PSPA

Who we are

Based in Milton Keynes, PSPA is a national charity providing support and information to people living with Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD). These rapidly progressing neurological conditions are caused by the premature loss of nerve cells in certain parts of the brain, and like many other chronic conditions, there is currently no cure. However, many of the symptoms can be managed, and our mission is to provide everyone affected with PSP & CBD with information and support to enable them to lead the best possible life they can. 

Raising awareness of these conditions amongst health and social care professionals since 1994, we also fund research into diagnosis and treatments, relying almost entirely on voluntary donations. 

Our culture and values

Our Goals are to:

- Enable people living with PSP & CBD and their families to live their best lives possible with high-quality support and information

- Improve the quality of life of people living with PSP & CBD through research, education and awareness-raising

- Put the voice of people living with PSP or CBD at the heart of what we do. 

Our commitments apply to everything we say and everything we do. 

- To be courageous in making sure the voices of people living with PSP & CBD are heard. Standing up for a better life for people and having a tenacious commitment to change, even in the face of setback

- To be ambitious – to be the leaders in the field of PSP & CBD in the UK.  To be willing to listen and learn and to strive for excellence and impact

- To work collaboratively, to inspire people externally and internally, to bring their individual talents together to improve outcomes

- To respect, value and recognise everyone’s contribution.  Empowering people and building a team which champions Equality, Diversity, and Inclusion. 

Equality, diversity and inclusion policy

We are an inclusive organisation and welcome applications from people from all sections of the community, irrespective of ethnicity (including race, colour, and nationality) age, disability, gender, sexual orientation, religion or belief.