Trustee With Fundraising Experience Volunteer Roles

Reports to: Board of Trustees
Direct Reports: CEO
Commitment: Approximately 2-4 days per month throughout the year.
Remuneration: The role of Chair is voluntary, although expenses for travel may be claimed.

Overview

Charity Purpose

• Raise funds for research into the cause, prevention and management of dementia.
• Allocate funding to university research project meeting the highest academics standards.
• Raising awareness of dementia.

Objective

• Holds the Executive team and the Board to account to:
  - remain focussed solely on the BRACE stated purpose
  - remain compliant with all English and Welsh laws and the regulations of the Charity Commission.
• Support the Chief Executive in ensuring both the Board members and Executive team work closely together to achieve the agreed strategic objectives.
• Act (in partnership with the Chief Executive) as an ambassador and the public face of BRACE.

Charity Structure

• BRACE the charity has a sole Trustee “BRACE Trustee Limited”. All members of the Board are Directors of BRACE Trustee Limited and act as Trustees of BRACE. There are up to 15 directors of BRACE Trustee Limited who for reasons of clarity are called Trustees.
• The Chair and Trustees are usually appointed for a fixed term of 4 years which can be renewed once, enabling Trustees to serve for a maximum continuous term of 8 years.

Meetings

• Board meetings are held 4 times a year plus 1 awayday. Each meeting is +/- 4 hours.
• There are currently 3 sub-committees of the Board (Scientific Advisory Committee [SAC], Finance and HR). The 3 sub-committees meet no more than one month before the board meetings either in person or on Zoom. SAC reviews applications for grants and makes recommendations to the Board for approval.
• Board Meetings are generally held in person in the Bristol area, online or hybrid meetings are not encouraged but can be facilitated.

How to Apply

If you would like to know more about the role, have an informal discussion or apply, please contact:

Chair of Trustees, Jane Dare

CEO, Chris Williams

Together we will defeat dementia.

Sutton Mental Health Foundation was established as a charity in 1998. Its aim is to support individuals experiencing serious mental health issues in the London Borough of Sutton. We aim to keep such individuals well and active helping them to have a voice in the provision of mental health care in the Borough.  Our vision is to provide a community in Sutton which values mental wellbeing and understands how to respond positively to individuals’ anxiety and distress.  The Foundation works together to promote mental wellbeing resilience and recovery from mental distress.We provide nonclinical support through our Intentional Peer Support programme together with a Day Service and a Crisis Cafe at our centre in Belmont. We receive funding mainly from the NHS and the London Borough of Sutton although we are part of the Voluntary Sector. 

We are seeking to add to the expertise of our experienced, professional Board of Trustees all of whom are volunteers.  All our Trustees require excellent communication skills, the ability to work effectively as part of a team, strategic vision and good independent judgement. Although not limited to, we would particularly value the experience and skills in the following areas : 

• Company Secretary/Legal Experience 
• Fundraising in the following areas – Grant, Corporate and Public 
• Marketing 

Lived or shared experience of mental health – desirable. 

Inclusion is one of our values and we are looking for diversity in the makeup of our Board. We particularly welcome applications from underrepresented communities.

The Board of Trustees meets every six weeks, in the evening at 7 p.m. for approximately 2 hours in Sutton.  Sometimes our Board meetings are on-line.

Wanstead and Woodford Migrant Support is recruiting passionate

People to join its Team

If you share our belief that everyone, no matter where they are from or what their background is, should be treated with dignity and respect and have equal opportunity to achieve their potential, we want to hear from you.

About us

Motivated by Christian faith, Wanstead and Woodford Migrant Support (WWMS) is a small charity in North East London that provides free immigration advice and advocacy for people seeking asylum, refugees and other vulnerable migrants.

Many of the people that we support have experienced insecure immigration status, homelessness or risk of homelessness, poor physical and/or mental health, difficulties finding employment and money issues. We are currently developing our provision to include more holistic support for those who access our services.

