Huntington's Disease Association

Who we are

The Huntington's Disease Association is the only organisation across England and Wales offering support to people affected by Huntington's disease. Huntington's disease is a life-limiting, genetic disorder that causes the breakdown of nerve cells in the brain. This leads to symptoms affecting three main areas, movement, behaviour and cognition.

The Huntington’s Disease Association was established in 1971 as a specialist service to help people and families seriously affected by Huntington’s disease. We raise awareness of Huntington’s disease across the general public and allied health and social care professionals. We offer practical advice and support, training to health and social care professionals and fund research into the disease. We want a better life for anyone affected by Huntington's disease.

Our culture and values

Our vision

Together we will build a better life for anyone affected by Huntington’s disease

Our mission

To enable everyone affected by Huntington's disease to live life to their full potential by:

• Improving care and support

• Educating families and the professionals who work with them

• Championing the needs of the Huntington's community by working together

• Influencing decision makers to tackle discrimination and secure equity of access to services

Our values

We are:

• Tenacious
• Experienced
• Compassionate
• Inclusive
• Inspirational