About us
Who we are
We are the only charity in the UK dedicated to supporting anyone affected by retinoblastoma (Rb). Our mission is to lessen the impact of this condition through lifelong support, funding research initiatives, and driving early diagnosis.
Rb is a type of eye cancer that affects young children, mainly under the age of six. It develops in the cells of the retina, the light sensitive lining of the eye. Around 40-50 cases are diagnosed in the UK every year – approximately one child a week. Retinoblastoma can either affect one or both eyes.
Retinoblastoma has one of the best survival rates of all the childhood cancers. In the UK, around 98 per cent of children will survive but early diagnosis is really important. If you see one or more of the signs of retinoblastoma, be sure to get your child’s eyes checked urgently just to be safe.