To find out more about our work, please visit our website.

Skills and experience

We are looking for passionate people who will help us to build a vibrant board, and who:

· are able to work effectively as a team and participate at the heart of decision making

· have lived experience of the issues our clients face, or have worked with people experiencing one or more of these issues

· will actively seek and promote equal opportunity for migrants

We would welcome applications from someone who could support us with one or more of our current priorities:

· to identify suitable funders and make applications; and develop a fundraising strategy that will make our work more sustainable

· to recruit a paid volunteer coordinator; and recruit more volunteers to productive and fulfilling positions

About the role

This is a voluntary position.  Previous experience as a trustee is not necessary as training will be provided.  We welcome applications from all ages and backgrounds.

We are looking for people who have time to commit to the organisation. Volunteer trustees are expected to prepare for and attend our regular board meetings, that are held four times per year. We also ask that contribute to other meetings and projects when you can.

To find out more about what it means to be a trustee, see: ‘The essential trustee’. 

What WWMS will provide you

· the chance to make a real difference to the lives of those that we support

· induction and buddy with another experienced trustee

· payment of expenses

· training and networking opportunities with like-minded organisations

· experience in making strategic decisions and developing skills in organisational manage   

Could you be Rosa’s new Chair? Rosa is the UK’s only grant making fund dedicated to supporting women’s and girls’ organisations helping to create a society in which women and girls are safe, healthy and equal at work, at home and in public life. Over the last six years, our organisation has gone from strength to strength: growing our staff team and Board to fulfil our vision of a society in which women and girls are safe, healthy and have equal opportunities at work, at home and in public life.

We are looking for a Chair who shares our ambition to ensure adequate and consistent funding for organisations that support women and girls. Our Board is comprised of twelve dedicated and skilled Trustees with a range expertise and backgrounds and we are now seeking a new passionate and committed Chair.

Founded in 2008, our work focuses on the key issues affecting women’s and girls’ lives including violence and sexual abuse, reproductive rights and health, poverty and economic inequality and mental health and recognises the connections between them. We have channelled funding to small charities and organisations working in the most deprived areas of the UK and responded to the specific challenges faced by Black and minoritised led women’s and girls’ organisations.

This is an exciting time to join the organisation. We are currently working on our new strategy which will begin in 2025. This strategy aims to meet the evolving needs of the UK women’s and girls’ sector, leveraging our influence for its benefit and attracting diverse funders to invest in the sector.

We are proud of our strong partnerships with funders and investors and with women’s and girls’ organisations. We have a dynamic Chief Executive who leads a small, professional team to develop and deliver targeted programmes to meet the needs of the women and girls’ sector across these issues and across the UK.

We are particularly keen on hearing from those with experience as a Chair or Committee Chair, possessing strong leadership skills, and the ability to build trust, drive governance, and guide strategic planning and stakeholder engagement optimally in a charitable, non-profit organisation, public body, or equivalent organisation.

Rosa takes its commitment to equality, diversity, and inclusion extremely seriously, recognising the value that this adds to our success.  Rosa reaps the benefits of having a diverse board and welcomes applications from people of all backgrounds and life experiences. We are therefore particularly keen to hear from people from across the UK, people with a variety of educational backgrounds and experiences, people from Black and Asian communities and other racially minoritised ethnic groups, and disabled people.

It is estimated that the role will require the equivalent of approximately forty days per annum, (averaged out over the course of the year). Our board meetings (three online and one in person) are held quarterly in the early evenings. The Chair is also invited to join Board Committees.

The role is unremunerated, but we will reimburse all reasonable expenses.

One In Four is looking for a new treasurer. We are a charity providing specialist support for survivors of sexual abuse, domestic abuse or violence in childhood or as adults.

