About us
Who we are
We are the UK’s patient charity for people living with sickle cell disorder. We believe that people living with the condition have the right to quality care. We support and represent people, patients and families affected by sickle cell disorder to improve their overall quality of life. We work with health care professionals, pharmaceutical companies, researchers, parliamentarians, parents, and people living with sickle cell disorder. We support and advise, raise awareness of the disorder and campaign for improvements in treatments and care.Our aim is to support those living with sickle cell, empowering them to achieve their full potential
Our culture and values
We are driven by a deep commitment to improving the lives of individuals and families affected by sickle cell disorder. Our culture is one of compassion, inclusivity, and respect, recognising the diverse experiences and challenges faced by those in the sickle cell community. We have a supportive environment where every team member feels valued and empowered to make a meaningful impact. Collaboration, integrity, and accountability are at the heart of everything we do, as we work tirelessly to raise awareness, provide essential support, and advocate for better healthcare and resources. Joining our team means becoming part of a mission-driven organisation dedicated to making a lasting difference through empathy, expertise, and a shared commitment to social justice.