Genetic Alliance UK

Who we are

Genetic Alliance UK is the largest alliance of organisations supporting people with genetic, rare and undiagnosed conditions in the UK. Our members and the people they support are at the heart of everything we do.

We advocate for fast and accurate diagnosis, good quality care and access to the best treatments.  We actively support progress in research and engage with decision makers and the public about the challenges faced by our community. 

We run two long standing projects:

Rare Disease UK, a campaign focused on making sure the new UK Rare Diseases Framework is as successful as possible, and to ensure that people and families living with rare conditions have equitable access to high quality services, treatment and support.

SWAN UK (syndromes without a name), the only dedicated support network in the UK for families that have a child or young adult with an undiagnosed genetic conditions.