Findacure

Who we are

Findacure is a UK charity that is radically transforming the world’s understanding of rare diseases. Our vision is a world in which all rare diseases have treatments – made together with patients, for patients.

Findacure positively transforms the lives of people affected by rare diseases and accelerates change in the field by:

• Working directly with to them, giving them the skills to professionalise their work, and the confidence to recognise their own expertise in their conditions.
• Building a rare disease community that supports, informs, and collaborates together for the betterment of all rare conditions.