Help safeguard our future: Join BBS UK as our Treasurer
Bardet-Biedl Syndrome UK (BBS UK) is seeking a new Treasurer to join our Board of Trustees and play a key role in ensuring the charity remains financially strong, sustainable, and well governed.
Bardet-Biedl syndrome (BBS) is a rare, complex genetic condition that causes blindness, learning disabilities, obesity, and a range of additional health challenges. BBS UK is the only UK charity dedicated to supporting individuals and families affected by BBS.
We provide advocacy services, NHS clinic support, publications, and community events that help people navigate life with BBS. Each year, we support over 700 individuals, working alongside a small team of dedicated part-time staff and committed volunteers.
It’s an exciting time to join our charity. We are looking to strengthen our governance and build on our financial foundations to support future growth and impact.
The role
As Treasurer, you will oversee the financial governance of BBS UK, working closely with the Board of Trustees, Operations Manager, and external accountant.
This is a strategic oversight role, not a hands-on bookkeeping position. Day-to-day financial administration is carried out by staff; the Treasurer provides assurance, guidance, and clarity to support good decision-making.
Key responsibilities include:
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Maintaining a strategic overview of the charity’s financial health
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Presenting clear summaries of financial information at Board meetings
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Advising Trustees on the financial implications of plans and decisions
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Overseeing the annual budget and supporting longer-term financial planning
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Ensuring appropriate financial controls and procedures are in place
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Supporting the preparation of annual accounts and liaison with the Independent Examiner
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Helping ensure appropriate reserves are maintained in line with policy
The Board of Trustees retains collective responsibility for the charity’s finances.
We’re looking for someone with:
Essential:
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Experience in finance, accounting, bookkeeping, or financial oversight
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Confidence interpreting financial information and explaining it clearly to non-financial colleagues
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Understanding of financial controls and good governance
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Ability to think strategically and identify financial risks
Desirable:
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Experience in a charity or not-for-profit setting
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Understanding of restricted and unrestricted funds
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Experience working with budgets or management accounts
We particularly welcome applications from people with lived experience of BBS or a connection to the BBS community, though this is not essential.
As a BBS UK Trustee, you will have:
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Induction, training, and ongoing support
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Reasonable expenses reimbursed
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Opportunities to develop new skills and contribute at a strategic level
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The chance to make a meaningful difference to a rare disease community
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Opportunities to collaborate with dedicated trustees, staff, and partners
Time commitment
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Attendance at four Board meetings per year (online, approximately 3 hours each)
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Reviewing financial information monthly or quarterly
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Additional input around budget setting and year-end accounts
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Attendance at our annual conference weekend (in person; expenses covered)
If you would like an informal conversation about the role before applying, we would be very happy to arrange a chat with our Chair.
BBS UK is committed to equality, diversity and inclusion, and we welcome applications from people of all backgrounds who share our values and want to support our community.
By applying for this role you confirm that you are willing and eligible to act as a trustee of BBS UK, that you understand the charity’s purposes and governing document, and that you are not disqualified from acting as a trustee under charity law, including due to relevant unspent convictions, insolvency restrictions, regulatory removal or disqualification, director disqualified from acting as a trustee under charity law, including due to relevant unspent convictions, insolvency restrictions, regulatory removal or disqualification, director disqualification, or other legal prohibitions.
Registered Charity
6 - 10
We support and empower our community, champion wellbeing, and raise awareness, ensuring understanding, support, and hope for all affected.
The client requests no contact from agencies or media sales.
Thank you!
We are looking for someone who shares our vision of shaping a recognised, valued and inclusive sport and physical activity sector that everyone can be a part of, and who is committed to the highest levels of governance, risk management and assurance.
The Audit and Probity Committee reports directly to CIMSPA’s Board of Trustees and is a crucial part of our governance structure, overseeing our risk landscape. By ensuring that risk is adequately managed and that the organisation is governed with integrity, the committee guides CIMSPA’s strategic decision-making processes. Alongside this, the committee provides oversight, challenge and scrutiny across a range of areas, including our internal controls and our financial performance and management.
Specialisms
Based on the committee’ annual skills review, we have identified the following specialisms as a priority for recruitment:
• Government and policy-making
• Legal and regulatory
Therefore we are seeking to appoint a committee member with significant experience in at least one of these areas.
Core Skills
We also expect all committee members to have significant experience in one or more of the following:
• Finance
• Audit and risk
• Governance and compliance
• Our system interventions (as detailed in our strategy)
• Business and commercial
• Digital
Please note - an in-depth knowledge of the sport and physical activity sector is not essential.
Key responsibilities include but are not limited to:
- Ensuring that the committee fulfils its purpose as stated in its Terms of Reference.
- Ensuring that the committee complies with CIMSPA’s Charter and Statutes, charity law, company law and all other relevant legislation/regulations as they relate to the committee.
- Managing CIMSPA’s resources responsibly and honestly, with a duty of prudence.
- Working in partnership with CIMSPA’s CEO or senior leadership team to ensure the strategic aims of the organisation are achieved as they relate to the committee, maintaining a management and oversight role.
- Ensuring that the committee is accountable.
Closing date for applications: Monday 2nd March 2026 at 9am
Provisional date for virtual interviews: Monday 16th March 2026
Registered Charity
51 - 100
Shaping a recognised, valued and inclusive sport and physical activity sector that everyone can be a part of
The client requests no contact from agencies or media sales.