MDS UK Patient Support Group

Who we are

MDS UK Patient Support Group is a charity born in 2008 to raise awareness of MDS, offer support and information to patients and families and campaign to increase the quality of life and make treatments available to those affected by Myelodysplastic Syndromes.

How we support MDS patients:

• We provide advice and access to a list of UK consultants, specialising in MDS at specialist centres.
• Patients and families can contact us and receive help and advice by telephone 5 days a week
• They can join our national patient information meetings with specialist speakers or attend our small regional support group meetings, to meet informally and hear from local consultants and nurses.
• They can request our information material and access our website, which provides the most updated information on MDS, patient stories and current research.
• We put new patients/families in touch with fellow patients/families who may share their experience of living with MDS
• We offer an online forum and facebook pages to share experiences as an MDS patient, write or respond to other people's messages.

If you have MDS, or someone in your family has MDS, you're in the right place for expert advice.

Comments from members:

"To know that there is a support network to help my mum gives me great strength"

"Meeting other MDS patients and sharing experiences with them has made a great difference to the way in which I deal with my own MDS"