Registered Charity
1 - 5 
About us
Who we are
DEBRA International is the international alliance of nearly 50 national patient organisations working on behalf of people with epidermolysis bullosa (EB), a group of rare, chronic, and debilitating genetic skin disorders.
Our vision
We envision a world where anyone with EB has support from a DEBRA group, and access to specialist treatments, healthcare, and social support.
Our mission
We promote and coordinate international collaboration between patients and their support networks, advocates, health and social care professionals, researchers, and industry to better the lives of those with EB worldwide.
Our organisation
DEBRA International is a small organisation but with a big heart. The charity is registered in Austria but operates solely in a virtual capacity with directors, staff, and volunteers based in different countries around the world.
