About us
Who we are
Who We Are & What We Do
We support hypermobile people and the professionals who work with them. We provide validation, support, education, and self-management tools that are so desperately needed, whatever the hypermobility-related diagnosis (or lack of diagnosis).
What is Hypermobility?
Hypermobility is the ability to move joints beyond the normal range of movement. It is usually of no medical consequence, but for a some people it can be linked to symptoms and underlying conditions.
There's room for every bendy body under our umbrella! and we support people with hypermobility related health problems, including but not limited to Joint Hypermobility Syndrome, Ehlers-Danlos Syndrome all sub-types, Marfan, Stickler, Osteogenesis Imperfecta, Pseudoxanthoma. Some of the Hypermobility Syndromes are heritable connective tissue disorders which are extremely complex and multi-systemic and include chronic pain, fatigue, injuries, gastrointestinal, bladder and autonomic dysfunction such as POTs .
Our Vision
is that everyone affected by hypermobility syndromes in the UK are able to access an early diagnosis as well as the care and support needed to live well.
Our Mission
To support those affected by hypermobility syndromes to get an early diagnosis and to live well.