Who we are

One in Four is one of the UK’s leading counselling support charities, with over 24 years’ experience of specialising in the long-term recovery support for adults and children who have a lived experience and survived sexual abuse and violence. We provide professional training for those working with survivors, advocacy and education of the public in the nature of sexual abuse and its effect on those who have been subject to it.

The role

Your role as treasurer will be to

– Monitor the financial standing of the charity and report to the Board regarding cash-flow forecasting, income streams, out-going expenses and the overarching strategic management of the organisation’s financial resources.

– Oversee the charity’s financial risk-management process and report financial health to the Board of Trustees at regular intervals.

– Act as a counter signatory for on-line payments and applications to funders, and ensure that annual accounts are submitted to all relevant regulators in a timely fashion.

– Liaise with external auditors on financial issues and ensure that the organisation’s finances are responsibly managed and invested for the betterment of the organisation’s work and for the beneficiaries it serves.

Qualities of a Treasurer

Essential

• Qualified accountant with demonstrated commercial awareness and knowledge.
• Knowledge of charity SORP and impending changes.
• Competent use of IT skills.
• Proven ability to communicate and explain financial information to members of the Board and other stakeholders.
• Analytical and evaluation skills, demonstrating good judgement.
• Understanding and acceptance of the legal duties, responsibilities and liabilities of trusteeship.
• Good communication and leadership skills

Desirable

• Demonstrated knowledge and experience of charity fundraising and finance practices.
• Dedicated to the organisation’s cause and objectives and willing to act as the charity’s ambassador to external bodies, charities and companies.
• Skills and experience in one or more areas of non-executive governance and management, e.g. strategic planning, business management, financial/accountancy, understanding of HR issues, experience of Trusts or other grant-giving bodies, particularly fundraising and legal knowledge.
• A team-oriented approach to problem-solving and management.

Are you a qualified accountant with a professional accounting background and could use your skills to help inspire young people to believe in a brighter future, living through and beyond cancer? The Ellen MacArthur Cancer Trust is recruiting for a Trustee (Treasurer) and wants to hear what you could offer. 

You will support our Board of Trustees, Youth Advisory Group, Chief Executive Officer and Leadership Team in achieving our strategic Ambitions. You will join our 10-strong Board of Trustees, responsible for keeping the charity on track to make sure the best outcomes for young people are always delivered. 

The full Board meets four times a year with five committees (Finance and Investment; Governance; Fundraising; HR and Personnel; and Equity, Diversity, Inclusion and Belonging) overseeing and ensuring the ongoing impartial governance of the Ellen MacArthur Cancer Trust. Meetings are usually held in London or Southampton (travel expenses can be reimbursed) and the option to join digitally is always available. Some support outside of meetings is required, and we ask Trustees to commit to approximately 1/2 a day per month. With this role’s Treasurer responsibilities, additional support to the CEO and Bookkeeper will be required around the annual audit (usually March-June). The role is unpaid. 

This is a fantastic opportunity to help steer the Ellen MacArthur Cancer Trust towards our aim to be even more accessible and inclusive to all young people who have a cancer diagnosis in the UK and to ensure every young person experiences belonging and improved mental wellbeing with us. 

COULD THIS ROLE BE PERFECT FOR YOU?
Are you passionate about making a difference to the lives of young people who are living through and beyond cancer and comfortable making decisions that determine the course the charity takes? An interest in or experience of sailing is not necessary. 

As Treasurer, you will have a high-level involvement in supporting the Chief Executive Officer and Bookkeeper with the preparation of the annual accounts and audit. 

In addition, you will have…

• Responsibility to represent and present the Ellen MacArthur Cancer Trust in a positive way at all times.
• An understanding and acceptance of the legal duties, responsibilities and liabilities of Trusteeship.
• The ability to work cooperatively as a member of a remote team.
• Sound, independent judgement.
• Strategic vision.
• Integrity.

Location: Our Trustees are based around the country with meetings usually taking place in London or Southampton, however an option to join digitally is always available.

