Endometriosis UK

Who we are

Endometriosis impacts on the physical and mental health of 1 in 10 women and those assigned female at birth in the UK; Endometriosis UK is here to help them. We are determined to ensure that everyone gets prompt diagnosis and the best treatment and support. 

We work to break down barriers to access - whether information, treatment or support - wherever endometriosis impacts on lives.

We are a powerful voice for those with endometriosis, driving up care standards across the UK. 

We lead collaboratively across our community, acting to inform, empower and advocate for all those affected by the disease. The endometriosis community is at the heart of all we do, and we strive to support and represent all experiences.

We fight to make change happen for everyone with endometriosis, to end chronic menstrual related pain being brushed off as normal and raise awareness of endometriosis with the wider public.

Formed in 1981, we provide information and support to those with endometriosis, for example through our website and information leaflets, and via our local support groups, Helpline and online forum.  As well as directly supporting those with endometriosis, we work to raise awareness of endometriosis amongst healthcare professionals, the public and the media; lobby for improved treatment and management; and support research. 

Our culture and values

Our information pages have been written for those who may have endometriosis and their families and friends. Health professionals may also find them useful as a supportive tool to help to explain treatment options for endometriosis. We make every effort to ensure that this content is reviewed regularly for accuracy and relevancy.

Equality, diversity and inclusion policy

Endometriosis UK is committed to supporting and advocating for everyone affected by endometriosis regardless of race, gender, sex, gender identity, class, sexual orientation or disability and ensuring diversity, equity and inclusion is at the heart of every aspect of our organisation.

Everyone affected by endometriosis needs to be acknowledged, and we know that we must do more to identify the needs of all those affected by endometriosis, develop, maintain and evaluate our work to meet those needs and advocate for necessary change and ensure all voices are heard.

We are taking steps to actively ensure we drive change for those from under-represented groups and the Board have established a Diversity & Inclusion Group to ensure we take this work forward. Our first priority is ensuring that we understand the needs of all people affected by endometriosis including those from under-represented groups, which will inform our priorities.

We look forward to driving this work forward and working with you to ensure that everyone affected by endometriosis has access to the support they need.