review and develop the charity’s policy framework, including safeguarding, governance, finance and operational policies.
• Ensuring policies are reviewed regularly, compliant with current legislation and embedded in day-to-day practice.
• Working closely with fellow Trustees and the CEO to ensure decisions reflect our mission, vision and values.
• Contributing to the work of the Fundraising and Risk Group, ensuring governance considerations inform the group’s discussions.
Attending and actively participating in:
• Six Board meetings per year (usually held on the third Sunday of every other month from 18:00–19:30 via Teams).
• Quarterly Fundraising and Risk Group meetings (1.5 hours, evening).
• Two 1-2-1 meetings per year with the Chair of Trustees.
• The charity’s AGM and any additional meetings or events as needed • Providing occasional input on matters raised by the CEO, Trustees, staff and volunteers.
• Acting as an ambassador for Harry’s HAT and representing the charity with professionalism and warmth.
#trustee #governance
Registered Charity
11 - 20
We’re a small, family-led charity dedicated to improving life for children and young people with hydrocephalus.
The client requests no contact from agencies or media sales.
Thank you!
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
We are looking for a finance professional to join our engaged and friendly board as Treasurer, with specific oversight of the charity’s financial management. While day-to-day financial administration is carried out by employees or external providers, the Treasurer works closely with them and the Board to ensure sound financial governance. The Treasurer provides financial leadership, helps trustees understand the organisation’s finances, and ensures that the charity meets its financial and statutory obligations.
You will have a qualification in Financial Management, Accounting, or Audit, and a strong understanding of financial management in the voluntary or business sectors. Previous charity experience is not necessary, but a willingness to undertake training is essential (usually one day).
You will have the ability to communicate financial information clearly to those without financial expertise and be a strategic thinker, with the ability to balance financial scrutiny with broader trustee responsibilities.
Our board meet once a month (either virtually or in person in London) for around 90 minutes. We aim to have strategy days twice a year. You will meet with the CEO and Finance Manager once a month, and be available for ad hoc emails, advice. Trustees are usually appointed for a three-year term, which can usually be extended.
We will provide access to training (typically one day) if you do not have direct experience in charity finance.
You will also bring a commitment to the values, aims, and objectives of the charity, and a desire to help children and young people who have experienced grief.
Registered Charity
1 - 5
Our mission is to provide early intervention to help young people everywhere feel less alone when their world is turned upside down.
The client requests no contact from agencies or media sales.
Thank you!
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
As our Volunteer Treasurer, you’ll play a vital strategic role in ensuring PEDS can continue to grow, remain sustainable, and reach more people affected by eating disorders.
About PEDS
Personalised Eating Disorder Support (PEDS) is the UK’s first and only nurse-led eating disorder charity. We provide early intervention, personalised support, training and advocacy for individuals, families and professionals. Demand for our services has grown rapidly, and strong financial governance is critical to helping us respond safely and sustainably.
The Role
We are seeking a committed and values-driven Volunteer Treasurer to join our Board of Trustees. This is a key governance role, offering the opportunity to use your financial skills to support a high-impact charity at an exciting stage of development.
Working closely with the Chair, CEO, Service Manager and Board, you will provide oversight of the charity’s financial health, help guide strategic decision-making, and ensure appropriate controls and reporting are in place.
Key Responsibilities
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Oversee the financial affairs of the charity and ensure they are conducted responsibly and transparently
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Support the monitoring of budgets, forecasts and financial plans
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Present clear financial reports to the Board, highlighting risks, opportunities and trends
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Ensure appropriate financial controls, policies and procedures are in place
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Liaise with independent examiners/auditors and support the annual accounts process
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Provide strategic input on sustainability, growth, funding and reserves
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Act as a key advisor to the Board on financial matters
The client requests no contact from agencies or media sales.
Thank you!
Are you passionate about building a more inclusive, sustainable and resilient economy? Are you looking for a meaningful way to use your finance expertise?
ECU is a small, dynamic non-profit working to transform the economy so that everyone has the freedom and security to live a good life.
We are now recruiting for ECU’s first Treasurer, who will lead at board level on monitoring ECU’s financial performance and sustainability, ensuring that we have robust financial policies and processes in place, and supporting other board members to fulfil their collective responsibilities around finance.
This is an exciting time to join ECU. We have an ambitious vision for change, a strong analysis of the opportunities and barriers to progress, and a clear view of our role in building a better economy. Our board is committed, collaborative and inclusive, with a strong understanding of its role and remit, and a culture of open dialogue. Our work is challenging, fascinating, and fulfilling – and, with rising levels of inequality, an unfolding climate emergency, overstretched public services and a growing concentration of corporate power, it couldn’t be more important.
The client requests no contact from agencies or media sales.
Thank you!
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Are you passionate about building a more inclusive, sustainable and resilient economy? Are you looking for a meaningful way to use your finance expertise? ECU is a small, dynamic non-profit working to transform the economy. Join us!
What will you be doing?
In addition to the responsibilities of all board members, the Treasurer will:
- Support the Board to review and monitor ECU’s financial performance and sustainability
- Ensure the Board receives timely, accessible and accurate financial information
- Support the team to develop and maintain robust and proportionate financial policies, processes and risk management systems
What are we looking for?
- Commitment to ECU’s mission and values
- Commitment to the legal duties and responsibilities
- Financial management experience, policies, risk
- Qualifications
- Able to interpret, interrogate and communicate financial information
- Work as part of a diverse team, and devote the time
Desirable - treasurer experience
What difference will you make?
We have an ambitious vision for change, a strong analysis of the opportunities and barriers to progress, and a clear view of our role in building a better economy. Our board is committed, collaborative and inclusive, with a strong understanding of its role and remit, and a culture of open dialogue.
Before you apply
- Your interest in this role and what you could bring to it
- What would you want to learn and gain?
Interview 25 Feb in London (expenses paid)