Duration: Our Trustees serve a three-year term, with option to stand for re-election if they wish.

Application closing date: Friday 27th September 2024

For full details of the role please take a look at our Recruitment Pack

Closing Date: 10th October

Term: 3 years per term with 2 terms expected – maximum 3 terms

Application Process: Please ensure you apply with your most updated CV and a supporting statement on why you believe you would be the most suitable individual to join our Trustees. 

Interviews:Week of 21st October

My Name’5 Doddie Foundation was set up by late rugby legend Doddie Weir, who was diagnosed with Motor Neuron Disease (MND) in 2017. A devastating disease with no effective treatments and no cure, each of us have a lifetime risk of developing MND of 1:300. The condition takes the life of one third within a year of diagnosis and half within two years. 

The Foundation has a single, clear vision: a world free of MND. Funding research lies at the heart of everything we do; it’s what allows world-leading experts to investigate potential drugs, expedite new treatments and, fundamentally, work towards finding a cure for this disease. In April 2023, we launched our ambitious new research strategy “Catalysing a Cure”, which outlines our continued commitment to our vision and to all the people affected by MND.

Trustees

We have an exciting voluntary opportunity to bring in new Trustees to join the board and we are keen to hear from candidates who can bring high level experience, skills and expertise to support the delivery of our ambitious plans.

As a Trustee, you will be taking on a highly valued and critical role at the Foundation, which will include setting and monitoring progress against our strategic vision; working with our Executive team; and acting as a high-level ambassador for our work.

What we are looking for

To complement the existing skills and knowledge on our Board, particularly as current members conclude their terms, we are looking for people who share our vision and could bring their expertise of one or more of the following areas:

●Fundraising, income generation or philanthropy

●Communications / Media / PR / Social Media

●Research and innovation/drug discovery and development

●Finance

Board meetings are typically held every quarter either in person or online.

In this, our fifteenth year of working with communities across Kent and Medway to bring enriching arts experiences to people living with dementia and their supporters, we are excited to extend and strengthen the ways in which people with dementia are involved in the running of Bright Shadow. As part of this mission, and as we continue to build upon and develop our ambitious work, we are seeking a new Chair of Trustees to join our existing board alongside a small number of new trustees including those living with dementia. 

In conducting a wide search, we're hoping there will be people who put themselves forward that we may never otherwise have been in touch with. So, if you don't see yourself represented here please do put yourself forward; this is in no way an exhaustive list. And if you are new to being a trustee, don't worry, training and support will be provided.

We are keen to hear from people with lived experience of dementia, whilst also recognising that other life experiences may give you insights and understanding that could help the organisation to develop.

• Do you have experience of working in or supporting, larger charity structures, the health and social care sector, or fundraising and philanthropy?
• Are you an artist or arts sector leader?
• Are you living with dementia, or supporting someone with a dementia diagnosis?
• Are you a disabled person and/or someone who in other ways has rights under the Equalities Act 2010?

In also conducting our search for a Chair alongside new trustees, we are also seeking someone who can is interested in fulfilling additional responsibilities comprising

• Providing leadership to the organisation and the board
• Confidence in chairing and facilitating board meetings, including agenda setting with the Chief Executive
• Supporting the Chief Executive including through an annual appraisal
• Representing Bright Shadow at functions and meetings, and act as a spokesperson as appropriate
• Bringing impartiality and objectivity to decision making

The John Laing Charitable Trust (JLCT) is a grant-making charity inspired by the legacy of Sir John Laing, a prolific and innovative philanthropist. We are seeking an additional Trustee to join us in our mission to improve the lives of those in need.

• Location: Board meetings in London
• Time commitment: c.8 hours per month
• Closing date: 9 a.m. Monday 30th September

Who we are.

The John Laing Charitable Trust (JLCT) is both dedicated to supporting the welfare of current and former employees of John Laing and a significant independent grant-making charity which supports and collaborates with others in the community to improve the lives of those in need.

