About us
Who we are
We are a small charity with big ideas. All the bleeding disorders we cover are life-long rare conditions. That means we all get to know each other very well and our events have a family atmosphere. Many members of our community do an enormous amount for us on a voluntary basis and we are keen to do more to support them in that work.
We provide support for everyone with a bleeding disorder, whatever their age, as well as for Mums, Dads, Siblings, Partners, Children and Grandparents. Our events provide an opportunity to strengthen our community and for our members to support each other. We provide impartial and straight forward information that our members can trust. We also work in partnership with the Scottish Government and Haemophilia Centres to continually improve treatment and care.