MPS SOCIETY

Who we are

Every eight days, a child is diagnosed with a Mucopolysaccharide (MPS) or related disease in the UK. These are genetic, life limiting diseases which cause progressive physical disability and, in many cases, severe neurological deterioration.

As the only charity supporting individuals and families affected by MPS and related diseases in the UK, we offer the specialist support, information and advocacy that our community needs, either to make informed decisions about treatment, education, benefits or it can be to offer a friendly, listening ear during times of crisis. Our team of qualified Support and Advocacy Workers help over 1,500 children, young people and adults through regular calls, emails and home visits across the UK. We also focus on funding and collaborating on innovative, world-class research that could make a positive impact on the lives of those affected by an MPS or related disease.  

We put our community at the heart of what we do. Our vision is for all people affected by our diseases to live the lives they want and we know, together, we can transform lives through specialist knowledge, support, advocacy and research.

Equality, diversity and inclusion policy

The MPS Society is committed to ensuring it delivers an inclusive service for all. We believe in a fairer future for everyone, without fear or prejudice regardless of race, age, gender, disability, sexual orientation, social class, religion and belief.

We are also working to ensure that all individual’s human rights are protected and that vulnerable and disadvantaged people are safe from abuse and that they can access care and support tailored to their needs.

We believe that everyone should feel the worth of their contributions and we ensure that people are valued and treated with dignity and respect.

The MPS Society works to create an inclusive workplace and values all people as individuals continually striving to meet their requirements. This includes the population we serve, its members, their families, carers, staff, trustees, volunteers, contractors, anyone who comes on site and our key partners and collaborators.

Our aim is to achieve equitable, diverse and inclusive work practices by ensuring EDI is incorporated and reflected in our values, work ethics and behaviour. The MPS Society is committed to working positively to develop a culture of diversity and inclusion across the organisation, through our partnerships and within our communities.

We take our responsibility under the Equality Act 2010  very seriously, ensuring that no one is subjected to any form of discrimination, harassment and/ or bullying, including (but not exclusive to) those with protected characteristics ie:- Age; Disability; Gender Reassignment; Marriage and Civil Partnership; Pregnancy and Maternity; Race; Religion and Belief; Sex and Sexual Orientation