Sir John Laing CBE was one of Britain’s most successful business leaders and a prolific philanthropist. He inherited his father’s building business in the early 1900s, and under his leadership, the firm expanded into a national enterprise. Sir John was a pioneer and innovator, committed to helping people, regardless of their background or position in society, in ways that encouraged them to help themselves and progress. This ethos continues today in the work of JLCT. We award grants to charities focused on tackling the root causes of socioeconomic inequalities, with a strong emphasis on long-term solutions to societal challenges. Through our grant-making activities, we aim to strengthen community-based services, empower young people, improve access to education, and help break the cycle of homelessness. A proportion of our grants are jointly awarded with John Laing Group, with whom we have a close working relationship.

Building on Sir John’s legacy, JLCT has grown into a grant-making body that positively impacts individuals and communities worldwide.

About the role.

We are looking for a new trustee with senior experience in an organisation supporting people experiencing homelessness and/or disadvantaged young people. This person will be contributing as a key member of our trustee Board with a particular focus on our grant giving and how we direct our funds to organisations creating longer-term impact in our areas of focus.

As a proactive grantmaker, we are always looking to refine and develop our grant-giving activity. You will play a key part in helping us think through and advise on grant-giving opportunities, bringing your insights and understanding to inform our grant-giving activity.

Who we are looking for.

You will bring a real passion for our work and a strong alignment to the values and principles that underpin our work, in particular values of compassion and respect, by which Sir John Laing lived his life and which shaped his support for others.

As our trustee, you will have relevant experience in an organisation that focuses on supporting people who are experiencing homelessness and/or disadvantaged young people facing socio-economic barriers and inequality. We are interested in funding organisations that create long-term systemic and strategic change. Bringing insight into initiatives that drive this,  whether it is empowering young people, contributing to ending the cycle of homelessness or strengthening communities, would be interesting to us.

With a commitment to equity and inclusion, we welcome first-time trustees and those with lived experience to consider this opportunity, and a full and comprehensive induction will be provided to enable you to contribute fully.

Time commitment.

Board meetings are held quarterly in central London, and attendance in person is preferred, but may be virtual. Our new Trustee will be expected to participate in the Board meetings, spend up to 2 days a year attending events and/or visiting projects, and give strategic insight on grant making / advise on specific grant proposals. The time commitment will be c.8 hours per month.

Please click 'Apply via website’ to be redirected to the Peridot Partners website, where you can find full details of the candidate profile and register your interest to apply.

Applications for this role close at 9 a.m. Monday 30th September.

We are partnering Music Therapy Works (MTW) an independent charity based in the West Midlands, whose mission is to deliver comprehensive music therapy services for individuals, groups and communities in a wide range of circumstances.

MTW provides music therapy to support and enhance communication, self-expression, and wellbeing. They work in a variety of settings including schools, hospitals, care homes and hospices to help people whose lives have been affected by injury, illness or disability through supporting their psychological, emotional, cognitive, physical, communicative and social needs.

We are seeking a new Trustee for MTW to join their current board and support the CEO to bring new insight and skills to set and approve the strategic direction of the charity.

What is a Trustee?

• Being a trustee means making decisions that will impact people’s lives and make a real difference to our community.
• Trustees are the people who lead the charity and decide how it is run. They play a vital role in helping to define and develop the work of the charity.
• Trustees work alongside the management team, using their skills and experience to help the charity to define and achieve its strategic aims. But they do not undertake the day-to-day work of running the organisation.
• Trustees are also Directors of MTW as it is both a registered charity and a company limited by guarantee.
• Trustees give their time on a voluntary basis. They are not paid fees, but they can claim reasonable expenses.

What do you get out of being a MTW Trustee?

• Being a Trustee is a great way to ‘give something back’ while developing your skills in leadership, influencing, debating, negotiating, strategic and organisational planning.
• You will have the opportunity to meet, network and learn from people who may have very different professional backgrounds and life experiences to your own. 
• Providing opportunities for training and development, every new trustee is assigned a Board buddy to help them to feel part of the team.

