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Huntington's Disease Association

We improve care and support services for people with Huntington’s disease, educate families and professionals, and champion people’s rights.

Organisation type Registered Charity Company size 21 - 50
Website address Facebook link X (Twitter) link

About us

Who we are

The Huntington's Disease Association is the only organisation across England and Wales offering support to people affected by Huntington's disease. Huntington's disease is a life-limiting, genetic disorder that causes the breakdown of nerve cells in the brain. This leads to symptoms affecting three main areas, movement, behaviour and cognition.

 

The Huntington’s Disease Association was established in 1971 as a specialist service to help people and families seriously affected by Huntington’s disease. We raise awareness of Huntington’s disease across the general public and allied health and social care professionals. We offer practical advice and support, training to health and social care professionals and fund research into the disease. We want a better life for anyone affected by Huntington's disease.

Our culture and values

Our vision

 

Together we will build a better life for anyone affected by Huntington’s disease

 

Our mission

 

To enable everyone affected by Huntington's disease to live life to their full potential by:

  • Improving care and support

  • Educating families and the professionals who work with them

  • Championing the needs of the Huntington's community by working together

  • Influencing decision makers to tackle discrimination and secure equity of access to services

 

Our values

 

We are:

  • Tenacious
  • Experienced
  • Compassionate
  • Inclusive
  • Inspirational

Equality, diversity and inclusion policy

We want to ensure that the HDA is an open and welcoming community for everyone, whatever their journey. Led by our charity values, we want to create an environment that is inclusive, supportive and representative.

We want everyone to feel valued and treated with fairness and respect. By recognising and celebrating differences within our team and community, we can learn and benefit from a variety of perspectives to create a diverse and inclusive charity.

 

We are committed to equal opportunities in our recruitment process and in order to find out how well we are doing, we collect monitoring data. This will not form part of the selection process in any way and will be used for monitoring purposes only. The completion of this form is voluntary.

We are looking for someone with the ability to work in a way that promotes the safety and wellbeing of adults at risk, children and young people. We follow safer Recruitment practices to ensure we are safeguarding the people we work with. We require the successful candidate to provide two employment references and undergo a Disclosure and Barring Service (DBS) check for enhance disclosure before joining the charity.
 

Full details of how we securely handle the data you provide to us as part of the recruitment process can be found in our privacy notice for job applicants on our website.

Benefits

We offer the following benefits for paid jobs.

Flexible working hours

Flexible working hours

Training opportunities

Training opportunities

Employee discounts

Employee discounts

Mental wellbeing support

Mental wellbeing support

Media

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Huntington's Disease Association 21,716.55 per annum (£36,194.25 FTE) Remote
Closing 11 March 2025

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