Registered Charity
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About us
Who we are
The Gorlin Syndrome Group is a support network offering guidance and information to individuals with Gorlin Syndrome, and their families and carers.
The group is organised by people with the condition and their families. We are supported by a medical advisory panel.
Our aims are to offer guidance and information to individuals, their carers, family and friends with Gorlin syndrome. To help with the advancement of the education of the medical profession and its implications for the family and to promote research into the causes, effects, treatment and management of Gorlin syndrome.