MTW want their Board to reflect the diverse community that MTW supports. We would particularly like to hear from you if you reflect MTW’s beneficiaries. For example: are you a disabled person? Do you have mental health needs? Are you a parent or teacher of a young disabled person, or a young person with mental health needs? Are you part of an adoptive family or do you work with children in care? Are you a carer for a person with dementia?

Whether you’re an experienced trustee or wanting to take up your first position at board level, we really want to hear from you! It is not necessary for you to have previous experience as a Trustee - training will be provided. 

For more information, please contact Sandra Smith, Associate Director, Charisma Charity Recruitment.  Your application should be submitted through the Charisma website and include your CV and supporting statement.

We welcome and encourage applications from people of all backgrounds. We do not discriminate on the basis of disability, race, colour, ethnicity, gender, religion, sexual orientation, age, veteran status or other category protected by law.

Closing date for applications: 11 November 2024

Interview date:  TBC

Music Theatre Wales is looking for new Trustees including our first Young Trustee
We are inviting applications for Trustees and Young Trustees (aged 18 to 25).

What are we looking for in our Trustees?
We want Trustees to bring commitment and enthusiasm for the work MTW is doing to re-imagine opera. We want Trustees who care about the things we care about - ensuring that equality, diversity and inclusion lie at the heart of all our work, driving the creative development we believe opera needs, working with artists new to opera, creating opera in different and innovative shapes and forms and learning from the people we work with. We want Trustees who are pro-active and happy to stand up for our vision, and who will also be our critical friend.

Board Leads
We have recently established a number of Board Leads, where a Trustee takes responsibility for a specific area of the company’s work, supporting and consulting with the MTW team and project leads to ensure best possible practice. We will be looking to recruit a Board Lead for our work in Butetown (we are committed to working in Butetown from January 2024 – Summer 2026), alongside the Leads for Welsh, Diversity, Safeguarding and Environment.

Why do we want Young Trustees?
It’s crucial to our work to have young people’s ideas and expertise in the organisation. We need the broadest range of perspective on our Board, and we want to be guided by a range of people who can contribute to the continued development of our work across all communities, and that includes young people. We are looking to recruit at least one person aged 18 to 25 to bring their voice to the table, to help us find the best ways forward for the future of opera, for the future of the company and most importantly, for future audiences and artists from all backgrounds.

We also want to support young people in their professional and personal development, and we will work with Young Trustees to ensure this is an opportunity for them to build their knowledge and experience. Young Trustees will receive mentoring from existing Trustees and training will be provided for any areas they feel less confident in.

In addition to the recruitment of a young trustee and Board Lead for Butetown, we are also looking to recruit Trustees in a general capacity and welcome applications from people of all backgrounds, ages, skills and experience. 

More information
Interested in reading more? For the full information pack, including more information on what a Trustee does, how often they meet and the application process, visit our website here: www.musictheatre.wales/vacancies.html

If you’re interested but not sure whether you want to apply, please also access the information pack for details on how to get in touch with Michael McCarthy (MTW Director) or Kerry Skidmore (Chair) for an informal chat.

We are actively seeking to expand the range of lived experiences, cultural perspectives and personal and professional interests in our Board and welcome applications from anyone who believes they have something to offer and who could be a passionate advocate for our work. We welcome applications from people of all backgrounds and will consider all applications on merit. We are particularly keen to receive applications from Welsh-speakers, young people (under 30), from Black, Asian and ethnically diverse people, disabled people, people who are LGBTQIA+ and people from lower socio-economic backgrounds. As part of our commitment to increasing the diversity of our workforce we provide a guaranteed interview scheme to applicants who meet the minimum requirements for the job who are disabled, neurodivergent or people of the global majority.

