PWSA UK

Who we are

PWSA UK is a small charity providing lifelong support to all those affected by Prader-Willi syndrome (PWS). PWS is a rare genetic condition causing an overwhelming and uncontrollable drive to eat that can be life-limiting, as well as learning and physical disabilities. We provide a dedicated helpline a comprehensive information hub, a regional network of peer support groups with a varied programme of community events, training for professionals working with those with PWS, and support for vital research. Our aim is to help our amazing community overcome the challenges and live life to the full with PWS.