Alexander Devine Children's Hospice

Who we are

Our Vision:

A much needed children's hospice for the very special children of Berkshire and surrounding counties.

A service that will give children and their families a choice of care and support from dedicated staff.

A place of safety and security in a calm and loving environment, where no judgements would ever be made.

A place where life is for living, for however long or short that maybe and respected in its frailest form.

A place quite simply 'to be', where people really do understand.

Our Core Values:

Determined
And resolute in our service to all those that need us.

Empowering
To enable whoever comes into contact with us, the power and courage to make decisions, ask questions or simply to be..

Valuing others
We value you and each other, because we are all unique and special in our own way.

Integrity
To be consistent in our ethos and values, principles and actions. To always behave and hold the integrity of our charity as core.

Nurture
To provide an environment of protection, support, growth and encouragement.

Empathy
To know that we will provide a place of safety for everyone to express their feelings, thoughts and emotions, without judgement.

Our culture and values

We deliver palliative care to children and families through an holistic approach that meets the individual needs of each child and their family.

Our vision is to provide a service within Berkshire and surrounding counties that will give children and families a choice of care and support from a skilled and dedicated team. We work closely with the NHS, local authorities and other services in delivering our care. 

Respite care

Care and fun

We understand that when a child has complex healthcare needs and requires round-the-clock care, the emotional and physical pressures on families can be immense. Taking a break from caring is not always possible.

Respite care provides you with the opportunity to do the things that you might not normally have the chance to do. Whether you chose for respite to be in your own home or in our hospice, you will have peace of mind that your child is being looked after by a caring team that they know and trust as well as having plenty of fun. This could be time in the hydrotherapy pool, making a mess in our creative learning zone, baking or relaxing in the sensory room.

Specialist play

Enriching lives

Alexander’s Care Team works with the children and young people we support providing age appropriate activities to stimulate, engage and build relationships. This can take place in the home, in the hospice, in schools or in the wider community.

Our play specialists can also provide activities to help with coping, feelings and other challenges that the children and young people, as well as their siblings may experience. In addition, they run group activity days and sibling outings to encourage friendship and peer support.

Music therapy offers the children a place to express themselves in their own way. Some children have busy lives with siblings or complex care routines and a quiet space just for them may be a welcome experience. 

Play is a very important part of every child and young person’s life, a way to learn, express themselves, make new friends, have fun and create special memories. Whether it is through stories, cooking, music, imaginative play, construction, technology or arts and crafts, we want them to have every opportunity to be happy and achieve their full potential.

Symptom management

Supporting complex needs

Most of the children we support have complex healthcare needs. The assessment and symptom management planning is a vital part of their care.

Alongside our care team, our Clinical Nurse Specialist and Doctor will work with the family and other professionals that are involved with the child’s care to create an individual symptom management plan that is based on a thorough assessment and sound clinical judgement.

We want families to feel reassured that everyone caring for their child is following an agreed plan and their clinical needs are met, no matter what changes.

Family support

Caring for everyone

Our services extend to support the whole family, including parents, siblings and anyone else in the family that needs us.

Our family support service is flexible and is focussed on what is needed by each family. It might, for example, be the opportunity to take a break, for siblings to come together at our activity sessions. An opportunity to be part of fun activity days together as a whole family, the chance to talk to people who understand or to be with other families with shared experiences.

End of life care

Being alongside

Planning care at the end of life is about supporting the hopes and wishes of the family alongside the professionals involved. We will listen and help each individual child and family to make decisions that are right for them.

Our team will work alongside other professionals to ensure there is a comprehensive and co-ordinated approach, keeping the child and family at the centre of all decisions. No matter the situation, our team will also offer practical and emotional support to help families throughout this time.

Bereavement support

Ongoing help

We know that having the right support is important for families at the hardest and saddest times. Every family is different and we will work with each member of the family to provide help that is needed.

We can provide counselling for parents and age appropriate support for siblings. Our work incorporates memory work to help with grief and commemorating the child. We also hold remembrance events for families to remember their loved ones.

Our support is offered to the family and extends to work in the community helping those affected by the loss of the child. Our team often visit schools to help teachers and their friends understand what has happened and what they are experiencing.

Equality, diversity and inclusion policy

It is the policy of Alexander Devine Children’s Hospice Service to provide equal opportunities to any employee or job applicant and will not discriminate either directly or indirectly because of race, sex, sexual orientation, transgender status, religion or belief, marital or civil partnership status, age, disability, or pregnancy and maternity.