We are looking for a new Trustee to join our welcoming and dynamic team at an exciting time and to make a meaningful difference through our work supporting disabled people to live with greater independence.

Designability is a national charity who for over 50 years have created equality of opportunity for disabled people, by removing barriers to independence, enabling them to live the life they choose.

Following a person-centred design approach, and by including disabled people at each point of the design process, we ensure their ideas and lived experiences are taken onboard and that what we create reflects people’s needs as well as products and services they want to use. We are best known for the iconic Wizzybug powered wheelchairs for very young disabled children. To date, they have been loaned to over 1,400 children, typically aged between 14 months and 5 years, across the UK completed free of charge thanks to the support of our generous donors. 

Designability has a strong leadership team and we appointed a new Chief Executive at the beginning of 2024 who has over 20 years of experience as a founder, leader and consultant in a wide range of start-ups, commercial, public sector and not-for-profit environments. As we come the end of the first year of an ambitious three-year strategy, we are in a strong financial position with healthy reserves, and celebrated the end of 2023 with a highly successful televised BBC Lifeline Appeal demonstrating the impact of our work to a new and wider audience.

Having reviewed the skills, experience and diversity of current trustees, we would welcome candidates with experience in the following area:

Clinical expertise with experience of working with disabled people. This could include experience gained through a senior position in occupational therapy, physiotherapy or rehabilitation engineering or rehabilitation medicine.

Working as a team, trustees have three main responsibilities:

· To set a clear direction for Designability.

· To make sure that the charity’s plans are being carried out appropriately.

· To ensure that the charity meets its legal responsibilities .

All new trustees take part in an induction programme with the Chief Executive and Directors of each department and are offered ongoing training and support.

You will be joining an independent, national charity based in Bath. Our creative and inspiring team includes engineers, technicians, product designers, occupational therapists, fundraisers and administrators. We are led by strong values: we are creative, inclusive and practical, with our vision being to create a future where every disabled person has the products they want to live the life they choose.

For an informal conversation about this role, please contact us through Charity Job. 

To apply: Please submit a CV and covering letter/statement detailing why you wish to apply and how your skills and experience meet the criteria for the role.

Closing Date for applications: 30/09/24

Interview date:  Successful applicants will be offered a mutually convenient interview date, following the closing date. 

Wolfram Syndrome UK (WSUK)

WSUK is a small national charity based in West Sussex that supports children, young people and adults affected by Wolfram Syndrome (WS) and their parents/wider families. WS is an ultra-rare genetic disorder which causes a complex range of symptoms, including diabetes mellitus, vision problems, renal problems, deafness, and neurological problems. WSUK provides current, accurate and family-friendly information, raises awareness of WS among health professionals and the public, and helps to fund WS research. 

WSUK Treasurer

The WSUK Board is seeking to recruit a Treasurer to complement and extend the range of skills and experience of its current members. This voluntary role will maintain an overview of WSUK’s activities to ensure its financial viability and that proper financial procedures are maintained. Through active participation in quarterly Board meetings (on-line), this role will help WSUK to achieve its ambitions to continue to develop the activities and services it delivers to the WS community.

Skills and experience

WSUK is seeking a treasurer who is committed and motivated to help lead this small, but growing charity. Some financial experience and skills are needed, along with good independent judgement, an ability to communicate clearly and a team-oriented approach. You will become an important part of a dynamic charity, and you will be able to see how your involvement, skills and experience, directly benefit the people living with this challenging, ultra-rare condition.

The closing date for applications is Friday 13th September 2024..

Treasurer role description

Summary of the role:

The overall role of the Treasurer is to maintain an overview of the organisation’s affairs, ensure its financial viability and ensure that proper financial records and procedures are maintained.

Overall responsibilities:

The responsibilities of the Treasurer include:

· Overseeing and approving budgets, accounts and financial statements.

· Ensuring proper records are kept and effective financial procedures and controls are in place.

