Ataxia-Telangiectasia Society

Organisation type Registered Charity
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About us

Who we are

Ataxia-telangiectasia is a devastating genetic condition, that brings increasing physical disability, immunological problems and a greatly increased risk of cancer. Life expectancy is in the mid twenties. The A-T Society's philosophy is that each of us only has one life, and it should be lived the very full. It is our role to enable people living with AT to do just that. We provide information, a listening ear and wide range of support, including guidance, advocacy, training for professionals and financial grants. We bring people living with A-T together and give them a voice. We also work to improve medical care and fund and promote research to develop new treatments and ultimately find a cure.

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