Fowlers Syndrome UK

Who we are

Fowler’s Syndrome UK is a registered charity (1196903) that works to raise awareness, promote education and increase research into Fowler’s Syndrome, with the aim of reducing diagnosis time and improving care. As the first charity in the world to exclusively support those with Fowler’s Syndrome or CUIR, FSUK intends to provide resources and support to the Fowler’s Syndrome community.

Currently resources for women with Fowler’s Syndrome are scarce, with the majority of specialists based in limited centres, where there is a significant wait for referral.

FSUK intends to change this landscape, working together with the top urologists, neurologists and other healthcare professionals in the country, as well as with patient experts, our Fowler’s Foxes.