· Regularly reporting the financial position at Board meetings (e.g. quarterly reports), drawing attention to important points in a coherent and easily understandable way.

· Overseeing the production of an annual budget and proposing its adoption at the last meeting of the previous financial year.

· Being assured that the financial resources of the organisation meet its present and future needs.

· Keeping the Board informed about its financial duties and responsibilities.

· Liaising with members of the WSUK team about financial matters.

· Liaising at a Board level with external auditors on specific issues in the auditing process.

· Guiding and advising fellow trustees to formally approve the annual report and audited accounts.

· Contributing to the fundraising strategy of the organisation.

· Appraising the financial viability of plans and proposals.

Responsible to: This role works closely with the Chair and Board of Trustees

 Experience and skills:

The treasurer should have the following qualities:

· Financial experience. (e.g. as a Financial Director, Financial controller or qualified accountant).

· Financial analytical and evaluation skills.

· Good, independent judgement and strong leadership skills.

· Ability to communicate clearly.

· A team-oriented approach to problem solving and to management.

· Understanding and acceptance of the legal duties, responsibilities and liabilities of trusteeship.

· A willingness to devote the necessary time and effort and be available to staff for advice and enquiries on an ad hoc basis.

· A commitment to Nolan’s seven principles of public life: selflessness, integrity, objectivity, accountability, openness, honesty and leadership.

This is a voluntary position although all reasonable expenses are paid (in line with the WSUK expenses policy).

This role will require a Disclosure and Barring Service (DBS) check.

Time commitment

· The Board meets around 4 times per year, held virtually in the evening.

· The AGM is typically held as a face-to-face meeting on a Saturday afternoon in / near Worthing, West Sussex.

· Attendance at fundraising events and the Wolfram Syndrome annual conference is optional.

 The Applicant needs to reside in the UK.

Are you passionate about making a difference in the lives of children and young people?  Do you want to be a part of a charity that supports grieving children and young people, helping them navigate one of life’s toughest challenges?  Winston’s Wish is looking for dedicated young people aged under 30 to join our board of trustees.

Why Join Us?

As a young trustee at Winston’s Wish, you will have the opportunity to:

• Contribute:  Bring your unique perspective and ideas to help guide the future of our charity.
• Learn and Grow:  We are committed to your development.  This role is about potential, and we encourage individuals who are eager to learn and grow in a governance role.
• Make an Impact:  Play a key role in shaping the support we provide to children and families coping with bereavement.

What We’re Looking For:

You don’t need to be an expert in charity governance—we’re looking for people who are passionate, committed, and willing to learn. Whether you have experience in a related field, or you simply have a strong desire to help children and families in need, we want to hear from you.

We particularly want to hear from you if you identify as:

A person of colour (racially minoritized/racially diverse)

Live with a disability or condition affecting daily life.

Come from a disadvantaged background.

What You’ll Gain:

Experience in Charity Governance: Develop your understanding of how charities are run and the impact they have.

Personal and Professional Growth: Gain new skills, insights, and connections that will benefit your personal and professional life.

A Supportive Environment: You’ll be joining a team that values your input and is committed to supporting your journey as a Trustee.

We are here to support and encourage your learning and growth. We believe in helping you develop your skills and knowledge, and we will be with you every step of the way to make sure you reach your full potential. 

Recruitment Timetable

Q&A Session

We invite any interested applicants to a Q&A session to be held online (Zoom) on Wednesday 11th September 2024 (6pm until 7pm).  Please refer to the Recruitment Pack for further details on how to confirm your place.

Closing date for applications: 29th September 2024 (Midnight)

Interview date: W/C 14th October 2024 (evening slots available if required)

Winston’s Wish is an equal opportunity employer. We celebrate diversity and are committed to creating an inclusive environment for all employees. We welcome applications from individuals who bring fresh perspectives and experiences. Should you require the recruitment pack or application form in a different format, or any other adjustments to the recruitment process, please let us know.